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  1. W

    Ileo and prep...

    Hi all, hope all are well out there. I've just been to pick up my prep for a scope thats scheduled for Weds (CD really has gone haywire) They're doing the 'traditional' up my bum route, as well as de-flowering Ozzie :yfaint: Prep of choice is Picolax- 2 sachets to be taken tomorrow. Now I've...
  2. W

    Lower left quad pain

    Hi all, will try and keep this brief. I have woke (well it woke me) with the above. Usually would signal that my UC was going haywire, but thats not a possibility now that my colon and almost all of my rectum has been removed. I'm passing loads of mucus and just started a bleed (slight at the...
  3. W

    Pred Suppositories- those in the UK

    Hi all, my GP wrote a script for these back on Monday, and to say I'm having problems filling it would be an understatement. Seems the manufacturer can't supply! Has anyone else had this problem recently? I had been writen up for Pred retention enemas the week before, but please that MUST have...
  4. W

    Dexky Fan Club

    At Dusty's request, I have been asked to open up this fan club, for one amazing daddy! St Dusty of Oz will be responsible for all admin, and issuing of membership cards and packs....:ylol:
  5. W

    The Foul Bowel

    Just thought I'd share this book with you all. It's not your usual Crohn's book. It's writen by John Bradley, and is a light hearted look at his journey dealing with CD. Really is a laugh out loud look at testing, med appts, his consultants, work etc.:rof: If you log on to the website, you can...
  6. W

    Happy Sunday!

    I don't think I've had the need to post a happy thread for a while, BUT today's a good day, and long may it continue!!:banana: It's been a hard week- Finishing the thesis, Restarting chemo, Hospital admission, and loosing a dear friend. Today though, I feel bloody amazing. Tomorrow I hand in the...
  7. W

    Can't do/take this anymore...

    I thought I was stronger than this. I've gone from being mega happy last weekend that I was having a chemo free week, to now being in the depths of wherever. This 'week off' has been harder than my 2 weeks of treatment. Just as cycle 2 starts on Monday... I returned to work on Tuesday, managed...
  8. W

    A Happy Day...

    Tonight I take my last chemo dose in this cycle. 1 down just 7 more to go... Tomorrow's the start of my chemo free week- time to party! Well maybe not, but this journey is closer to the end than it was 2 weeks ago. The sun's shining, and I'm feeling pretty good considering... Happy Sunday...
  9. W

    Rectal Bleed

    Firstly I should say I'm not feeling unwell, but I have woken this morning and appear to have had a rectal bleed in the night, and still spotting a little this morning. I have a slight temp (37.9c), and Ozzie's still running much like water. Have left messages with my SC and IBD nurses, so I'm...
  10. W

    A BAD day...

    Well, Ozzie and I have been plodding along rather nicely for the past few weeks, and slowly getting to know one another. The weather here has been great recently, so today I accepted an offer to go for a walk along the beach with some friends. It ended with most of the contents of my bag all...
  11. W

    Membership cards..

    Ok, I have my ileo, now where do I get my membership card to this club? I apologise in advance, and my new user name should be 'Grumpy'. Bear with me whilst I try and get used to this new life- but right now it damn well sucks and I hate it!!
  12. W

    A new chapter-

    Good morning. I should start by saying this is NOT a 'pitty party' nor meant to be a sad post. I'm merely dropping by to put my last 12 years, and certainly the past 'year from hell' to bed. The past year has been hard, from memory- 12 hospital admissions, 5 day unit admissions,1 resection, 1...
  13. W

    On my marks...

    Well I've been allowed home to have 2 good night's of sleep before the 'big day'. Saw my team this morning, and we are all set to go at 1.15pm on Friday. Bloods, x ray's all done. My ALT is high again (147), so we've decided to stop the 6MP for a week to allow the levels to drop. The pred, after...
  14. W

    Free to a good home..

    1 Colon no longer required after Thursday (all going well). Will happily trade for a fully functional and working model. This one's retiring early due to almost 12 years of overworking... God I wish I could stop the tears and the nerves. Had my head set for May 9th, but alas we won't make it...
  15. W

    Surgery sooner....

    Well I'm back in the place that is becoming my 2nd home! It's been a long weekend of endless tests and xrays. Tomorrow's another colonoscopy and then a meeting with my surgical team. I'm not going to make my May 9th date, it's looking likely that my colon and I shall part company this coming...
  16. W

    Getting a stoma soon

    Tomorrow I will get my date for joining you all here...hope there's place for one more!?!? xx
  17. W

    Surgery soon...

    Well, I've pulled up my 'big girl pants', cried buckets and am now ready to conceed that surgery is my best option for some sort of normality. Have confirmed with my gastro's secretary that I am now willing to go under the knife and have my colon removed. Meeting with the team on Weds to discuss...
  18. W

    Aarrgghh!!!!

    Well one of the nurses on the ward has just brought in a new script for me- an antidepressant. I'm NOT bloody depressed, just a tad cheesed off and am beyond being tired. I did cry on my IBD nurse earlier, trying to explain my frustration and need for answers and a solution to this 13 months of...
  19. W

    Colectomy and J pouch

    Hi all, Well I'm back in hospital (been here since Thurs). Really don't feel ill at all, and feel a bit of a fraud being here to be honest. Back on IV antibiotics and fluids, and hoping to be on the mend again soon. Well it appears that the resection really hasn't worked as well as we would have...
  20. W

    Woohoo- I'm Back!

    Hi all, Just stopping by to say a BIG 'Thank You' for all the get well wishes and pm's. Well it's been a long, 6-8 weeks. 2 lots of surgery, 2 gastroscopy's and some new meds, but alas I can say I am feeling LOADS better than I have in ages. I even managed to find the energy to move house about...
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