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  1. P

    Does anyone else start to feel awful the week before an infusion?

    Thank you I'm pretty sure you're the one who told me about sero-negative spondyloarthritis? I'll have to find a rheumatologist who believes in it. The one I've seen before gets hung up on the fibro and tells me to do tai chi and water therapy. I live in Minnesota, so water therapy isn't easy...
  2. P

    Does anyone else start to feel awful the week before an infusion?

    My doctor checks levels at least once a year, and they're always ok. I'll send a message to see if he wants labs drawn before the infusion Tuesday. Thanks
  3. P

    Does anyone else start to feel awful the week before an infusion?

    I'm still every 8 weeks on Inflectra. My next infusion is Tuesday. My joints have been hurting badly the past week. The fatigue ramped way up, and I'm having headaches. I have fibromyalgia, too, and I get migraines. Stress seems to make everything worse, and two of my kids graduated this...
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    Work and IBD -remote work/WFH/Telework

    I would just go home or call in when needed. Use 2-8 hours of PTO. I can. And I will. But. There's a huge difference between being home or being in the office. At the office I have to consider whether I can finish the day or go home sick. At home I can take a break and sometimes finish the...
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    Work and IBD -remote work/WFH/Telework

    I do have FMLA to cover sick time, appointments, procedures, infusions, etc. My employer has a history of refusing telework as an ADA accommodation. On the basis that "the work CAN'T be done from home". They forced numerous people into early (medical) retirement once they exhausted FMLA. I...
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    Work and IBD -remote work/WFH/Telework

    For those who work or have worked while living with IBD, has anyone experienced both Remote or Telework/WFH and working on-site? My employer is requiring that we return to the office after working 100% from home for 2 years now. I could ask for medical accommodation. But I guess I don't know...
  7. P

    Fecal calprotectin test

    I'm not sure what you mean about Advil. NSAIDs are to be avoided because they're absorbed by the stomach, which means that with long-term use, it can make inflammation worse. Tylenol is absorbed by the liver, which is why Tylenol/acetaminophen is the recommended OTC pain relief for IBD. If...
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    Fecal calprotectin test

    Quickest way to get the dreaded colonoscopy, for me, is to report blood in stool. That and severe dysphagia got me my first GI referral. That round of doctors got the skin condition in my esophagus dx'd. It took avoiding doctors for 10 years and getting pretty sick to get the crohn's...
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    Can i test my gallbladder at home?

    Brief update to this. My GI ordered a HIDA scan, it showed the same big honkin gallstone, but the ejection fraction was abnormal and marked suspicious for biliary dyskinesia. I may have spelled that incorrectly. Gallbladder was removed laparoscopically almost 2 weeks ago. The daily nausea...
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    This is not a very good forum..

    I tend to post more when things flare up. It seems there's a solid core of people who have known each other for years, and many people are kind enough to offer suggestions when asked. I don't really comment on things I know nothing about, or on long-standing threads among friends. Feels like...
  11. P

    Testing : How often ?

    1. Every 16 weeks for inflectra, every other infusion, I think? 2. Only when needed 3. GI told me yesterday that if there are no problems, the current recommendation for colonoscopy is every 5 years for IBD patients. I have upper GIs at least twice a year due to dysphagia and esophageal...
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    Anybody else feel like a hypochondriac sometimes?

    My doctor warned me that a very small number of people get pancreatitis from it. So I had a pretty good idea what was going on. But I had to go in repeatedly before they finally did a CT and the lab numbers showed up. And that experience taught me that urgent care is ok for labs, but if I...
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    MRE this morning…

    I hope they can help. Sometimes even ruling things out is helpful. Female stuff can be so frustrating, because things look different depending on the time of the month. I'm sorry about the nausea, it's the pits. I keep zofran in my purse for when it gets bad. I hope you get some answers...
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    Can i test my gallbladder at home?

    I barely slept last night. So I went to the ER today. They ran labs and ordered an ultrasound. It appears to be a "big honkin" gallstone or clump of gallstones. ER doc recommend a HIDA scan. And gave me a referral to a surgeon.
  15. P

    Can i test my gallbladder at home?

    Voice of reason, thank you. I've had HIDA scans before. Urgent care in my area can't do much besides run labs. They don't have the equipment for CT, MRI, or HIDA. HIDA specifically is always scheduled through the hospital. In my network, anyway. I'll stick to a bland diet and hope they get...
  16. P

    Can i test my gallbladder at home?

    If gallbladder pain reacts to fats, sugar, alcohol, etc., can I test it unscientifically at home by eating or drinking things that "should" cause a reaction? Back story: I've been having nausea for months. Doc ran labs, things look normal, calprotectin is normal, ESR, CRP, all normal. I had an...
  17. P

    Inflectra advice

    I get headaches and joint pain after infusion. I try to keep the schedule clear the day after.
  18. P

    MRE this morning…

    I'm glad it went well. Docs are funny with test results. I usually tell myself that they call sooner when the news is bad. But I waited 3 weeks after the capsule endoscopy that tipped the scale on the crohn's diagnosis before calling them myself. I hope the ovarian cyst is asymptomatic...
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    SIBO and crohn's -where do you start?

    That's interesting, thanks. I'll have to learn their shorthand. Some of it I understand, some is familiar but I don't remember the standard values. I asked my GI for a referral to see one of their RDs. I have a video appointment about a month out. I've had bad headaches and joint pain this...
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    SIBO and crohn's -where do you start?

    That's helpful to know, thank you! I couldn't remember the difference between the two. My clinic does have RDs on staff. I'll check to see if they have any appointments available. I don't understand why the doc hasn't made any suggestions about the fatty liver or gallstone. I assume there...
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