• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. JessicaGrace24

    Inflamed ileum with fluid buildup

    What MLP means is that unlike ulcerative colitis, Crohn's inflammation affects multiple layers of the bowel wall. With Crohn's, just going by a colonoscopy result is not always helpful because a colonoscopy cannot get a picture of every layer of the bowel wall whereas a CT scan and MRI can...
  2. JessicaGrace24

    Inflamed ileum with fluid buildup

    So the fluid collection usually means infection (ie abscess) which is why I don't think it is necessarily new but probably has not healed and you needed more time on antibiotics. Probiotics would not be a good idea until the infection is gone in my opinion but not sure what your Dr told you...
  3. JessicaGrace24

    Inflamed ileum with fluid buildup

    So not sure what was explained to you at the hospital but Crohn's disease is an autoimmune disease that attacks the mucosal lining of your GI tract thus causing an inflammatory response which if left unchecked leads to complications like abscess and fistula. I am assuming from the results that...
  4. JessicaGrace24

    First surgery panic

    I had resection surgery in June 2020. Had a bit more removed than your son will have and had my valve and some if not most of my TI removed. Only had bathroom issues for a few weeks after surgery and since then, no real issues except for the occasional wierd movement just like anyone else...
  5. JessicaGrace24

    Food?

    I agree with the above. For me I exclude certain dairy products (not all but the high lactose ones for sure but lactose intolerance runs in my family so may have nothing to do with Crohn's) and gluten (which bothered me before Crohn's so not really Crohn's related- my intolerance has to do with...
  6. JessicaGrace24

    Anticipating my first resection surgery...

    I actually had an anaphylactic reaction to my first iron infusion (very scary!) so just continued with oral supplements but only three times a week since I am even slightly allergic to the oral supplements. I also made sure to increase the amount of red meat, hummus, eggs, spinach etc in my...
  7. JessicaGrace24

    Stricture Advice- Surgery or not?

    Just wanted to come on here and say that I just had my post-op f/u colonoscopy on Wednesday and everything looked great! I am almost 9 months post-op and no signs or scarring or narrowing at all at my anastomosis site so we will continue on with Stelara and doing fecal cal every 4 months and...
  8. JessicaGrace24

    Anticipating my first resection surgery...

    Just wanted to give an update! I had my post-op f/u colonoscopy on Wednesday and I am happy to say that I am in endoscopic remission! No signs of scarring or narrowing yet at my anastomosis site. Very, very happy. :)
  9. JessicaGrace24

    Calling Stelara Parents

    Yes, my TI and proximal ileum are where my disease has always been the worst and where my strictures developed and then the disease travels upward from there. Sounds very similar to your daughter!
  10. JessicaGrace24

    Calling Stelara Parents

    @Pilgrim It took the expected 6-8 months to fully kick in (I ended up in the hospital at around the 6 month mark and then my dose was adjusted to every 4 weeks with a re-loading IV dose and this is when we really saw improvement in my fecal cal numbers). I was on steroids for about 6 weeks...
  11. JessicaGrace24

    Calling Stelara Parents

    @Pilgrim I have been on Stelara for almost a year and a half and it has done wonders for me! I still ended up needing surgery because of stricturing from previous flares (I have had a few mild/moderate ones and one severe one before diagnosis and then two moderate ones due to failure of...
  12. JessicaGrace24

    Stricture Advice- Surgery or not?

    I had surgery and am doing very well. No symptoms and able to eat normally again (aside from gluten and lactose).
  13. JessicaGrace24

    Stricture Advice- Surgery or not?

    Hi All. Had surgery and doing really, really well. In remission and eating well.
  14. JessicaGrace24

    10 yr old being tested for IBD

    @sidoni83 I have had issues with too much movement on MRE and so they don't always get a good enough visual of my jejunum which is one of the areas my Crohn's has appeared. They also can't reach the jejunum via any scopes so your GI may very well ask for a capsule endoscopy especially since the...
  15. JessicaGrace24

    Anticipating my first resection surgery...

    Hi All! Just wanted to share that I just did my first fecal cal since surgery and it came back at 25! This is the first time ever since diagnosis that I've had a normal fecal cal and am beyond grateful to finally be in remission. I know that surgery isn't always successful for everyone but am...
  16. JessicaGrace24

    10 yr old being tested for Crohns

    I agree with MLP. MRE is good for detecting small bowel Crohns especially since there are parts of it that neither an endoscopy or colonoscopy can reach. Small bowel Crohns (duodenum, jejunum) is also less likely to cause a high fecal cal number do to being higher up in the digestive tract. I...
  17. JessicaGrace24

    Covid w/GI symptoms? Infection? Food Poisoning? Flare?

    I should also note the digestive upset symptoms seem to be different than the ones I get in a flare but who knows.
  18. JessicaGrace24

    Covid w/GI symptoms? Infection? Food Poisoning? Flare?

    Hi All! Just jumping on here for some advice. Right now I have had ongoing symptoms of headache that comes and goes, stuffy nose that comes, fatigue, aching muscles and digestive upset. This has been ongoing for at least two weeks. I am wondering whether I should get a COVID test since my...
  19. JessicaGrace24

    Scared of surgery

    Glad I could help! Let us know how everything goes.
  20. JessicaGrace24

    Diagnosed in later life

    I have severe small bowel Crohn's and it usually presents as discomfort and blockages when active so not everybody with severe Crohn's presents with extreme urgency or cramping which I think is something GI's need to keep in mind. I am on Stelara and it is working well. All the best with the...
Top