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  1. lookame

    Talk to me about strictures

    So on March 13 I had a colonoscopy. I've been pretty symptom free aside from seeing some mucous in my stool, however, my typical symptoms of bloody and diarrhea are virtually nonexistent since starting entyvio. That being said, it was a shock when I went in for my colonoscopy to be told my...
  2. lookame

    Medicated enemas-pain?

    So I'm technically in clinical remission aside from a smal spot at the end of my colon which is still bleeding (although it's only when I don't get my infusion when I need it). I was prescribed medicated enemas. I took my first one last night and this morning I seem to be using the bathroom...
  3. lookame

    Work with crohns

    I work part time at a jewlery store cleaning up and providing minor maintance. I arrive about 15-20 mins early so I usually wait in the parking lot till the manager arrives to unlock the door and let everyone in. Im at my worst in the morning but if I need to then I drive to the udf nearby and...
  4. lookame

    Right rib pain

    I've been getting sharp pain in my right rib area off and on for awhile now. I get the pain and it hurts to breath for 5-10 mins then it goes away. The pain will happen again in a few weeks. It happens enough to notice but not enough for me to be concerned, although when I get the pain its a...
  5. lookame

    How much weight loss is of concern?

    I know this is a strange question. My son has eoe and adhd. He's currently on Adderall for adhd (it's working very well, concentrating in school and not having the usual school issues), prilosec in the morning and 2 puffs of swallowed steroids at night. I know Adderall can cause weight loss so...
  6. lookame

    Extremely fatigue after entivyo infusion.

    I had my first entivyo infusion today. They gave me some pre meds as a precaution due to a previous allergic reaction to Remicade. They also did a blood draw for a tuberculosis test (I didn't have time to get the usual skin test done before the infusion so the center just did the blood draw test...
  7. lookame

    Class drug failure-tnf blockers (entivyo info requested)

    Has this happened to anyone else? I was on Remicade for a few years when I had a few allergic reactions and was pulled off. Then I was placed on humira 40 mgs every other week, when that wasn't cutting it I was bumped to every week. I had a recent colonoscopy which showed I was still raw and...
  8. lookame

    Iep plans

    So...recently DS has made a few comments about killing himself. On a regular basis he is fine but when he's in school, in trouble or very very sad he makes comments about wanting to die and go to hell. We're getting him help, he sees a psychiatrist and several counselors. I'm not sure if it's...
  9. lookame

    Help with nausea during mri

    Well I had my second opinion app for whether surgery is the route to go. He said there's 2 other biologics to try first and since I'm a new patient he wants to do a battery of tests to see what the disease is up to. He ordered stool samples and blood work and an mri (and he acted like an mri was...
  10. lookame

    Disease in rectum causes incontinence?

    I'm embarrassed to type this but one of my major issues is incontinence from my behind, not that I leak randomly but if I pass gas I also pass bloody mucous, if I get pain I know I have to be in the bathroom asap because I can't hold it. I used to think it was due to the fact that I had diarrhea...
  11. lookame

    Indeterminate IBD and surgery

    So...biopsies are back and this is what we know. 1)pathologically I have crohns (blood and biopsies are crohns) 2)I present as classic UC-so I have the inflammation and ulcers like UC 3)I have yet to find a med that heals my intestine enough to stop passing blood, the med that came the closest...
  12. lookame

    Blood in his stool this morn

    History I'd my son's issues A month old bloody diapers-er visit and told can't digest milk age 2-3- sewage like watery diarrhea (no formed stools at all) age 5- gained 1 lb in an entire yr age 6- random often bouts if diarrhea and random episodes of vometting He's had Bloodwork done and it has...
  13. lookame

    What do you describe as "your new normal"

    I was diagnosed Aug 2010 but had CT scans and a colonoscopy from Aug 2009 until my official diagnosis. The CT scans essentially tracked the disease getting worse (it's a long story). Anyway at my worse I was going several times a day, waking multiple times a night and having lots of cramping...
  14. lookame

    Combating prednisone side effects

    I'm currently on 30 mgs a day, weaned down from 40 mgs. I was suffering from pretty bad blurred vision. Now I'm dealing with insomnia, blurred vision (not as bad) and mood swings. Since weaning down I've seen more blood and mucous and it's pretty painful to have a bm. If I could get some rest...
  15. lookame

    When the meds fail

    It appears that my cocktail of drugs just isnt cutting it. My colon looks like ground hamburger and humira, 6mp and lialda arent doing a thing to help it. The next step is to have a surgical consult and remove my colon with the hopes of getting a j pouch and resectioning it later. It hasnt hit...
  16. lookame

    Anemia

    I didn't know where to put this but I was curious if anemia is a common problem with crohns/uc. I'm starting on my second round of iron infusions in a year because I can't keep my iron up..I also can't stomach oral iron-it causes more diarrhea and it makes me have a worse stomach ache than usual.
  17. lookame

    C-diff

    I was posting below about not feeling well but I got a call today saying my stool sample came back positive for c-diff. I can't take flagl since it makes me vomit a lot so I'll be taking a med that is 1 pill twice a day for 10 days (it starts with a d...can't think of the name). Anyway idk how i...
  18. lookame

    How do you feel better?

    What are some things that you do that helps you feel better? I should be "feeling better" since I'm on 6mp, humira and lialda but I seem to have at the very least an upset stomach...honestly right now honestly my colon feels hot and heavy so it'sprob swollen right now. I wake several times...
  19. lookame

    Influx of Internet "person shit themselves" posts

    Has anyone noticed this? With the Internet and people feeling the need to document their lives I've been seeing a lot of posts about people "shitting" themselves during activities. The articles are written making fun of these people and then people repost them either laughing or saying something...
  20. lookame

    When were you ready for surgery?

    This is part vent part question. I'm tired....I'm so so very tired. I thought I had found just the right mix of meds to keep me healthy enough (not super healthy but enough that bathroom visits were limited to 3ish times a day and in the morn). Double dose Remicade, 50 mgs 6mp and 4 pills of...
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