• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. annawato

    Pilates anyone?

    Ok, here is the problem. Besides being 20 kilos overweight (44lbs), I look like I am 9 months pregnant with twins (and I have been there). I have a very large hernia above and to left of ileostomy and am unable to walk or cycle for exercise as I have 3 fractures in my foot that are not healing...
  2. annawato

    Anal fissures developing with ileostomy

    So I've had this ileostomy for 8 months now. My crohns has always been in the small intestine although I have had anal and throat abscesses before. Recently I have developed another anal abscess which self drained leaving a fissure or fistula which is continually draining pus or blood. Plus I...
  3. annawato

    Post Op Pain Relief Options?

    I am reposting this for Ang71 who had the following query. If anyone can help with thoughts and suggestions it would be appreciated "Been diagnosed with crohn's for 13 years. Going in wed 31st July for my 3rd bowel resection, had my last one 5 years ago! Can anyone tell me what is the best...
  4. annawato

    So I went to the doctor....

    As you all know I had a resection and ileostomy via laparotomy on Nov 23. A week after surgery the wound became infected and needed to be opened up in two places. The lower wound finally healed a couple of weeks ago while the top wound is being dressed every two days. Last Friday i developed...
  5. annawato

    Fissures on fingers

    Does anyone else get tiny fissures on their fingertips right next to the nail. They are quite deep, as if someone had stuck a needle down there and they are not caused by ingrown nails. As soon as one heals another appears on another finger. I was wondering if its an IBD thing or vitamin...
  6. annawato

    How to get longer wear from bag

    I keep reading about how people get 3 or more days before they have to change their appliance and was wondering how to achieve this. My output is very liquid so maybe its not possible. I use a Welland convex one piece because I like their emptying system - it has a little tab to help open the...
  7. annawato

    What to take to hospital

    i am far too tired to even attempt my list tonight - have had a lousy day pain wise and feeling sick wise but highlands rock made this suggestion whilst we discussed other things and i thought it would be very helpful for anyone who hasn't been to hospital before or who just cant think what they...
  8. annawato

    Peripheral neuropathy

    I've had numbness between my big and next toes on both feet for a couple of years now, also get 'burning' feet. Doctors think it could be from flagyl - great another med crossed off the list. Anyone else have this problem? What have your doctors said caused it, Can it be cured? Is it just part...
  9. annawato

    Muscle pain

    i get muscle pain, mainly in the legs but when its bad, all over. Was curious about others experiences with muscle pain. Where do you get it, what helps etc etc. Is it worse with flares. Could it be referred joint pain or connective tissue pain? Doctors just dont seem to know, just say it could...
  10. annawato

    Worst fears realised - again

    Well the good news is I have relearnt how to start a new thread! haha. Bad news, I had my appointment with the new crohn's specialist today about starting on new drug trials. Basically there are lots of new drugs in the pipeline but none of them will be suitable for me because I keep getting...
  11. annawato

    Back in Hospital - end of the line

    Well after spending 7 weeks here in Feb/march with intestinal abscesses and general inflammation and having high hopes of infliximab working I'm back again just 3 months later. Again, multiple abscesses and a major part of the small bowel badly inflammed and thickened. As usual tried to treat...
  12. annawato

    Home again

    Yippee, got the news today I can go home tomorrow, all going well. My MRI wasn't quite as good as hoped but things have improved slightly so just a matter now of being able to maintain myself nutritionally at home. Pain and Nausea I can deal with there so no point hanging around the hospital...
  13. annawato

    How long for remicade to work?

    You've probably all covered this question a zillion times but I'm too tired to search thru all the posts for an answer just now. How long did it take you to have a positive response to remicade/inflix? Were you completly better? Or just partially? Did it help with extra intestinal crohns...
  14. annawato

    Small intestine abscess

    I've tried searching the site for information about abcesses of the small intestine which seem to be a recurrent problem for me. From what I could find, there seems to be little hope of curing them medically without surgical intervention. I was wondering if any members who have had them could...
  15. annawato

    Anna

    Wow, where to start! I'm Anna from Australia and have been diagnosed with crohn's for 16 years though suspect i've had it far longer - I'll be 50 this year. I've tried every drug known to crohn's sufferers - either they didn't work or gave terrible side effects such as pancreatitis. Am just...
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