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  1. spingirl

    Ileostomy - is stoma always active?

    Hi. So I keep reading so many different stories about Ileostomy and I just am trying to wrap my head around what life will be like without my rectum and colon. I never thought I would say this but I wish I could have regular colostomy vs. ileostomy. Is stoma really always active? So how the...
  2. spingirl

    Need help with research!!! Can you help me find more info online?

    So I have Crohns since 1985 and now strictures. I was advised to have surgery a couple of times. Last GI doctor said he thought I would be able to have resection. Surgeon disagreed. She said it is because I would need to hvae my rectum removed. She said there was a lot of narrowing. So I...
  3. spingirl

    Strictureplasty question

    I have a stricture in my large intestine...just about a foot in. Meeting with doctor on Tuesday but trying to remember why he said I couldn't just have strictureplasty.been trying to read up on it but all articles reference small intestines. My entire colon is diseased and told resection of...
  4. spingirl

    All or nothing

    I have seen my GI and he wants me to have surgery. I have strictures on 2 sides of my large intestine. One on the left is worse. He says that because I have rectal stenosis that is more of a chron's thing...even though I test negative. I feel pretty good now that I stopped taking Asacol HD -...
  5. spingirl

    Where do your bones/muscles ache/cramp?

    I have been on Imuran for about a month now and just recentlyl started getting achy all over...like I am about to come down a flu or something. I also have been experiencing a cramping feeling under my arm pits. I find that a strange place. First time it happened I thought I was having a heart...
  6. spingirl

    Family History/Prevention

    So, I have UC/Crohns...my father had his colon out from darvaticulitis (can't spell it)...I have a son who is 13 and I just want to know what I should be doing for him so he does his best to prevent this from happening to him. I know they don't have a cure and a cause but there must be...