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  1. allieinwonder

    A GI Issue deja-vu....help!

    Hey guys.... So most of you won't know me, but I was a regular member of this forum years ago when I was, like you, frustrated and undiagnosed. I ended up diagnosed with Behcets disease, an autoimmune vasculitis (inflammation of the blood vessels) in December of 2012. Slowly but surely I...
  2. allieinwonder

    My 8 year long journey, my diagnosis, and how it can help YOU!

    Hey everyone..... I hope you are all doing well! I'm so sorry I haven't been around much lately, my illness has been at its worst the past three months (I got a full time job that has not been the best decision). I want to share some good news with you all! MY DISEASE NOW HAS A NAME!!! I am...
  3. allieinwonder

    Malnutrition/Weight loss

    Hey Everyone! I haven't posted a thread in quite a while, so before I ask my question, let me catch you up. ;) I have finally been given a label for my condition. After my ANA came back positive, and I responded well to a prednisone trial, I have been diagnosed with "Mixed Connective Tissue...
  4. allieinwonder

    My Journey Continues

    Hey everyone, this is an update and a rant, all in the same post! My last thread, "Pill can results", ended with the pill cam coming back normal. I want to get a copy of photos from this, because it was really hard to believe that is was normal, but I haven't been able to get that done since I...
  5. allieinwonder

    Bone Loss?

    Hey everyone, I have noticed lately that I seem to be losing bone. I didn't notice much because I wasn't buying shoes, but since I got back from Germany I have replaced a lot of stuff and I noticed that my feet are much smaller than they used to be. I went from an 8.5 to a 6.5 in about a year...
  6. allieinwonder

    How do you deal with this AND everything else in life?

    Ok, so I am having some trouble with life at the moment. This is both a rant and a "looking for advice" thread. Just a little background...I have had symptoms of this illness (whatever this illness may be) since I was 15. It only started to get back about 15 months ago. When it got this bad, I...
  7. allieinwonder

    Pill Cam Results

    Well, if you got excited by seeing the title of this thread, I'm really sorry. The same thing happened to me when my GI emailed me this very title today! He didn't get around to looking at the 55,000 pictures. He leaves tomorrow, and his email to me says he wont be able to look through them...
  8. allieinwonder

    I kinda wonder if these are real! :P

    Just wanted to give everyone a laugh! http://failblog.files.wordpress.com/2011/08/epic-fail-photos-essential-product-fail.jpg Hope everyone is having a good day! :)
  9. allieinwonder

    Left Abdominal Pain Questions

    Hello Everyone! I have been wondering about this for a long time, and I have tried to figure it out on IBS forums (since right now I'm stuck between IBS and IBD), old threads on here, etc...and I have decided to just present my question lol. As most of you know, I've struggled for a year...
  10. allieinwonder

    New turn in my road to diagnosis

    Hello everyone. I just wanted to give an update on how things are going for me, since I rarely do that outside of the undiagnosed club. Since my hospital visit I have had symptoms come and go, but overall my flares are getting longer and more severe. About a month ago I had an ulcer appear on...
  11. allieinwonder

    Update/Question

    Hello All, I wanted to let you guys know whats been going on with my "search for crohn's journey". I have told the undiagnosed club, but I wanted to share with all! So after my last thread with the lovely "vacation" in the hospital (ha ha), I went to the GI on Wednesday and I think I have made...
  12. allieinwonder

    What would you do?

    Ok, so if you don't know, two months ago I was rediagnosed with severe IBS. The GI who did this did not do any tests than blood tests, and my small bowel was never checked. Well, about a week and three days ago my pain started to get worse. It feels like a gaping open hole, middle left side...
  13. allieinwonder

    Ulcers on the corners of your mouth?

    ulcers on the corners of your mouth? Hey everyone. I hope everyone is having a good day. I have a question for you all - I have been having really bad symptoms lately, and I have had a sort of new one crop up that I am wondering about. I have an ulcer on the corner of my mouth. It looks like...
  14. allieinwonder

    Best Husband Ever!

    So I was in a musical here on base the past couple weeks. We did Cabaret, and I was a kit kat girl, so I danced on stage in just underwear and a tank top. The first time we did it in our costumes, I was an idiot and just wore the costume underwear, not my own underneath. Of course, I had an...
  15. allieinwonder

    Update

    Well, like every doctors appointment I've had, this one left me confused and disappointed. I went to a new GP at the clinic on base, because I wanted a second opinion on my options. Well, this one ripped me apart it seemed. She said that most people with depression problems feel like they have...
  16. allieinwonder

    Got my test results

    We were finally able to track down my test results. Well....I am shaking my head, because I really feel like I am going in circles. This is the results: "Diagnose: exclusion of chronic inflammatory disease EVALUATION: Crohn's disease or UC can be ruled out. Acid reflux doesn't cause...
  17. allieinwonder

    Constipation Relief?

    Hey ladies and Gents, I've been looking for this everywhere, but I decided you guys might be my best source. ;) I have always been irregular since this started years ago, but during this flare it has been a rollercoaster that I can't seem to control. Off the Tramadol for awhile and its...
  18. allieinwonder

    So much pain

    This is a vent. Just sayin. The pain in my abdomen is getting worse by the day :(. As you guys know, I am undiagnosed, so I have no end in sight. I am currently on tramadol for the pain (have been since September, but I don't take it every 8 hours, only when needed). Currently I am on 100mg...
  19. allieinwonder

    I am SO frustrated.

    Well, my colonoscopy was this morning. They found nothing. :( The doc came in afterwards and said they took pictures of my stomach and said everything looked normal....I told him there has got to be a reason for all of my symptoms and he said they took samples and are going to run tests, but...
  20. allieinwonder

    Finally!

    Hey everyone! I FINALLY have colonoscopy scheduled. I went to the GI yesterday and they did an ultrasound and now I have a colonoscopy/ upper endoscopy next week. As far as symptoms, they haven't gotten any better. Pain in upper left quadrant, general weakness, mouth ulcers..the works. And the...
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