• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Idiom

    Vedolizumab or Azathioprine, what should I try next?

    I've failed Infliximab and Ustekinumab, my doctor said the next drug to try is Vedolizumab. I asked whether it was worth taking Ved with Azathioprine as in the past I have responded to the immunosuppressant but it became less and less effective. He has given me the option of first trying...
  2. Idiom

    Diagnosed with Crohn's but could it be MC?

    I was diagnosed with Crohn's when I was 11. I'm 25 now and have been unwell for the past 2 years. I've failed Azathioprine, Infliximab and Ustekinumab. Only the dreaded Prednisolone gives me relief. When I was first diagnosed with CD aged 11 I had bloody diarrhoea. But these days I never...
  3. Idiom

    Can reintroducing carbs cause stomach upset?

    I have been on a low-carb (SCD) diet for 3 months. It didn't give me much relief, but I did feel an improvement after a recent shot of Stelara/Ustekinumab. As my weight was low I decided to stop the diet 5 days ago. For the past few days I've had really foul gas, gut pain and diarrhoea. The...
  4. Idiom

    Continue on Stelara or switch to Entyvio?

    After failing Remicade, I've been on Stelara for 3 month with no improvement. My doctor has mentioned switching to Entyvio (Vedolizumab). Is 3 months enough time to give Stelara a fair chance of working? Entyvio is said to be a 'last resort' when other biologics have failed – is this true and...
  5. Idiom

    Can an elemental diet really lead to remission and stop diarrhea?

    I am starting an elemental diet, some sources I read say this can lead to remission whilst others deny it. Does anyone have any evidence or personal experience they can share to confirm either? crohns.org.uk claims elemental diets are extremely successful. The other question I had was...
  6. Idiom

    Does the waiting drive you crazy?

    Maybe I'm just the impatient type :dance: I've come to realisation that one of the biggest stresses of having Crohn's comes from the constant waiting. Currently I'm waiting to see if Stelara (Ustekinumab) will kick in and improve my health. Before that I was waiting months to see if I could...
  7. Idiom

    Is it hard to diagnose a fissure or hemorroid?

    For years I've had spots of blood on the paper after BMs. This gives me regular pain in my rear. The problem first started when I used to drink alcohol. My doctor had given me steroid creams, Nitro cream and even a Botox injection. Nothing has worked. The problem is under examination they...
  8. Idiom

    How do Americans pay for their Crohn's healthcare?

    I heard Trump lost a vote to reform healthcare. It sounds complicated, so how do you Americans pay for your Crohn's treatment and are you satisfied with what you get? I understand there is health insurance, but I don't see why an insurance company would cover someone with a chronic illness...
  9. Idiom

    How common is feeling very full?

    I feel very full soon after just a snack. My colonoscopies have been fairly good with low inflammation and no scarring. I also haven't had surgery. I'm going to try and bring it up again with my doctor. Has anyone else experienced this? I wondered if it could be a stomach issue.
  10. Idiom

    Stelara trial – any advice?

    Stelara trial – any advice? I've taken infliximab for a few years but in the past 12 months I've been getting flare ups. It's got to the stage where I find it hard to leave the house. Stool tests show some continuous inflammation but nothing severe like bleeding. Steroids and dietary changes...
  11. Idiom

    Anyone had low inflammation but still have symptoms?

    Despite tests showing I currently have low inflammation and my Crohn's should be stable, I get phases of diarrhoea and cramping lasting for weeks. Leaving me unable to leave the house. This has left my doctors scratching their heads and me trying all manner of (typically more IBS) treatments...
  12. Idiom

    Have people experienced IBD and IBS?

    I've had Crohn's for over 10 years. In the last 4 years I've been having a lot of episodes of chronic diarrhoea, fatigue and abdominal pain. These can last 3 or 4 weeks. I always believed this this was due to my CD getting worse. Yet blood test results and a recent colonoscopy suggest there is...
  13. Idiom

    Medication for stress

    Like many I notice my symptoms can worsen due to stress — I try to balance my stress levels with a busy job. Recently I went for a new job interview and had some major diarrhoea just before the interview was meant to start! I don't like to take imodium/loperamide that often as it gives me some...
  14. Idiom

    Has remicade helped with seton drainage?

    Hi, following it being laid open my perianal fistula came back with vengeance! And began leaking pus :hallo3: 2 months ago I had a draining seton and started remicade. I'm hoping this will stop the pus so i can have the damn seton out! I know remicade can work wonders in healing fistulas, but...
  15. Idiom

    Do I sound like someone who should take remicade?

    Hi, firstly i should say that i realise there's no simple answer to my question but would appreciate people sharing their own experiences/advice. I am 21 and have had crohn's for around 10 years. 5 years ago I began taking Azathioprine which worked wonders. However in the past 2 years I've had...