• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. FruitLoop

    Anyone use Salts confidence natural?

    Hi - I was switched to these bags in December as my output is always watery and high output and no other bags worked. They were quite new. They are fantastic bags - I use the convex and no leaks, comfy, skin friendly as they have aloe. BUT the last 3 boxes I have had problems with the seams...
  2. FruitLoop

    Ileostomy bag choices

    Hi guys - well regarding my lower post I have made my decision and am having an end ileostomy in 3 weeks. I have had 2 loop ileostomies before which were emergencys so were badly sited and needed convex bags and over their lifetime needed all sorts of bags, extenders, paste etc. Now this one...
  3. FruitLoop

    Ileostomy choice - need help

    Hi all - I need some advice on an ileostomy. Quick history: 2009 I had a resection which split leading to peritonitis and an emergency ileostomy. I then developed 2 fistulas. 2010 - stoma reversed and fistulas removed. Became anaemic and then got a capsule camera stuck between 2 strictures...
  4. FruitLoop

    Stoma needs reversing urgently!

    I had an emergency stoma in October after a resection split. I am losing 3 litres a day and am now on weekly magnesium infusions. Have tried everything to slow it down but nothing works, Imodium in every form possible in every dose possible, etc My gastro has told me to lay off the Imodium...
  5. FruitLoop

    V high output - soooooo thirsty

    Sorry to be posting again with yet another problem. My output has been very watery since Kermit was created about a month ago - the last temp ileostomy I had in 2009 was always a high output critter. When I drink it comes straight out of the stoma and I am only passing urine once or twice a...
  6. FruitLoop

    Skin is so sore and blistered

    I changed my bag today and the skin surrounding the stoma is all red, blistered and itchy. I changed it Friday due to a leak and it was fine - no leak since then. I've been using my current bags with paste for 2 weeks and they had really helped my skin which was very sore from previous bags...
  7. FruitLoop

    Hi - resection went pear shaped!

    Hi - I was due to have an ileostomy in July but I broke my leg 3 days before surgery so spent the summer bed bound with a foot to thigh cast and the Crohns settled down but then it started to kick off again so surgeon booked me in for 10 th October. He said as I'd waited longer since coming off...
  8. FruitLoop

    Broken Leg "cured" the Crohn's!

    3 weeks ago i was due to have a re-section, stricture removal and ileostomy due to really tight stricture, chronic pain, bloating that was so bad i was literally crying every day. I spent every evening with a hot water bottle clutched to my stomach. Anyway 3 days prior to surgery i broke my...
  9. FruitLoop

    You could not make it up!

    Ok so im due for surgery on Wed 11th July for stricture removal, stopping of bleed and an ileostomy. So the Saturday before i trot off into town and buy new nighties and knickers, toiletries etc - you know the whole going into hossie stuff. Childcare is sorted for the first week and we are...
  10. FruitLoop

    Shopping List!!??

    Hi - i had a stoma in 2009 for 12 months and tbh i cannot remember what "things" i had!! Get my new stoma next Wed. It was an emrgency so wasnt very well placed and also i had a fecal draining fistula right next to it so getting the bags to stick was a nightmare. The only bag i could use was a...
  11. FruitLoop

    Im soon to be joining you - in shock still!

    Brief history - i had an emergency ileostomy in 2009 which was reversed in nov 2010. Since that reversal i have been very anaemic requiring blood transfusions and iron infusions. Saw the surgeon yesterday who says its a stricture causing all my problems and it has to go (i also hve a capsule...
  12. FruitLoop

    Waiting .......but dont know what for!

    Hi - I will try and sum up as quickly as possible. I have had Crohns' since 2001 and its usually documented as "stricturing Crohn's disease." i had a re-section in 2005 which worked wonders. I then developed another stricture and had a re-section in 2009 which sadly went terribly wrong, it...
  13. FruitLoop

    Pill Cam / Capsule Endoscopy is stuck!

    Hi - I had a pill cam in January which failed to pass and retained in the small bowel. I then had x-rays every couple of weeks along with loading dose if Infliximab and IV steroids in the hope that the drugs would reduce the inflammation and alow the pilcam to pass ? It moved about a little...
  14. FruitLoop

    What medication ?

    Hi - i am currently on 20mg of Pred - was on 30mg in June and have been yo-yo ing down to 20 and back up to 30 since. First question - do i just block the puffy weight gain from my mind and stick with 30mg until ive been stable for a while ? if so how long ? Next question! I cannot tolerate...
  15. FruitLoop

    Malabsorption / Short Bowel

    Hi - after months of trying to convince my GI that i am not absorbing and having 5 pints of blood and 7 iron transfusions due to chronic anaemia they have finally agreed that im not bleeding anywhere and that its down to malabsorption. I know there is no cure for this but just wondering if...
  16. FruitLoop

    Help needed - long and waffly!

    Hi - i am hoping to get some help here as i really am at the end of my tether! Ok i'll try and do a re-cap as briefly as possible ? 2002 - Dx with Crohns 2005 - Re-section 2009 - Re-section which split causing peritonitis so further surgery with ileostomy, fistulas formed afterwards. 2010...
  17. FruitLoop

    Hello - I am back !

    I have been absent for a long time as i have moved house and the whole stress of it all got too much for me so i was not posting. Then there was no internet for ages ! Anyway i am back - thought i would do i kind of "hello" post before jumping straight into a major vent / moan / sympathy plea...
  18. FruitLoop

    Back from holiday

    Hi guys - well I am back from 2 weeks in Bulgaria and everything went fine !! I did pick up a 24 hour D+V bug which wiped me out but other than that i was fine. The weird thing was that in the 2 weeks i only had 2 days of the chronic right side stricture pain that i have been getting 24/7 at...
  19. FruitLoop

    Anyone had a nasal gastric tube ?

    Does it hurt ? Any other tips or info ? I am having one put in on Wednesday. Thanks Clare
  20. FruitLoop

    Off on holiday on Monday !!

    I am off to Bulgaria for 2 weeks on Monday:) I am really worried about taking the Crohn's away as I have always managed to holiday whilst leaving it at home:lol: I asked the consultant who was really flippant about it all with conversation going like this: Me: Can i go on holiday to...
Top