• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. E

    Have you ever been asked about your mental health by your GI?

    Within the last year, I discovered that I have Complex PTSD as a result of childhood emotional neglect. My parents were satisfactory in taking care of my physical needs, but I was never shown that how I felt emotionally was relevant, let alone important. I've learned more about the havoc that...
  2. E

    Sticky Stem Cells for Crohn's Disease and other IBD

    Harvesting bone marrow requires puncturing bone, so I'd imagine it can be quite painful. Harvesting stem cells from someone would require chemotherapy, though, so it's still quite involved.
  3. E

    Question about colonoscopy and taking iron

    I'm scheduled for a colonoscopy on Monday, the 25th, at noon. I forgot to stop taking iron until after I took some (650mg) this morning. I've been on 1300mg daily prior. The colonoscopy is pre-testing for a stem cell transplant so it isn't quite as concerned about evaluating things, but mainly...
  4. E

    My Stem Cell Transplant Blog

    Link to my blog: http://mypsct.blogspot.com/ I'm scheduled to be evaluated next week (3/7-3/9) for the transplant. I've tried and (eventually) failed Pentasa, Entocort, Sulfazine, Prednisone, Azathioprine, Remicade, Humira, Cimzia, LDN, some more of the milder 'maintenance' drugs I know I'm...
  5. E

    'Master Switch' for Key Immune Cells in Inflammatory Diseases Discovered

    http://www.sciencedaily.com/releases/2011/01/110116144132.htm This sounds promising for a lot of things!
  6. E

    How anemic do I have to be to get a blood transfusion?

    My doctor said my hemoglobin is 12, and I definitely feel the effects of it. It's going to get worse before it gets better. I'm taking iron pills, but I'm still having a considerable amount of bleeding. School starts next week so I was hoping to get a transfusion so I can actually walk around...
  7. E

    Started amitriptyline yesterday.

    I'm still feeling some drowsiness from the first dose (been about 13 hours)! For those of you who have been on it, did you have the lingering drowsiness after waking up and did it go away as your body got used to it? I'm doing 25mg for a week before bed, then up to 50mg before bed. My doctor...
  8. E

    Getting better on a lower Cimzia dose.

    I was on 400mg/mL every 2 weeks until about 2 weeks ago, but now I'm on 400mg/mL every 4 weeks. It's been almost a month since my last injections and I've been feeling a bit better. I was already convinced it wasn't actually helping me (became immune to Remicade and Humira, so why not this?!)...
  9. E

    Time for a new doctor.

    Apparently, my doctor changed my Cimzia dose. I only found out when I picked it up from the pharmacy. My pharmacy contacted his office because I was out of refills, and when I got it from the pharmacy the dose read 2 injections every 4 weeks when I've been on 2 injections every 2 weeks. I sent a...
  10. E

    I guess it's time for a new doctor.

    Edit: made this on the wrong board. stupid me.
  11. E

    Looking for alternatives.

    Trying to keep this brief for now. I was diagnosed with Crohn's when I was 10 (19 now), and since that time have been on the usual treatments at some point. Had a flare starting last fall, it got really bad just in time for the spring semester, then kind of had ups and downs through summer, and...
  12. E

    Running out of options.

    Trying to keep this brief for now. I was diagnosed with Crohn's when I was 10 (19 now), and since that time have been on the usual treatments at some point. Had a flare starting last fall, it got really bad just in time for the spring semester, then kind of had ups and downs through summer, and...
Top