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  1. gotumtum

    close call

    Hi Everyone. Im back again. I have had what I hope is a close call, and just want to check in and get some ideas on what I should do next. Up tilI now I have been managing constipation with molaxole sachets on average 2 a day. I have just had a major issue - I assume a partial obstruction- air...
  2. gotumtum

    Eye Problems / Iritis

    Have you considered migraine?
  3. gotumtum

    A bit of a journey and back again

    So results are back from the CT. Digestive system appears fine. The CT report does not mention my skeletal system at all. The Chiro looked at the CT and let me know that my pelvis is twisted, the symphasis pubis is misaligned as she diagnosed before, I have bone spurs on my pelvis near the...
  4. gotumtum

    A bit of a journey and back again

    Well, an interesting development. I was desperate for some relief with the pelvis pain and thought the chiropractor might be worth a try (although I was sure it was completely digestive). I also saw something on here about Ankylosing Spondylitis and wanted to ask the chiro about it. I managed...
  5. gotumtum

    A bit of a journey and back again

    Have heard back from the specialist. We are looking into doing another ercp and sphincterotomy on the liver side, however we are approaching with caution because of the risks. I requested/suggested a scan to check that there are no other factors aggravating the sphincter of oddi and given my...
  6. gotumtum

    Need advice please.

    Perhaps you could ask the dr for the name of the condition next time you go. Sharing the name of a the condition might help jog peoples memories. Also - have you seen a dermatologist?
  7. gotumtum

    Need advice please.

    There is a group of virus' that can cause blisters on hands and feet - and sometimes mouth - but people usually get them in childhood. - You can get it more than once because there are more than one virus that causes it - Hand Foot and Mouth - totally different to the foot and mouth that cows...
  8. gotumtum

    A bit of a journey and back again

    So- Things were going really well post colonoscopy. I was managing the constipation with 2x molaxole sachets, magnesium and b1, hi fibre gluten free cerial, walking for an hour plus pilates every day. I was exercising, gaining muscle. Things were looking good. Then wham. An (assumed)...
  9. gotumtum

    Info request on Thiamine testing and deficiency ( B1)

    Hi everyone Does anyone have any experience with b1 Deficiency? Or have any links to more modern information. My specialists are not very helpful/knowledgeable on this. I would value any information on the symptoms you had/have because of it, if it is an ongoing issue for you, - if you know...
  10. gotumtum

    Double colonoscopy prep? Shout out to those prepping in the next few days...

    Thankyou for your replies Cross-stitch gal and crohnsinct. Mum has just come out of recovery from her surgery and is awake and talking so that is a big weight off my mind. I have spent the day vacuuming and cooking, keeping busy to take my mind off Mums surgery - using up random veg from the...
  11. gotumtum

    Double colonoscopy prep? Shout out to those prepping in the next few days...

    So - I survived the prep and have just got back home from travelling for it. because of travelling and prep time and not being able to drive after the procedure ( not that I'd want to) and then travelling home again it was a five day...adventure. And the scope went fine - the specialist popped...
  12. gotumtum

    Double colonoscopy prep? Shout out to those prepping in the next few days...

    Thanks for the reply. Have started the prep. I had the first dose at 7am and ended up going back to bed and sleeping till 10.30 . Things didn't happen till 11, so at least I kind of got a sleep in. I am really greatful that this scope is happening. Thanks for reminding me:) I know that there...
  13. gotumtum

    Double colonoscopy prep? Shout out to those prepping in the next few days...

    Hi all Just wondering if anyone else has had to do a double prep ?( 4x pico salax over 2 days). I am up to 3x molaxole (macrogol) sachets a day now. Really not looking forward to it. I am really thankful I have managed to buy a large pack of toilet paper so think I am prepared... Thinking of...
  14. gotumtum

    🤦‍♀️ Calling all moms with daughters. 🙄It's finally happened.

    My apologies for barging in on a thread for a young one - Unfortunately I have personal experience in this department and hope it is useful. An anti spasmodic can be useful in reducing cramps eg buscopan if nsaids not an option Also a hot waterbottle - but only useful at home really. Evening...
  15. gotumtum

    A bit of a journey and back again

    Update: Had the appt with the Gastroenterologist and it went well. ended up going in to see him as my husband had appt on same day in same town. He wanted to review the sphincter of oddi situation first before looking at the constipation situation - as I have not seen him in a while- He laid...
  16. gotumtum

    How do you deal with Fatigue?

    There are a few of us Kiwis here (New Zealanders) :)
  17. gotumtum

    A bit of a journey and back again

    Thanks for the hug:)
  18. gotumtum

    A bit of a journey and back again

    Hi All Some of you may remember me from a few years ago. I have had an interesting journey over the last few years. I have collected diagnosis' along the way including Gallbladder issues (had it removed) Pancreatitis ( about 6x) which was eventually determined to be caused by Sphincter of oddi...
  19. gotumtum

    Limited options for Vitamin C - any suggestions?

    Capsicum/pepper, broccoli, zucchini, cauliflower, green peas, green tomatoes, radishes, kiwifruit, and pumpkin could be other options. Potatoes too. Can you get tinned strawberries where you are - or frozen? - good in smoothies. . It also might be worth checking whether raw vs cooked make a...
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