• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. M

    When to go back to work?

    Advice please... I've been off work for 3 weeks, spent a week in hospital resulting is small scale surgery for a small fistula. That was a week ago. I want to go back to work!! Work are reluctant and think i should take longer off. I feel fine, great even, i'm driving and cooking and doing...
  2. M

    Emergency list for the colo-rectal surgeon tomorrow

    Been in hospital since friday for IV hydrocortisone... No improvements yet, in 5 days... Started back with the aza again, obv thats a long term fun time tho... Still bleeding massively, like, excessive... So tomorrow I'm on the colo rectal surgeons emergency list... No idea what will come of...
  3. M

    Predsol

    Anyone any experience with this?? I've been using predfoam and colifoam all year, can now keep them in long enough for them to work but they're not working AT ALL!! The consultant has added predsol, which is a waxy butt- tablet but this isn't helping either!! Am I being impatient?? Predsol only...
  4. M

    Prep day!

    And I'm at work... Thankfully don't have to take the dynamite til I get home but am hungry already! Its gonna be a loooooonng day!!
  5. M

    I'm my own worst enemy!!

    This really is just a vent... Sure people ask how I am but they only really want to hear I'm fine and certainly don't want any details!! So I have CD or UC... Jury is still out! We know most disease is in the decending colon so I've been getting by pretty well... I certainly don't get some of...
  6. M

    Advice RE: pred

    Hi guys... I've been away for a while I'm struggling at the moment, not really sure what to do!! I have a diagnosis of IBD, likely Crohns due to location, but the jury is out. I also have an intususception of the descending colon, I have a GI and a colorectal surgeon in different health trusts...
  7. M

    I've got a rash...

    Ok, it's a little wierd... I have a rash, the sun has been shining in the north east of England, crazy right... And now I have this rash, its like bumps under my skin, like when before spots come to the surface... I've tried picking a couple of them but theres nothing in them... The rash is only...
  8. M

    I've been canoeing :)

    I just wanted to share my little celebration:) I've had such an awful 18months and haven't been able to do the thing that I loved the most . . . it's 2 years to the day since I last went in my little kayak . . . I've been determined all week I was going to race today-its a memorial event for a...
  9. M

    Ferritin

    Got my bloods back today... All ok, white cells low but on aza so thats expected, my ferritin is 9... It says less than 12 shows no stores... A) is this causing my exhaustion? B) what now? Tablets? Shots? xxx
  10. M

    Grumpy now - Bleeding Somewhere, Help!

    Had my scope today (the 4th this year) . . . I refused to take steroids before this one, because they keep finding nothing much when they scope me, so I figured if they get to see me without meds, it should show the full extent. Heres the problem, the full extent is NOTHING . . . no inflam, no...
  11. M

    Anybody . . . ?

    Okies, I need some guidance/ideas of whats going on here . . . . I'm totally sick of how I feel at the moment, yet nobody seems to want to do anything with any urgency . . . I've had a diagnosis for 10 years, it started as indeterminate colitis, then UC, I've had diagnoses of Crohns, Crohns...
  12. M

    I hope tomorrow will be better . . .

    I really just need a little vent, nothing can be done to improve anything atm, it's just a matter of time. . . . I'm pred cold turkey-cue night sweats, hungry but sicky, insomnia. My symptoms are also returning due to being off the IV's, they're the only things that keep me under control. I'm...
  13. M

    Hospital observations...

    I was admitted to hospital after a clinic visit yesterday, my consultant has handed me over to another one who has come up with a treatment plan (victory dance)... I thought i'd just share the random and amusing things that happen inside these places... Please add your own experiences, keep me...
  14. M

    I need a new mantra . . . .

    I loved my mantra, it worked 'I will not let CD run my life . . . .' kinda feels futile now I'm in bed 5 minutes after getting home. Those of you who've been around a while will maybes remember the fun of a year ago, the roids not working, the docs/comedians failing me, we're back there. New...
  15. M

    Just a little update :)

    just a little update :) I didn't really know where to put this, but I figured it was about time for an update! History-Dx CD 10 years ago, v.little problem since then, the odd small dose of pred, but nothing major. I was ill in december 2010 and the GP put me on pred 30mg. The consultant...
  16. M

    Gah!

    Ok So today I went for second opinion, saw a doc privately, cost me an arm and a leg and he's saying the same as the NHS docs. This is sooooo frustrating because, once again, they say IBS. Now, I know my body and I know the bleeding isn't right, he did say I probs have a fissure or tear that...
  17. M

    My latest update

    my latest update saw the consultant today, well his Registrar actually . . . I think that was a good thing tho because I don't really know him so it was like starting afresh. I gave him the whole story and referenced my statements (cheers for the info on that on btw!!). He does seem to...
  18. M

    Research

    Ok . . . I have a referral for a 2nd opinion going through the system, in the meantime, my Gastro who's done v.little useful and refused to treat me has sent me a review appt. We are going on wednesday, me and mum. I intend to take with me enough research to be able to make a case for actually...
  19. M

    Answer but no treatment

    answer but no treatment Some of you know the history, heres a quick recap . . . . Dx Colitis 9 years ago, Dx changed to CD 5 years ago v.few flares, responded to pred every time, quickly ill since dec 2010, not responsive to oral pred so tried IV, better for a few days but didn't last Sx got...
  20. M

    I think i just need a vent

    i think i just need a vent Grr, so finally my consultant agrees i was right, this current state is crohns related. but now 3 weeks to wait for biopsies to find out what meds i can have (notNICE guidelines). Currently on nothing at all and suprisingly, not improving!! I'm supposed to be going...
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