• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. L

    Are these symptoms for Crohns?

    Hi everyone, I had a question about some of the following symptoms related to Crohn's. So my mom and I have Crohn's. Recently, my sister hasn't been feeling well for the past 8ish months. She has acid reflux, so every time she eats, she feels like the food is coming back up. Her symptoms...
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    Remicade Bill?!

    Hi everyone, So I've just been wondering how much Remicade costs you before and after insurance pays. I got my Remicade in a new location based on where I'm going to school, and it says that it was around $19,000 before insurance and about $2300 after insurance paid. That sounds crazy and is so...
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    Remicade and Weight

    Hi everyone, I'm Laura and I'm 18 years old. I've posted about this topic before but didn't get any answers, so I wanted to ask again. I'm currently now on 10 mg/kg of Remicade every 4 weeks (2 doses so far) and have increased from 5 to 7.5 to 10 mg/kg in the past year. I'm nervous because I...
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    Remicade and weight changes

    Hi everyone, I'm 18 years old and I weigh 120 lbs at 5 ft 4.5 inches. This is considered normal, but I feel so different. I've been on remicade for a while now (currently on 10mg/kg every 4 weeks... We'll see how it goes). I've never weighed this much ever. Before I was diagnosed with Crohn's...
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    Effects of New Dosage of Remicade

    Hi everyone, I'm Laura! So I have recently changed from 5 mg/kg to 7.5 mg/kg of Remicade every 8 weeks. This Friday will be the end of week 7. I've noticed that this new dosage helped with the following for a longer time period: not developing any fevers, keeping a good appetite, keeping a...
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    New dosage for Remicade

    Hi everyone! So I was on 5 mg/kg of Remicade (every 8 weeks) but noticed that once the 6th week began, I began getting symptoms again (bathroom, very fatigue, fevers). So my doctor now changed it to 7.5 mg/kg, which I got last Friday. I wanted to know if there was anyone here who got their...
  7. L

    Meaning of remission

    Hi everyone, I just wanted to discuss people's thoughts on remission. What does it mean to be in remission for you? I feel like I am in remission... but I'm not sure. For those who are in remission or know what it's like, what do you usually notice? :eek2:
  8. L

    Getting Off Of EEN

    Hi everyone! I was on the EEN diet from early October until early December (about 10 weeks). I drank 5 Boost plus a day due to a flare up and high inflammation. Along with the Boost plus, I was on Prednisone (currently tapering down and on 10 mg). My doctor started me back on Remicade (which...
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    Mood changes

    Hi everyone, I've been on Prednisone for the past two months, since I got out of the hospital, but I am currently tapering down. I started with 40 mg, and I am now at 15 mg. Recently, I've been very down/upset, and I feel like there is nothing to look forward to. I don't know why I'm feeling...
  10. L

    My Story and Treatment Options

    Hi everyone! My name is Laura and I'm 17 years old. I was diagnosed with Crohn's disease in March of 2014. When I was diagnosed, I started off with just Pentasa which didn't help much, then added 6 MP, then Remicade this past February. This past July, I was really sick for a week with high...