• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. C

    14 Year old==Struggling to taper off Prednisone

    Glad that mtx helped your kid. I think that's what we will end up with. Thanks for your time MLP
  2. C

    14 Year old==Struggling to taper off Prednisone

    After our meeting with GI expert, he wants to add Methrotexate as a combo med with Remicade to remove steroid dependency. He asked us to continue with 30mg till Monday, do some blood work next week before starting her on Mtx. He is deciding between Imuran or Mtx. Has any worked better than the...
  3. C

    14 Year old==Struggling to taper off Prednisone

    Thanks my little penguin for the response == We started with 40mg on Oct 7. == November 2nd we tapered to 30mg (After around 3 weeks) == Since November 16th, we tried tapering to 25 mg. Both days (16th and 17th( we tried to go from 30mg to 25 mg, she had symptoms, so went back to 30 mg == She...
  4. C

    14 Year old==Struggling to taper off Prednisone

    Hi everyone My 14 year had a flare up Oct7th and was put on Prednisone. (Started with 40mg/day and now on 30mg/day). She also gets 500Mg Remicade every 4 weeks. When she tries 25mg/day, some of her symptoms keep coming back (Diarrhea/joint pain and pain goes from hardly anything to 4 or 5). As...
  5. C

    Flare after increased Remicade dosage ? Need advice . Thanks and appreciate

    Thanks @my little penguin and @crohnsinct . She was diagnosed in July. Hopefully we will see her get into remission soon. Thanks again for the support
  6. C

    Flare after increased Remicade dosage ? Need advice . Thanks and appreciate

    Thanks My Little Penguin. @crohnsinct , Thanks for your reply. Can you please let me know which pain program helped. Currently we are working with Children's Hospital in Colorado pain clinic. Their next step was to give her TPI (Trigger Point Injections). We said no to any injections. Please...
  7. C

    Flare after increased Remicade dosage ? Need advice . Thanks and appreciate

    Thanks for your response My Little Penguin and PDX Yes, they gave her Miralax and that is helping her. She has also been put on Prednisone. Levsin or Bentyl does not work for her unfortunately. We will try the Tens unit (It had not helped her during her first flare up), but we will try again...
  8. C

    Flare after increased Remicade dosage ? Need advice . Thanks and appreciate

    Hi All I have been reading pretty much every post on this website to gather as much information as possible. My 14 year daughter recently got diagnosed (late June) with severe small bowel Crohn's through MRE and Capsule (She also has Arthritis and couple of other auto immune conditions (Iron...
Top