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  1. kotite4ever

    Stelara/Ustekinumab Positive Experiences?

    Ha, yeah, same. I'm no spring chicken anymore either :)
  2. kotite4ever

    Stelara/Ustekinumab Positive Experiences?

    Hi there! I've been on Stelara since March of this year (so it's been a little over 3 months at this point). I have to say, it's done a good job with my Crohn's symptoms. I had been on Entyvio for a year and a half prior to that (and Humira 9 years ago, but I had side effects). Entyvio didn't...
  3. kotite4ever

    Severe Crohn's bleed but no cause found

    Thank you so much. Side effects are scary, but the disease is scarier. Hope your son is doing well. It's a tough disease to deal with, and it sounds like he's been dealing with it since he was just a little guy :(
  4. kotite4ever

    Severe Crohn's bleed but no cause found

    But yes, bottom line, it's probably high time for me now to explore the biologic/TNF inhibitor route. I can't have a bleed like that again. Thanks so much for bumping this discussion and for your input/insights
  5. kotite4ever

    Severe Crohn's bleed but no cause found

    Not a bad idea at all to get more eyes on it, for sure. I've been on Pentasa as maintenance for probably 10 years or more at this point, so maybe my disease being relatively under control during that time is more coincidental than anything. My doctor has often spoken of other meds to treat...
  6. kotite4ever

    Severe Crohn's bleed but no cause found

    Also, no capsule endoscopy at this point although he mentioned he might do one soon
  7. kotite4ever

    Severe Crohn's bleed but no cause found

    Hey MLP! Not sure why they didn't do a colonoscopy, maybe because I'd had an all clear so recently? I don't know. I'm on Penatasa, 2.5 grams per day as maintenance, and I'm also now on 40 mg per day of Prednisone to get the inflammation rapidly under control. Thanks!
  8. kotite4ever

    Severe Crohn's bleed but no cause found

    Hi all - so last week, I woke up in the middle of the night and felt the urge to go to the bathroom. Okay, well, nothing new there. But it was just straight blood when I went. I've had some bleeding with BMs before (Crohn's Disease, diagnosed a little over 20 years ago in 1998/99). But this was...
  9. kotite4ever

    Humira and peripheral neuropathy

    Hi all - my GI doc prescribed Humira for my Crohn's of the terminal ileum back in October of 2013. That and prednisone helped get my flare under control, but I've discontinued Humira under advisement from my GI doc and neurologist because I've had a lot of peripheral neurological issues as a...
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