• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. thike1966

    Doctors screwed me over

    Hello, I'm a Foodie too. I cook when I feel good enough, making delectables for my dad and friend that live with and for my great neighbors that support and care about us. In the hospital, I food programs, planning a party to celebrate intestinal fortitude, which I have yet to achieve. But I...
  2. thike1966

    Doctors screwed me over

    Johnny, Thank you. I finally got a great GI doctor who is part of the team my support doctor is on. I know now, I should have stood up to the fool doctor and walk out, since my life nearly ended due to his complacency and ignorance. Yes, my dog is awesome. When she was only 4 months old, my mom...
  3. thike1966

    Doctors screwed me over

    6 Rounds of C-Diff, begging for an FTM, fecal transplant, 85% effective. One doctor was ready to refer me to get one. Then he left. His replacement telling me, "Not right now" or, "Your are not healthy enough," or "There is a rouge bacteria loose." All of it bunk and just putting me off, since...
  4. thike1966

    Diagnosed at age 50 & over Support Group

    Sense of humor, yes so important. I'm 53, diagnosed October 2017, and life is no BC, before Crohn's and AF, after Crohn's. Lost my brother suddenly last March and his final lesson to me out of many he taught me all out lives, is to take care of myself, so I can take care fo others. He helped so...
  5. thike1966

    Am I Crazy?

    First of all, thank you, I am an adult and ultimately I have to make my own choices, and blind faith in anything is dangerous. 3 out of 5 of my docs want me passively at home, waiting for Entivio. But now that I'm in Washington State and using an aloe product that has the healing elements and...
  6. thike1966

    Am I Crazy?

    It’s been a rough week few weeks. On June 7th I was sitting with my friend watching something great on TV and my hands started itch, shortly after I finished a Red Popsicle. It was the compromise for sweet cravings exacerbated greatly by steroids, both Prednisone and Budesonide that I use to...
  7. thike1966

    New Supplement Works

    Hello, I recently started using Aloe Select and Xtra from a company called Univera. I'm feeling better, my stools are now fully solid for the first time in a very long time. My afternoon crashes where I was getting weak and dizzy and would sleep for two hours are nearly gone. I don't need to...
  8. thike1966

    C-Diff hospitalized

    I got antibiotics after getting two teeth pulled and it woke UP the C--Diff cells we all have to aggresiv propagate and take over inflaming my intestines. Went to ER on Sunjday with sever diarrhea that grew to green and got darker and darker until black. After the test came back, everybody...
  9. thike1966

    Crashing hard again

    Just when I thought I was on the road to remission, I've crashed for the 5th time. Since all was well I tappered off Prednisone, 60 mg, 40 mg, 20 mg, 10 mg and my last dose last Sunday. The last three days I've gotten progressively worse. Now I'm running fevers and loosey goosey, as mom used to...
  10. thike1966

    Withdrawal

    I was on 60 mg, then 40, then 20. I went to 0 and I was miserable. The doctor in my support group said that was too drastic of a drop-off. I called my GI office and they said to cut the 20 mg pills in half, which stabilized me. Yesterday I went cold turkey again and it's still a shock to my...
  11. thike1966

    Humira Working

    Good News, It's working, in my 5th week, Humira and Imuran have solidified and somewhat regulated my caboose' s output. I'm still feeling exhausted due to 3 nightly bathroom visits, down from 4 and daytime down to 3 or 4 down from 5 to 8. I am cautiously optimistic, since the last three times...
  12. thike1966

    Savings Card, as low as $5

    Abbvie sent me a booklet with 27 thick pages with info on how to use their drug Humira and why. It also included a savings card to pay as little as $5 with a phone number for activation and connecting with a Nurse Ambassador to answer any concerns about Humira and how to get the most savings...
  13. thike1966

    Feeling Sorry For Myself

    First of all, Crohn's is such a cruel and individual disease that we all grieve the loss of our previous selves in our own way. Today, I realized that my way is not as simple as I thought. I attended a Vigil (Memorial Mass) for my my Uncle Bob. The common thread from everyone was that with a...
  14. thike1966

    Almost Lost My Mind

    Today, the straw on the camel's back broke and I almost lost all control of myself at the grocery store. My vision has been blurring and I went to an ophthalmologist today at the advice of my GI. The blurred vision is caused by the Prednisone and my cornea is bending due to swelling. The good...
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