• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Absentminded

    Crohn's Disease on TV

    For those of you in the UK, Sam Faires from TOWIE was on This Morning today speaking about her recent Crohn's diagnosis. Check it out on ITV player if you're interested. I was really concerned that they would trivialise the disease as so often happens, but in the end I was pleasantly surprised...
  2. Absentminded

    Returning to normal after surgery

    Hi everyone, I'm after some advice if that's possible? I had my surgery nearly three weeks ago and was wondering how long I should expect to wait before my bowel movements return to normal? I haven't had this experience before, I had a Stoma after my first surgery and was seriously ill after...
  3. Absentminded

    Fourth Anniversary!

    Today marks the fourth anniversary of my Crohn's diagnosis, and I marked it by getting my first tattoo! This past year has been the hardest of my life, with ten weeks on a liquid only diet, two major operations, three minor ones, serious post surgical complications, four unit blood...
  4. Absentminded

    Enterocutaneous Fistula

    I currently have an entrocutaneous fistula draining from my former surgical wound, a remnant of my Stoma reversal surgery that I had back in February. It has been healing really well since appearing in April and my surgeon is really happy with how things are going. I've only had a dressing over...
  5. Absentminded

    Eeek! Lots of watery output!

    I had my dinner at 6pm as usual yesterday evening, so that things would be quiet by the time I went to bed. 12am came round and Norman started spurting out loads of really watery output, he was really noisy too! I'm not in any pain, but do feel a bit gassy (I keep burping too.) Could this be...
  6. Absentminded

    Stoma covers and clothing for ostomates

    I've been getting a rash from my stoma bag (where it's been a bit hot against my skin,) so my stoma nurse ordered me some cotton bag covers. They're prescription ones, so plain white and massive! So, I decided to make myself a properly fitting, pretty one 😃 I would make more in different...
  7. Absentminded

    Mucocutaneous separation

    Well, they didn't find anything. All my bloods were spot on (CRP down to 2!) and nothing showed on the ultrasound scan. So it's just post op pain......it's still seriously painful, and looks grim. I'm seeing my surgeon tomorrow evening for a check up, so maybe he'll have some ideas. I've...
  8. Absentminded

    Mucocutaneous separation

    I changed the my baseplate for my bag earlier today and when I took it off I noticed that I've got a gap between my stoma and my skin on one side. It looks like the stitches have dissolved and a gap had opened up. It wasn't there the last time I changed everything four days ago. I'm going to...
  9. Absentminded

    Weeping skin = breakdown of baseplate

    Hi everyone, I had my surgery on the 21st Nov, resection and temporary ileostomy. I've had a nightmare with my stoma, which is finally being sorted out, but that's another story! What my question is, is that I had the rest of my staples out today (they took out every other one last...
  10. Absentminded

    Moldy food

    Bit of a random question but I thought I'd have the best chance of someone knowing the answer on here than anywhere else. Does anyone know if there is any danger from eating slightly moldy bread if you're on Humira? By this I don't mean that I eat moldy food all the time, just that I went to a...
  11. Absentminded

    Really proud!

    Just wanted to say that did my humira injection on my own for the first time today! It hasn't quite started working just yet, so I'm still feeling pretty grim. But I'm just proud of myself for getting on with it and not faffing around. Plus, it didn't hurt nearly as much as I remember from...
  12. Absentminded

    Cataracts

    Hi everyone, I don't know if anyone has posted about this before, I did a quick search but couldn't see anything. I went to the optitions the other day to get my eyes tested for new glasses, and as usual I showed the nice man my special blue steroid card and my remicade alert card. He was a...
  13. Absentminded

    Stressed about drinking Kleenprep

    So I've just started drinking my Kleenprep ready for my colonoscopy tomorrow. Yum yum! I'm really stressing about it, probably because I had a less than enjoyable experience last time with not enough sedation. I'm hoping they don't find anything this time as I'm feeling much better and the...
  14. Absentminded

    Anniversary!

    I've just realised, at 5 minutes to midnight, that today marked one year since my diagnosis with Crohn's. Is a bit of a weird feeling. The past year has gone really quickly, and has had many highs and even more lows! I've only just, in the last two months, started to feel like my old self. The...
  15. Absentminded

    Just a little bit worrying....

    Ok, so I spoke to my IBD nurse this morning about starting infliximab. She said she'd chase up my specialist and call me back which she's just done. They apparently looked back over my capsule endoscopy pictures that were done back in august and they think the camera may still be stuck inside...
  16. Absentminded

    Finally, My Story

    Hello Everyone, I've been on here a while now and have finally decided I should write my story, to introduce myself and so I can get everything straight in my head partly. I've had problems with my stomach/bowels for probably about five years, but my GP had always told me that I had IBS. So...
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