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  1. X

    CDC approved booster of COVID 19 for immunosp

    In NY, GI recommended for young adult w Crohn’s only on inflectra.
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    Ultrasound for crohns

    I just googled and found: “Until recently trans-abdominal ultrasound was rarely used for bowel assessment due to its difficult visualisation. Endoscopy, MRI, CT, and conventional radiography were the preferred imaging methods. However, over the past few years technological advancement and the...
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    Study for teens with ibd and covid vaccines

    Yeah that really is unclear. Can you contact the researchers for clarification?
  4. X

    inflectra —recurrent cellulitis

    I wonder if doctor would switch and if insurance (Medicaid) would pay for one of these if the reason is infections.
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    inflectra —recurrent cellulitis

    28 yo w Crohns (sm. intestine) well-controlled with inflectra (was on Remicade since 2014). Had a cellulitis in mid June requiring 2 night hospital stay for iv antibiotics. Cellulitis went away completely but now is back. I’m mom and thinking he shouldn’t stay on inflectra w recurrent...
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    Heard from Doc today

    Hoping it all goes smoothly!
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    Heard from Doc today

    “An isolated serum cortisol is often insufficient to exclude adrenal insufficiency”. From this .article. A cortisol level on the lower end of normal would be abnormal low if the person was stressed/significantly ill when the sample was taken. I think it would be worth finding out the actual...
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    Immunosupression and Covid Vaccine Response

    Sharing this https://www.medpagetoday.com/infectiousdisease/covid19/91775 About this study https://jamanetwork.com/journals/jama/fullarticle/2777685 and an ongoing study vaccineresponse.org You need to register (free) to see the video or read the interview transcript with researcher Dorry...
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    School or college reopening Fall 2020 immunosupressed

    I am sorry to hear about you son and wish him all the best. My reading of the NIH guidelines for COVID treatment (updated 8/27/20) is that doctors should only use steroids for COVID-19 in people who need supplemental oxygen or are on ventilators.
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    Donating Plasma for Covid

    The CDC says: "We do not know yet if having antibodies to the virus that causes COVID-19 can protect someone from getting infected again or, if they do, how long this protection might last." https://www.cdc.gov/coronavirus/2019-ncov/testing/serology-overview.html The false positive rate of the...
  11. X

    Donating Plasma for Covid

    My understanding is that there is a significant false positive rate, meaning that some people are positive when the person does not really have antibodies.
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    Donating Plasma for Covid

    I found this https://www.plasmavie.ca/donner/medicaments/medicaments-g-h-i.en.html which says if you are taking humira regularly, you can't donate plasma.
  13. X

    Heard from Doc today

    Exactly my thought re:increased frequently coincidental with decreasing entocort. Bleeding wouldn't be caused by bile acid diarrhea, would it, so is the GI thinking there's ongoing inflammation and also bile acid diarrhea?
  14. X

    Home Remicade infusions- pros/cons/ your experience?

    Thank you very much for the + vibes and this info! I was on the phone w the nurse, the companies, and insurance all afternoon. 39 minutes into a call w insurance, the call disconnected and they did not call me back. I am at square 1. I’m ready for a strong drink and I rarely ever drink...
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    Home Remicade infusions- pros/cons/ your experience?

    My son has used Nufactor for 2 years and they have been excellent. Truly amazing service. Now insurance changed and choices are cvs coram, option care and Accredo. Option care can’t promise they can find nurses in our area; they don’t contract w nurses — just have employees. Any thoughts on...
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    CT scan - some thickening of proximal duodenum?

    Thank you for posting a diagnosis. I am so sorry that it took such a long time to get an answer. I remember reading your posts and seeing how awful she felt and how hard it was, at times, for her to get doctors to take her symptoms seriously. It would be good if those prior doctors could know...
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    Heard from Doc today

    I've been rooting for O and I'm sorry to hear that she's having more Crohn's symptoms and now elevated blood sugars and just when she seemed to be really improving! I'm heartened that she seems to have a GI who appreciates how severe her illness is and is really working to find and get her...
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    Heard from Doc today

    What a hard situation! When we see someone choosing a path that we think is wrong or dangerous, we usually try to convince the person to change. However, the more we work to convince them, the more they may give reasons to support their position. I am guessing that she has some concerns about...
  19. X

    Biopsies for colonoscopy?

    His Crohn's has been in terminal ileum and probably jejunum by MRE. The doctor said his intestine looked great and he biopsied the colon as a screen for dysplasia. He didn't biopsy the terminal ileum.
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    Biopsies for colonoscopy?

    My son has his colonoscopy scheduled for this morning. Should the doctor do biopsies even if his intestine "looks good?" He has Crohn's and is on Remicade. Thank you!
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