• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Hope345

    Mother who needs to vent

    need to vent: I am a mother of two chronically ill daughters who I am trying to help in every way possible. We have been coping and I havent been on here as much. quick update: daughter 16, has come off last dose of prednisone: symptoms are anemia, extreme fatigue, trying to regulate bowels...
  2. Hope345

    Gaps diet

    Starting Gaps diet I decided to start a thread about my 2 daughters starting the Gaps diet. see: www.gaps.me/ for more information. Daughter age 15, diagnosed with Ulcerative colitis Daughter age 20, IBS (or undiagnosed) I would like to keep a journal and update their progress...
  3. Hope345

    Relief from bloating and severe gas pains

    My daughter has been suffering from bloating off and on for a while. I know each person is different and many things can actually cause bloating from meds, probiotics, foods, allergies.. etc. I think her problem has been a form of constipation. She may use the bathroom a lot but she is not...
  4. Hope345

    Book: the anti-inflammation diet and Recipe bood by Jessica K. Black

    This book offers some good recipes and practical ideas that can be a good place to start. My daughter started this diet, along with adding some new herbs, vitamins and minerals to her daily routine. Very excited because all of her symptoms are gone, as of today. Trying not to get...
  5. Hope345

    Not sure

    As a mother of a teen trying to "deal" with all of this, I am not sure of anything right now. we are still in transition to using the mesalamine enemas, but she continues to have bathroom issues, so returns to her cortifoam... slowly improving. She shuts completely down when there is any...
  6. Hope345

    Low platelets

    Our daughters (age 15) last CBC came back with low platelets of 76. The GI had not even mentioned it at the office visit. We are going to have the blood drawn again but she is still flaring and not wanting to leave the house. has anyone had this happen before?
  7. Hope345

    Rash all over legs

    Our daughter has just been in one of the worst flares she has had and now she has a rash all over her legs. This has never happened before. The only new med is a gas relief med (with Simethicone) and that is it. I am guessing this is the IBD manifesting itself in a different way. She...
  8. Hope345

    How do you get to do the doctors when you are feeling so sick?

    My daughter is so weak and tired, in pain and we are all wondering how she will get to the doctors. When she needs to go, she has seconds to get to the bathroom... please help, i know you have all been there..
  9. Hope345

    Severe gas pain

    My daughter had another colonoscopy a month ago and still has major gas pains. She has so much discomfort... what will help? I know she is anemic, flare has continued, she says she is in so much pain she wont hardly do her cortifoam or even get started on her asacol enemas. We made a big...
  10. Hope345

    2nd daughter with unexplained symptoms

    I have a 15 year old daughter with Crohns disease or UC. Next month they are doing another colonoscopy to determine which one. My other daughter has been having GI symptoms as well, but not similar to daughter with Crohns. Several years ago she was having migraines. We have those under...
  11. Hope345

    Starting Anti M.A.P. treatment

    Our daughter "B" has been through many of the common treatments for Crohns. She just had her 13th treatment of Remicade today, but remains in a flare most of the time. We have had the privilege of talking and emailing a research doctor in Australia named Dr. Thomas Borody who came up with the...
  12. Hope345

    Flaring after 12 infusions of Remicade

    My soon to be 15 year old daughter started flaring 4 weeks after her 12th Remicade infusion. The doctor said it could be due to a virus. Is it common to flare when using Remicade? Her flare has lasted 2 weeks so far. Bleeding, cramping, mucous: the whole nine yards. added a cortifoam...
  13. Hope345

    Does anyone really know what causes a flare

    My daughter just started to bleed again after remission of 5 months and 12 infusions of Remicade. I just dont think anyone really knows what causes a flare, or that much about Crohns. I pray with all my heart that it gets under control quickly and she doesnt suffer again and have to...
  14. Hope345

    UC or Crohns? GI says our daughter may have UC instead of CRohns

    Our daughter recently had a blood test done that indicated she may have UC instead of Crohns. I found it a month later after we finally were sent the results. I had to call and ask them myself if her diagnosis had been changed. The test is based on genetics but not 100 percent accurate. I...
  15. Hope345

    Much needed Vacation

    :yoshijumpjoy:Our B is having a good couple of days and we are headed to the coast. Looking forward to some time with the family and seeing the ocean. Pray that B continues to feel well. signing off for spring break with the family. :ghug:Hugs to all my sisters and brothers on here and your...
  16. Hope345

    Stool cultures check for what?

    I have always assumed that routine stool cultures would find and identify certain types of bacteria, viruses, fungi, or parasites that are causing infections or diseases. However, looking back at my daughters previous stool cultures, it was only negative for a specific bacteria; this was what...
  17. Hope345

    Starting Kefir

    We are adding Kefir to our daughters diet, along with the Remicade, Asacol and possibly antibiotics. I just have a few questions I wanted to ask about Kefir. I know David has added it to his diet as well. I have done some research and will be ordering my Kefir on line from the Kefir lady. My...
  18. Hope345

    Before you critisize someone, walk a mile in their shoes

    We have all had people say things or pass judgement upon us during our lives with IBD. It can be very painful. I want this thread to be a place to share your stories and what helped you through those times. It is amazing how this forum has offered more support than our own families. One...
  19. Hope345

    Crohn's Colitis Support Group

    Welcome to the Crohns Colitis Support Group. This support group will help you connect with others that may have Crohns in the same location and many similar symptoms. Crohns Colitis can affect any part of the colon. Although each person with Crohns Colitis may have different symptoms...
  20. Hope345

    Fecal Calprotectin, Insurance companies

    The Fecal Calprotectin is currently not covered by most insurance companies. There is a study being done to show the need for the test in the management and care of an IBD patient. Hopefully once this study is completed next month, insurance companies will start paying for this test. It has...
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