• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. Scipio

    Does esophageal stricture correlate to intestinal stricture?

    Esophageal and intestinal strictures may or may not be related. Strictures in the esophagus can be caused both by the Crohn's and/or acid reflux/heartburn, But intestinal strictures are usually linked to IBD. I have strictures in both places, but in my case the esophageal stricture predates...
  2. Scipio

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    It's pretty clear that big pharma is obsessed with big profits - to the point that it's fair to call them excessively greedy. But I think people are often too quick to assign to them an unwarranted level of evil and bad intentions. If the Qu vaccine or any other new product works great they...
  3. Scipio

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    "That's why I'm so excited about the work of Qu Biologics - they are going to come along and eat big phara's lunch which something cheaper, safer and more effective that may only require one course of treatment." If Qu Biologics manages to eat big pharma's lunch with a miracle cure they will...
  4. Scipio

    Anyone take Budesonide instead of Prednisone

    They don't want anyone to stay on corticosteroids long term due to side effects - Cushing's Syndrome, adrenal insufficiency, osteoporosis, increased risk of Type 2 diabetes, etc. Even though budesonide's side effects are generally not as severe as prednisone, if you stay on it long enough you...
  5. Scipio

    Remicade anti-TNF therapy has not yielded expected declines in hospitalisation and intestinal resection rates in inflammatory bowel diseases

    Other organs besides the intestine ARE affected by Crohn's, sometimes seriously so. It's the whole "extra-intestinal manifestations" thing. Usually it is the joints that are also affected. In my case it was pericarditis. Several years after diagnosis my Crohn's inflammation also popped up in...
  6. Scipio

    Why Don't GI Doctors Take The Role Of Diet Seriously?

    "I heard one You Tube channel owner, "Heal Your Gut Guy" state flat out that GI doctors get a percent of the cost of their patient's treatment when they are on biologics." That's flat out false. Any US doc or drug company that participated in a kick-back scheme like that would both be guilty...
  7. Scipio

    FECAL TRANSPLANTS: A Guide

    No one is saying that "all FMTs are going to kill people." FDA is saying that in light of these new findings that caution must be used and certain donor screening protocols need to be implemented. From the FDA warning: Because of these serious adverse reactions that occurred with...
  8. Scipio

    ANA Test Results

    ANA tests are commonly used to test for lupus. The test has a high sensitivity for lupus (i.e. nearly everyone with lupus will test positive for ANA) but a low specificity (i.e. many people who do not have lupus will also test positive for ANA). Plus these false positive tests are also more...
  9. Scipio

    FECAL TRANSPLANTS: A Guide

    FDA warns on FMT: Two immunocompromised adults who received investigational FMT developed invasive infections caused by extended-spectrum beta-lactamase (ESBL)-producing Escherichia coli (E.coli). One of the individuals died. FMT used in these two individuals were prepared from stool obtained...
  10. Scipio

    Iron Deficiency Anemia

    I don't have any certain answers for you other than to confirm that the iron deficiency anemia can arise or hang around in spite of no visible blood or bleeding. I had severe anemia when I was first diagnosed. My hemoglobin was down around 6 and my ferritin was way low too. A lot of blood had...
  11. Scipio

    Switching from Remicade to a Biosimilar Shows Mixed Results

    A study of switching from Remicade to a biosimilar shows mixed results: https://academic.oup.com/ecco-jcc/advance-article-abstract/doi/10.1093/ecco-jcc/jjz070/5446199 Excerpt: "Conclusions Switching from Remicade to CT-P13 might be associated with a higher risk of clinical relapse, although...
  12. Scipio

    Entyvio Tops Humira in a Head-to-Head Comparison Trial

    Entyvio was shown to be superior to Humira in inducing remission in an direct comparison trial in UC patients. This is the first head-to-head comparison of any of the biologics for IBD. All prior comparisons have been indirect - utilizing separate patient populations. I hope a lot more of...
  13. Scipio

    Sticky Paediatric IBD - Articles and Research

    The risk of pancreatitis is increased 6-fold in kids with IBD who are treated with azathioprine: https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(18)30401-2/fulltext
  14. Scipio

    Risk of Pancreatitis is Increased Pedatirc IBD Treated With Azathioprine

    Risk of pancreatitis is increased 6-fold in kids with IBD who are treated with azathioprine: https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(18)30401-2/fulltext
  15. Scipio

    Medicare Coverage for Stelara

    Has anyone found a Medicare Advantage or Part D plan that provides good coverage for Stelara? The drug so far is working well for me, so I would rather not switch. And I'm currently employed and on the Janssen CarePath coverage, which is great -- only a $5 co-pay per dose. But looking ahead...
  16. Scipio

    Adding Stawberries to Diet Found to Decrease Gut Inflammation

    Using a mouse model for IBD: http://www.newswise.com/articles/strawberries-could-help-reduce-harmful-inflammation-in-the-colon From the article: "The researchers found that dietary consumption of whole strawberries at a dose equivalent to as low as three-quarters of a cup of strawberries per...
  17. Scipio

    School Stress May Trigger IBD Flares in Teens

    Disease onset and flares were higher at the start and end of academic terms: https://journals.lww.com/jpgn/Abstract/publishahead/Academic_Stress_May_Contribute_to_the_Onset_of.96789.aspx
  18. Scipio

    Use of anti-TNF IBD Drugs May Also Help Prevent Parkinson's

    Use of anti-TNF drugs to treat IBD may have the unintended benefit of lowering the risk of developing Parkinson's disease. https://jamanetwork.com/journals/jamaneurology/article-abstract/2679038?redirect=true
  19. Scipio

    Side Effects from Allopurinal More Likely in Black, Asians, and Hawaiians Than in Whites

    Allopurinal, a drug often given in conjunction with azathioprine or 6MP to lessen their side effects, can on rare occasions itself produce significant side effects. This research shows that African Americans, Asians, and Native Hawaiians are 3 to 7 times more likely to suffer severe skin side...
Top