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  1. E

    Low B12

    I have been diagnosed with low b12 (my level is 148). I am struggling to understand why this may be. I don't think it is my diet as I eat meat daily. I would be surprised if it is due to my crohn's. While my crohn's is in my terminal ileum, where b12 is absorbed, I am in remission and my last...
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    I got my PhD today

    I’ve had Crohn’s since a teenage (though undiagnosed for quite some time). I had a horrible time getting a diagnosis and severe Crohn’s that required emergency surgery to treat a perforation 10 years ago. I’m 32 soon and today I passed my viva and have been awarded my PhD! I now work full-time...
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    Immunomodulators may not be necessary alongside stelara

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    5-asa medication to prevent bowel cancer

    Hi all, I have recently been reading some statistics about bowel cancer after a period of time (circa 20- 30+ years after having the disease) being quite high for both colitis and Crohn's (1 in 5 for Crohn's, will be higher in colitis). The main form of prevention which I have read that seems...
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    Options with azathioprine

    Hi all. Been on azathioprine since April 2016. For the first year I took 50mg and felt like it did nothing for me and was getting symptoms all the time. I then upped to 75mg and finally found improvement and had a good colonoscopy. I was on 75mg for 6 months when the nurse phoned and said my WBC...
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    Weight gain

    Hello, My BMI has always hovered round the 17 mark my whole life. After diagnosis I went on steroids and fortisips to gain weight and I managed to gain about 5 kilos but since stopping both of those I just slowly lose it. I don’t seem to be able to maintain my weight without regular fortisips...
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    Low WBC - azathioprine

    Hello, I started 25mg of aza in April 2016. Took that for around 3 months and then upped to 50mg. I took that until March 2017 and then upped again to 75mg. From there my WBC started slowly dropping with each monthly blood test. By September 2017 it had dropped just slightly below normal so I...
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    Bile acid sequestrants could help ileal Crohn’s

    Bile acid sequestrants could help ileal Crohn’s https://www.sciencedaily.com/releases/2017/12/171219133450.htm
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    Noninvasive test monitors mucosal healing

    https://www.prnewswire.com/news-releases/new-serum-test-is-first-to-measure-and-monitor-mucosal-healing-in-crohns-disease-300536178.html http://www.empr.com/news/prometheus-monitr-crohns-disease-test-noninvasive-assay/article/700360/
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    Lack of Mucosal Healing From Modified Specific Carbohydrate Diet in Pediatric Patients With Crohn's Disease

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    Lack of Mucosal Healing From Modified Specific Carbohydrate Diet in Pediatric Patients With Crohn's Disease

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    Correspondance with CC UK r.e use of biologics - thoughts?

    Hi all, the following conversation was exchanged with Crohns Colitis UK and I am wondering people's thoughts: Me: CCUK: Me: CCUK:
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    Blood tests

    I am on azathioprine and get blood tested monthly - FBC, LFT, U+E. Does anyone know if inflammation testing such as CRP and ESR would be covered in these or would the doctor have to specifically request these to be covered.
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    Fecal calproctectin yo-yo-ing

    Hello, anyone know why a fecal calproctectin test result might yo-yo? Over the past year my results have been: Aug 2015: 65 March 2016: 70 June 2016: 60 September 2016: 142 December 2016: 72 March 2017: 32 July 2017: 211 My MRI with contrast in September 2016 was normal, my colonoscopy in...
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    IBD nurses have phoned me twice asking me to do a blood test

    Hello, I am on azathioprine (50mg since April 2016 and upped to 75mg in March 2017). I get my bloods checked every few weeks, last time I got them checked on 11th April. I have received two calls this week now from the IBD nurse asking me how long I've been on my azathioprine, when did I start...
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    Update on my life

    I thought I would post an update. Some background about me is that I experienced terrible cramps/contractions on and off from 2006 - 2011. In 2011 I had an emergency right hemicolectomy for a perforated ileum that was misdiagnosed as appendicitis. I went from 2011-2015 unmonitored and felt...
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    Azathioprine / immune suppression and asthma

    Hi all, since being on azathioprine for my Crohn's I have noticed a worsening of my asthma. I seem to have attacks more often that are worse in nature and more difficult to get under control. Does anyone know anything about this? Thanks
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    Feeling utter despair

    Hi all, I've had Crohn's for what feels like forever, but was only officially diagnosed in January 2016. It's basically confined to my ileum. Prior to my resection, I would feel normal but then have a week here and there of intense cramping pains like labour, in the centre of my abdomen above...
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    MRI scan results

    I am highly confused in that my MRI scan a couple of weeks ago apparently is completely normal! At the time when I had it done, the radiologist implied he had seen problems. My fecal calproctectin results over a 1 year period have been: 65, 70, 60 and in September, a couple of weeks before my...