• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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    Stelara reducing in efficacy or just flare?

    Hi, My 13 year old son has UC for 18 months (maybe Crohns - there was some inflammation in the ileum)... He has tried Humira, Infliximab, Steroids, EEN and they have all failed to arrest his disease. He did get a response from Infliximab but that lasted about 4 months. He started Stelara in...
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    Hi all Just thought I'd update you on J's progress. Last year he was newly diagnosed and failed on Remicade / Humira / EEN / Steroids. This led to 3 hospitalizations and the brink of surgical solutions. It was a scary time. So, in January J started Stelara. He was in a bad way in hospital and...
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    Infliximab failure - Stelara next

    Hi again :-( So, my son started infliximab last year after failing on EEN, oral & IV steroids and Humira. J got to remission after a few months on Infliximab. He took a while to get going and was receiving it every 4 weeks. He had about 3 months clear before it stopped working about two months...
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    Microbiome in Irish travellers

    A separate ethnic group living in a modern western country with one of the highest IBD rates in the world that are apparently protected from IBD. https://www.irishtimes.com/news/health/gut-microbes-linked-to-irish-travellers-confer-health-benefits-study-1.4297752 It'd be great to see some...
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    Parent of newly diagnosed kid

    Hi Thought I'd introduce myself. My 12 year old son has been diagnosed with Crohn's 6-8 weeks ago. Jude also has type 1 diabetes which he was diagnosed with at 7 years old. J tried EEN but couldn't keep it up as he seemed to be getting worse and losing weight on it. J stopped 8 days in...
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    My 12 year old son has just started Humira...

    ... and I was wondering how long it would take to start working. He has what looks initially like Ulcerative Colitis but could be Crohn's disease as I have Crohn's. He got started 10 days ago. I have my fingers and toes crossed that this works as he has failed on EEN.
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    Hi, I have persistent crohn's of the rectum and lower colon for the last 30 years... It wasn't much of a problem for the first 20 but the last decade has been tedious to say the least! Although I have recovered from fistulae and severe disease my crohn's is still active in the moderate range...
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    Vedolizumab Trial

    Hey Everyone, I just started the Vedolizumab trial yesterday. I got my first infusion and other than losing a bit of sleep last night I haven't noticed too much in the way of side effects. I'll keep you up to date with my progression on this thread. I know we all want to hear some good news...
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    Hello everyone

    Hi Everyone, My name is Nick. Tis' nice to be joining you on this forum for the first time. I've had Crohn's since I was 12 years of age. It was fairly low key for the first 18 years but the last 8 (I'm 38 now for the non-mathematicians out there!) has been a right pain in the arse. Literally...