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  1. CDDad

    2nd Half Marathon

    Well, maybe it's 2.5. I did one last month, but due to flooding, the course was shortened to 9.5 miles - so I guess it does not count. Anyway, this morning I did my 2nd half marathon, and it went very well. Number one, no ostomy problems. As usual, while running I've never had an issue. The...
  2. CDDad

    There is no reason for this post except

    to say that today is my one year Stomaversary! And what a year it has been. To go from the absolute depths of sickness to how I am today is amazing. Right after my surgery I was so down - there was pain, two incisions, one healing open for months. All while learning to deal with an Ileostomy...
  3. CDDad

    New product - Hollister FormaFlex

    Hollister has a new wafer in the "New Image" product line. It is called "FormaFlex", and the big thing is that it's a "Shape to fit" wafer. No cutting required, similar to the Convatec moldable wafers. I ordered samples and I tried one this morning during my usual change day. It was...
  4. CDDad

    Things you can do with an ostomy

    I had a busy day yesterday: I ran a 5k race with my daughter in the morning Went to the town pool with my 3 kids, swimming, diving, etc Installed 2 light fixtures for my mother, up and down a ladder. Went to a minor league baseball game at night with my daughter Just wanted to post this for...
  5. CDDad

    Running A Half-Marathon in for CCFA

    Hi Everyone, I've dedicated myself to train and run the Las Vegas Half Marathon on Dec 5th to raise funds for CCFA (Crohn's & Colitis Foundation of America) Some of you may know I just had surgery in April and now I have an Ileostomy. But now I feel great and I am so excited to do this. If...
  6. CDDad

    Quicky Hollister vs Coloplast 2 Piece Comparison

    Back in May, I had ordered samples from the big 3 and tried them all. But it was early on and I barely had an idea what I was doing. So now I'm 4 months in and thought I would try my remaining samples. I had two of each to start, so now I have one Coloplast and one Convatec. After my blowout...
  7. CDDad

    Phoenix Ostomy Belt Review

    I’ve been wearing the Phoenix Ostomy Belt to work for the last 3 days, so I thought I write a review. I first ordered this a few months ago shortly after surgery, and I ordered a XS/S which goes up to 31 inch waist. At the time, I was about 31 or 32 inch, so I ordered the small, thinking the...
  8. CDDad

    Humira after Total Protocolectomy

    I just got back from my GI. I had been procrastinating about going to see him. My surgery was 3 months ago, and now that my colon is gone, I was wondering what drugs he would want me on. Well, due to my history of severe Crohns, and a surprise small bowel rupture last year, he wants me back...
  9. CDDad

    Is a stoma really for life?

    Sometimes I look at my bag (or pouch if you like), and can't believe this is for life. On the various message boards, some people with temporary ostomies talk about how they can't wait for reversal, or how glad they are that they can go back (to normal?) with a J pouch. When I read that, I...
  10. CDDad

    Mt Sinai - Ileostomy Appliance Method

    Hi new fellow ostomates, I just wanted to share the method Mt Sinai started me on, and take lots of comments and suggestions. They use the Hollister New Image Cut to Fit Two Piece. They give this ordering list to start out: 14603 - New Image Cut to Fit Flange 18123 -New Image Pouch 25542 -...
  11. CDDad

    Proctocolectomy Incision Opening

    :depressed: As you may know, I was just released from the hospital after my Proctocolectomy. As I was being discharged, I noticed my perianal incision had completely opened up. It looks like this shocking open wound where my anus used to be. Luckly, I had read about this complication, so I...
  12. CDDad

    Ileostomy Surgery

    Hi Everyone, I had my surgery on 4-15-10 as planned from 9am to about 2pm. I wanted to give you all an update finally. I ended up needing 4 units of blood - that surprised me a bit. Dr Bauer (the surgeon) said it was a bit tricky, probably from all the nasty inflammation. I had a...
  13. CDDad

    One week until my Ileostomy

    Hi Everyone, Well, my operation is just one week from today. I feel like I researched and learned all I could at this point. I think that was my way of coping. So now, I kind of feel like a condemmed man awaiting punishment. All of the positive and helpful people with stomas have been great...
  14. CDDad

    Chewing Gum and Surgery

    Has anyone seen these stories about chewing gum and surgery? http://www.webmd.com/digestive-disorders/news/20080818/chew-gum-for-colon-surgery-recovery I read about it before my first elective surgery and it was great. I don't know if it really helped get me out quicker, but I did get out in...
  15. CDDad

    Fever with no other "cold" symptoms - Crohns?

    Hi All, I've had a fever for the last few days. Nothing too high, about 99 to 100, but it is making me miserable. I woke up last night shivering. I guess it's Crohns because I don't have any other cold symptoms. No cough, runny nose, etc. This morning I took one advil and I felt better in...
  16. CDDad

    Immediate Post Surgery Pain

    I've had two surgeries and had a very different pain experience upon waking for each. The first was planned at Mt Sinai, when I woke up I was in intense pain. I mean 11 out of 10 :( . Things are hazy, but I remember them having trouble bring down the pain and trying some stronger drugs. Once...
  17. CDDad

    Hello All - My Crohns Story with Surgeries

    Hi Everyone, I've had Crohns for over 20 years now. It started for me when I was 20 years old. Back then it started as a blockage in the duodenum. My mother has Crohns so we were not strangers to it and my journey started! After a couple years, I got burned out by the inability of docs to...
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