• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. K

    Crohn's and Gender

    Does anyone happen to know a reference for the gender breakdown of people with Crohn's? I'd also be interested to know the gender breakdown of people on this forum, if that's possible. Thanks!
  2. K

    How Crohn's patients get manipulated by "Motivational Interviewing"

    So we are continuously marketed to and this blog post is about how AbbVie, the makers of Humira, uses psychological techniques to influence us. It's something to be aware of. It's not an Anti-Humira piece, it's a more of an FYI: Please Don't Empower Me Anymore/
  3. K

    Consumer info regarding Imuran vs Azasan

    So I just wrote a blog post about which companies manufacture the most popular drugs that the IBD community uses. The post is called An Underestimated Risk to the IBD Community: Drug Companies. What I learned is that Salix Pharmaceuticals makes Azasan and GlaxoSmithKline (GSK) makes Imuran. (I...
  4. K

    Help get adverse event data about Humira released!

    I'm re-posting this in the Treatment section so hopefully more members of this community can see it. It's posted once in the Books, Multimedia, News, & Research section. *** You may already be aware that AbbVie, the maker of Humira, refuses to allow any access to clinical trial data. This is a...
  5. K

    Petition to release Humira clinical trial data

    You may already be aware that AbbVie, the maker of Humira, refuses to allow any access to clinical trial data. This is a really big deal for not only the Crohn's and UC community but also for Rheumatoid Arthritis and Psoriasis patients as well. Adverse events in clinical trials should not be...
  6. K

    Analysis of Crohnology’s Fecal Microbiota Transplantation Users: An Open Source Peer-to-Peer Observational Treatment Study

    Analysis of Crohnology’s Fecal Microbiota Transplantation Users: An Open Source Peer-to-Peer Observational Treatment Study I'd be great if this could find an audience here at Crohn's forum who are interested in trying Fecal Microbiota Transplantation. http://bit.ly/1bm7R2y
  7. K

    A Brief Analysis on the Mentions of Side Effects on crohnsforum.com

    The full article can be found here: http://bit.ly/14mR9gchttp://bit.ly/14mR9gc This is the second part in a series of research articles focused on drugs discussed by IBD patients on crohnsforum.com. The concept of Drug Side Effect Ratio is defined. The previous article took a look at what...
  8. K

    If you're taking Humira you may want to know about this...

    So if you're taking Humira you may want to follow this story: http://bit.ly/12Azwrr AbbVie, the maker of Humira is refusing to release trial data about a lot of their drugs. Including Humira.
  9. K

    Data Mining the Distribution of Drugs Mentioned by IBD Patients on crohnsforum.com

    I can't post the entire article here because of the graphics for the charts so here's the link. This is the first paragraph: "There’s a difference between the drugs commonly prescribed for IBD (Crohn’s and Colitis) and the set of drugs commonly taken by IBD patients. A simple example is to...
  10. K

    Small Archive of Review Papers on IBD (full PDF versions)

    Lots of times we don't have access to the full papers that are being discussed. I've made a small archive of the Cochrane Collaboration Review articles from their IBD category. You can find it here: http://bit.ly/1blZbY0 If anyone has trouble gaining access to a full academic paper please post...
  11. K

    Cochrane Summary on Azathioprine and 6mp

    This post is about a recent (May 31, 2013) report by the Cochrane Collaboration which analyzed 13 randomized trials concerning azathioprine and 6pm. It's called Azathioprine or 6-mercaptopurine for the treatment of active Crohn's disease. I'll go ahead and include the punch line...
  12. K

    My Story in a Nutshell

    I tried to tell my story in as little space as possible. There's a short description but more importantly there's a visualization . Here's the text: In a nutshell: I was diagnosed with Crohn’s disease at age 25 in the summer of 2001 while living in Chicago, IL. My symptoms had started years...
  13. K

    Great potcast from Crohnology founder!

    I found this very empowering to listen to: http://bit.ly/Vr5IX4 It's an interview with the founder of crohnology.com. He talks a lot about the democratization of health care and all the treatments he's tried for Crohn's.
  14. K

    Reported Drug Side Effects: xRisk.org Remicade in top 10!

    There's a relatively new website for helping to track drug side effects called xrisk.org. I just looked at the top 10 drugs with reported side effects since 2004 and I was absolutely shocked to see Infleximab (Remicade) in the number 5 spot. It looks like the data comes directly from the FDA...
  15. K

    Prescription Cascades in Crohn's Treatment

    What are some "prescription cascades" which Crohn's patients have faced? I'm reading a book called "Are Your Prescriptions Killing You?" which is written by a pharmacist. He mentions "prescription cascades" which refers to when one drug leads to side effects and then another drug etc... It's...
  16. K

    Dialogue about "For Crohnology Users Diet More Effective Than Medication"

    So I wrote this blog post a few weeks ago called "For Crohnology Users Diet More Effective Than Medication" And what I'd really like feedback about is how can we effectively do more work like this? I think Crohnology has a great idea. I don't think the poll/survey is very good but there's...
  17. K

    Questioning An Azathioprine Withdrawal Study

    I posted a piece called Questioning An Azathioprine Withdrawal Study on my blog yesterday and I just wanted to let people here in crohnsforum know about it. It will probably be covered by David Healy's (author of Pharmageddon) blog or RxISK.org in the next few days. I got really positive feed...
  18. K

    Rates of Crohn's around the world?

    I've heard talks at CCFA meetings where rates of Crohn's in different countries are quoted. Does anyone know any good references for this info? I'd love to just know: Country, Rate of Crohn's. For example in the U.S. I recently read a rate of 317 per 100,000. (But there wasn't a source listed.)
  19. K

    Crohn's Disease Case Study

    I've put together a quick Crohn's Case Study using my own health data and experiences. You can can find it posted here: http://bit.ly/yMCiDg Here's the intro: I’m a squandered data point and so are you. It’s probably safe to say most every patient’s value isn’t exploited. We become isolated...
  20. K

    Infographic of my Crohn's story using medical records

    I put together an infographic of 10 years of my Crohn's disease. It covers 10 years and includes a lot of medical records. It can be found here: http://bit.ly/s1kUcJ You'll find all the drugs I've been given, the expenses, some personal information as well as how many 50mg pills of azathioprine...