• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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    Stelara/Ustekinumab Positive Experiences?

    Hello! Many years I was on this forum white regularly seeking a diagnosis of IBD. It took some time but I eventually got that in 2014. Since then I have had many years of remission on Humira, but unfortunately it has stopped working and I’ve had a bowel resection since and am in a flare...
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    Top-down therapy advice

    Hello! When initially diagnosed I was told that the treatment method my GI was going to do was 'top-down' - since then I have been on Humira and recently increased to weekly. I'm now in remission and wondering when he is likely to either decrease the medication or choose something less harsh...
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    Humira working or not?

    Hello! I started Humira back in September and after the 2 loading doses, I felt great and for a couple of months after that continued. I managed to get off pred with minimal symptoms. In December symptoms started to return, mainly fatigue and loose BMs and losing blood now and then. It could...
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    Combination Therapy

    Hey! I just wanted to ask how many of you are on combination therapy using both biologic and immunomodulatory drugs together. My GI believes it's necessary in my case, but I'm unsure. He said it's due to the likelihood of antibodies building up against the Humira antibody, but there's so many...
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    'Surgery isn't an option for you'

    What does this mean? I have panenteric CD (gastric, duodenum, terminal ileum, colon including rectum, known fistulising perianal disease) according to the letter I received from my GI, so my assumption was that it's perhaps in too many areas of the bowel, therefore no single section of it can...
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    This is a first...

    A bit peeved... My cousin posted a status on facebook earlier saying the following: "Grandma, I don't think there's connection between Crohn's disease and being gay." - sentence I never expected to say in my life. Yes, this is my grandmother too. So putting two and two together, I'll say they...
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    Iron issues

    I was prescribed iron back in May for mild anemia associated with my IBD. Ever since I have noticed that when I do take them, my symptoms worsen which is think is due to the constipating effect iron has. I've also read somewhere that iron can cause bleeding in the GI tract. During my...
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    Finding a lifestyle balance

    Throughout my entire life, I've always been one to overindulge, pick up bad habits (and addictions) and fail at moderation. Currently my vices in life are mainly drinking and eating unhealthily. I did smoke, but thankfully managed to kick that habit almost a year ago. Now I have a diagnosis, I...
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    Rectal disease options and cleanliness

    Not sure if this topic has ever come up :shifty:. If your back passage and the surrounding area is affected by your condition in some way or another whether that be hemorrhoids, skin tags, fissures etc. would your GI consider having that repaired through surgery or would they just recommend its...
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    Hello! Yet to be diagnosed newbie...

    Hey! So on Monday I finally go for my blood tests to see what's going on in my gut! Not sure if it's IBD just yet, but from my symptoms I and even my doctor think it's looking that way. My main symptoms include; the wonderful diarrhea, stomach cramps, bleeding during a BM, bloating and gas -...
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