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  1. S

    Need reassuring re: Entyvio

    Thanks, I have an appt with my GI in a couple of weeks or so. Now, I go for my next infusion in 2 months time from my last infusion, or somewhere around mid June. When I think of it, it isn't even 2 months yet since my first infusion I believe was in March 11th? Being isolated makes...
  2. S

    Need reassuring re: Entyvio

    I had my 3rd infusion on April 21st. So far, no improvement. It was pretty neutral for the first 2 infusions but with the 3rd one I've been feeling pretty rough with my bowel symptoms feeling worse. One problem that seems pronounced since beginning Entyvio is constant nasal draining. I get...
  3. S

    Should I be getting infusions at this time?

    Thanks, I have a runny nose and cough, temp has now gone from 97.6 to 100.7. Outside of the Temperature, I've had these symptoms soon after my first infusion but my husband feels I only had one infusion so I shouldn't have side effects already, but it's there, whether co incidental or nor, I...
  4. S

    Should I be getting infusions at this time?

    Really, thank you for that advice. Everyday I live and learn.
  5. S

    Should I be getting infusions at this time?

    What a time to start treatment with Entyvio and other biologics? Since those treatments suppress the immune system, is it wise administering these suppressants, considering Covid19 is already present in our Province? Since having my last treatment I have been pretty much self isolating, other...
  6. S

    Need reassuring re: Entyvio

    Sure sounds like they are more together than the ones here? It was only mi first treatment and it seemed like everything was happening so fast, so maybe it will come together when everyone is on the same page with this (including me) I'm finding different people contacting me, so maybe that...
  7. S

    Need reassuring re: Entyvio

    I was given a booklet which has the 1-800 numbers but I have premature hearing loss, so I've been communicating with them by email but there seems to be more than one person asking the questions they want to know about me, but are slow when I am asking questions about them?
  8. S

    Need reassuring re: Entyvio

    Thank you so much. I did contact them and they still haven't gotten back to me with an answer, in fact they are so slow with other questions I've had as welL? Ok thank you for the above explanation if that be the case I am relieved cause I thought we would have to pay the Provincial...
  9. S

    Low dose Prednisone

    My GI even said that low dose prednisone kept me in remission all those years, but maybe my case being for the bowel is different from what you need it for. Good luck with yours.
  10. S

    Low dose Prednisone

    When stopping, I started to get mild symptoms that built after that until I got a stricture from repeated flaring and healing, flaring and healing over and over again,
  11. S

    Need reassuring re: Entyvio

    Thanks for asking, today went surprisingly well. Just have a little headache and hope nothing more shows up. Found out,they gave me a one size fits all dose, the nurse said the dose isn't weight related. Everybody gets the same. I do have one concern still, and that is the deductible. in...
  12. S

    Two years on Entyvio

    What is up with that? Could he have forgotten about you? He should have considered explaining it to you unless he explained to your daughter and thought that was enough? This may be a little inconvenient, but you should make an appt just to find out all that information you want to know...
  13. S

    Two years on Entyvio

    That's great, and encouraging hope for all of us,. I hope it lasts forever!
  14. S

    Low dose Prednisone

    I don't know why doctors don't want to prescribe prednisone ani more and instead prescribe treatments that have far more dangerous side effects than prednisone. I was on it for years on 5 mg for maintaining crohn's, 3 years after I stopped I went out of a 13 year remission. and had to have 3...
  15. S

    Need reassuring re: Entyvio

    Well tomorrow morning is the day. I want to thank you BigL, crohnsinct and my little penguin, your responses really helped me not to feel so alone and afraid. I am grateful for that. Hugs
  16. S

    Entyvio weight gain?

    Wow sounds very interesting, although I am not familiar with the brands you mention in your post?. While I may not go on a complete fast from foods there are times I don't eat for a day or so, because I am too sick to eat, so stick with clear fluids more or less, so it would be interesting to...
  17. S

    Entyvio weight gain?

    I will look for EO28 Splash I do have a shellfish allergy Can you eat along with this drink . I need to eat, as I am only in the 60 -67 pound range
  18. S

    Entyvio weight gain?

    If you mean regular Boost or Ensure, there is something in those drinks I cannot tolerate. I get severe diarrhea after drinking them. I looked up the ingredients and think I may be allergic to one of the ingredients? I am lactose intolerant and it does have milk protein in it? I was thinking...
  19. S

    Entyvio weight gain?

    Thank you for the advice. Are you referring to TPN? I had that when I was in the hospital? Guess the doctor is hoping Entyvio will work being the disease is in joint? Guess it can work for crohn's in small intestine too if one is lucky enough? No. I haven't tried Stelara yet? Was just...
  20. S

    Entyvio weight gain?

    Thank you for sharing. Yes it is a stricture which is made up with layers of scar tissue. He tried to intubate the terminal ileum but could not get through, but it was visualized Apthous ulcers were present. His post operative impression was active CD in terminal ileum. I usually don't...
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