• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. KristinaEli

    Horrible GI Brought Me To Tears

    I lost insurance in June when I turned 23 and immediately before that I failed Humira and was taken off. I had no other options so went down the avenue of getting into a study. I met with the study doctor multiple times and he was always short but nothing over the top. I unfortunately had been...
  2. KristinaEli

    Is There a Way to Donate Unused Humira?

    I just received a three month supply of Humira when I was taken off of it because my immune system was destroying it before it could do anything for me. I have called all of my doctors offices but they either don't have the fridge space or due to policy cannot take them. I would hate to throw...
  3. KristinaEli

    How to CAUSE a Crohn's flare?

    Hear me out! I had an appointment with my GI today and was told that my body has built up antibodies to Humira and I can no longer take it. This is my third failed medication of its kind (I've also been on Remicade and Cimzia). However, the clinic I go to is participating in a clinical study for...
  4. KristinaEli

    How to Cope With Frustration and Loneliness

    Hello all, I've always prided myself on accepting my Crohn's Disease and all of the accompanying symptoms. I've always been glad that I was the one made sick instead of someone else in my family. I think it would be so much harder to watch someone I love go through this than to actually go...
  5. KristinaEli

    Worst Flare Up of My Life

    I have had some bad Crohn’s flare ups in my time, but nothing quite like this. I was diagnosed with Crohn’s Disease five years ago, when I was 17. I have been through pretty much every drug there is, including Remicade and Cimzia (I developed anaphylaxis from Remicade and Cimzia never really did...
  6. KristinaEli

    Why am I suddenly reacting to Remicade

    I'm at a loss right now. I was diagnosed with Crohn's Disease when I was 17. I'm 19 now and have been on Remicade for a year as of November. I absolutely loved it. I was doing very well on it. I've always gotten premeds of IV Benadryl and solu-medrol, and a few times the Benadryl brought my...
  7. KristinaEli

    Scary remicade reaction. Should I be concerned?

    I have been on Remicade since November for my Crohn's, Uveitus, and joint issues. I go every 8 weeks without a problem. However, my infusion today really scared me. Not long after Remicade was started I began to feel a tightening in my chest. It hurt. It felt, honestly, like someone sitting on...
  8. KristinaEli

    Remicade stopped working and now possible leukemia

    I was just diagnosed with Crohn's disease thirteen months ago. I have a mild case that should be easy to treat, but I did not respond to any of the oral mediation I've been prescribed. I have been on everything and back in November, as a last resort, I was put on Remicade. At first it helped. My...
  9. KristinaEli

    Fever while on Remicade?

    I started remicade roughly three months ago. Since day one I've been great with it. I'm usually a very sickly person and, despite my immune system being suppressed I haven't gotten sick at all. I just finished up the loading phase and on Valentines day I'm due for my 4th infusion. This is my...
  10. KristinaEli

    Had my first infusion today. Scared I'm having a reaction.

    I'm 18 and was diagnosed with Crohn's Disease march 1, 2012. I had my first Remicade infusion this morning. They gave me SoluMedrol and Benadryl before starting the medicine. I have been fine all day (my infusion was at 10) but now I'm starting to feel off. My chest feels a little tight. Not...
  11. KristinaEli

    Positive TB test and starting Remicade

    I'm supposed to be starting Remicade this week but I'm worried that I won't be able to now. I had a PPD placed on my arm at the end of last week. I now have an inch long red mark with a half inch lump in the middle of it. My doctor ruled it as a positive and sent me for a chest X-ray. My chest...
  12. KristinaEli

    Starting Remicade and feeling scared

    I was diagnosed with Crohn's disease in March of this year via colonoscopy. From what my GI could see it seemed I only had a mild case, but from my symptoms he suspected I had a worse case in my small intestines. My GI started me on Asacol immediately but we soon realized that it was only making...
  13. KristinaEli

    Losing weight/can't eat

    Hello, and thank you so much for giving my post your time. :) Here's the gist. I was diagnosed with Crohn's Disease on March 1st via colonoscopy. It appeared to be a mild case but given my symptoms (a history since birth of horrible stomach pain, diarrhea, and constipation, as well as mouth...
  14. KristinaEli

    I feel like a liar

    I was just diagnosed in March with Crohn's Disease. I felt fine apart from new, horrible stomach cramping and diarrhea that seemed to occur after I ate beef. At the time I thought it was all just coincidence and it was just stress from school and over excitement from my nephew's birth that was...
  15. KristinaEli

    Problems with teachers

    I was diagnosed with Crohn's via colonoscopy about a month ago. My GI put me on Asacol HD to hold me over until our next appointment, but it makes me so tired. From the time I get home until I have to get up for school I do nothing but sleep. And it hasn't really worked for me. I still wake up...
  16. KristinaEli

    Biopsy came back negative for Crohn's

    Since I was very young (around eight or so) I've had bouts of horrible stomach pain accompanied with nausea. I was constantly in and out of the hospital, from G.I. doctor to G.I. doctor. My family always suspected it was Crohn's as it runs in my family and I have all of the symptoms but my...
  17. KristinaEli

    17, Newly Diagnosed

    Hello there. My name is Kristina. I'm seventeen years of age and a junior in high school. I'm a dancer, writer, and newly diagnosed Crohn's patient. I guess we'll start from the beginning then? I've had stomach problems since I was very young. The first occurred when I was nine. I woke up in...
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