• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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    Pancreatic Lesion

    Hi All, Over the past few years I have been monitoring a pancreatic lesion. They say its either a cyst or a branch duct Intrapapillary Mucinous Neoplascm (IPMN). When I spoke with my GI doc he said there may be some low grade pancreatitis causing this. Anyone have any experience with this? My...
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    Anyone have any experience with Modulen? I am going through a mild flare right now and thinking of trying this out. How is it used? Is it better than just a protein shake like ensure?
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    COVID 19

    Anyone worried about the coronavirus and being on stelara?
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    I have recently had symptoms of what I thought was Crohn's (gas, bloating, cramping, soft bowel movements). MRI shows no active inflammation. Tapering on Uceris. My doctor says I should try xifaxan. Anyone have experience with this drug?
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    Stelara Cancer Risk

    I've been on stelara for over 2 years. Does anyone know if Stelara has an increased cancer risk compared to other biologics. And if so, is it worth switching to an anti tnf. Stelara is the only drug I tried.
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    MRI Enterography

    I am scheduled to undergo an MRI with gadolinium for a recent crohn's flare. I am having some reservations since I already had 2 MRI scans before. Should I ask my GI to schedule me just with oral contrast? I've just been reading various reports of long term toxicity with repeated MRIs. Any...
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    Repeat Loading Dose of Stelara

    Hi Everyone, Just want to say I appreciate this site as an amazing resource! I have been on stelara for 2.5 years, and it has worked amazing. Over the last 2 months I have had a flare. Few months prior to the flare I was on augmentin for a sinus infection. Previously I responded very well to...
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    Antibiotics and Crohn's Flare

    It seems I am in the middle of a crohn's flare. I believe I started having symptoms a few weeks after using augmentin for a sinus infection. Is this just a coincidence or is that typically seen a few weeks after?
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    Crohn's Flare with Normal Inflammatory Markers?

    Hi All, I have ileocecal Crohn's disease. REcently I have had what seems like a flare with increased urgency and mucous stools. However, my blood tests and calprotectin are normal, no signs of inflammation. What do you think of this? CAn the inflammatory markers be normal if it is just rectal...
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    KBMO Diagnostic Test- Food Sensitivities

    Has Anyone heard of the KBMO FIT test, which tests over 100 different types of food sensitivities? Do you think it's worth doing the blood test?
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    I have been in remission for about 2 years on Stelara. However, I think it has recently stopped working. Previously I was on q4 week regimen, and after increasing to every 6-7 weeks I have had new symptoms. More frequent and liquid BMs, and sense of urgency. Now it's about 3-4 BMs per day. No...
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    Entocort Losing Effectiveness

    Hi All, I have been in remission on STelara for 2 years. However, I think recently I have had a flare of symptoms (urgency, frequent BMs, more liquid etc). Previously, entocort worked like magic, with almost immediate effectivness. However, now I noticed that budesonide is no longer as...
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    Where to start?

    Hi Ya'll, I am diagnosed with crohn's for about 1.5 years (terminal ileum), likely had it for many years prior. I am thinking of starting a diet. Debating SCD vs. Paleo. Where do I start? I stumbled upon this website, wondering if anyone has any thoughts on this resource...
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    Stelara and Neuropathy

    Hi All, I have been on Stelara for the past year and it has controlled my symptoms. I have noticed recently some numbness on my right toe. Does stelara cause peripheral neuropathy? I have been on a very low dose of sulfasalazine (250mg daily), but doubt that is the culprit. Looking forward to...
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    Antibiotics and Crohn's

    I have a tooth abscess, and my doctor recommended that I take cipro. He also said that I can wait a little bit and do other remedies (mouth washes etc). Is there a high risk for taking cipro?
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    Hi All, I was diagnosed with Crohn's one year ago. My symptoms have resolved, knee arthritis resolved, and inflammatory markers normalized. however, I recently got an MRI after colonoscopy and the MRI shows active inflammation. If the MRI shows active inflammation, and everything else is...
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    Humira + Methotrexate?

    I am currently on Stelara. However, my GI/rheum docs want to switch me to Humira because they think it helps better with the joints (synovitis). My GI symptoms are controlled on stelara. The GI doc wants to start me on Humira PLUS methotrexate to prevent antibody formation. However, it seems...
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    Not sure if Stelara is Working!

    I started Stelara 8 weeks ago. Short story is that I have bilateral knee swelling and mild/mod terminal ileum inflammation. Only started treating 4-5months ago. I continue to have knee swelling on Stelara. Got a right knee injection last week, which cleared up the swelling, and now the left knee...
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    Has anyone had any experience with antibiotics for crohn's. I keep reading that antibiotics might help control some of the bacterial overgrowth. However, my IBD doc hasn't mentioned antibiotics. I feel like it can be worth a try. The doc did state that taking antibiotics can sometimes even...
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    Sinus Infection

    I think I have a sinus infection. Been feeling congested, and lots of post nasal drip. Anyone have a sinus infection while on Stelara? If so, what should I be worried about?