• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Pangolin

    Oral Vancomycin study

    Anyone tried this? Due to the lack of absorption, this seems like it might be a safe option. Check out the graphs in the study--impressive reduction of pain, blood, and anemia. https://academic.oup.com/crohnscolitis360/article/1/2/otz015/5532749 Objective To study the efficacy of oral...
  2. Pangolin

    Bacteriophage therapy targeting adherent invasive ecoli

    https://academic.oup.com/ecco-jcc/article/11/7/840/2895107 Background and Aims: Adherent invasive Escherichia coli [AIEC] are abnormally predominant on the ileal mucosa of Crohn’s disease [CD] patients. They bind to the CEACAM6 receptor expressed on the surface of epithelial cells. We aimed to...
  3. Pangolin

    Perianal Crohn's: keeping an eye on the anus

    This might seem a little weird at first, but consider that in a case of Crohn's with perianal involvement, your most current and objective data on how things are going is a visual inspection. There is no better way to tell what the current level of inflammation in that region is than taking a...
  4. Pangolin

    Elevated ALT (liver enzyme)

    Son is 11 and currently on EEN and a rather high dose of infliximab 400mg (which is about 14 mg/kg now) every 6 weeks. Obvious Crohn's symptoms have been minimal lately and improving over time, but blood tests have been trending in the wrong direction: Sed rate up. Last three measurements...
  5. Pangolin

    66% pediatric remission with Azithromycin plus Metronidazole

    https://academic.oup.com/ecco-jcc/article/5/3/222/468526 Results: Thirty two patients (mean age 13.1 ± 3.9, mean duration of disease 0.65 years) were included, of whom 21 (66%) entered clinical remission (PCDAI < 10) after 8 weeks of treatment. The mean age at treatment and duration of disease...
  6. Pangolin

    EEN: not just for kids

    Not only does it have excellent remission and mucosal healing rates in pediatric patients, but also adult results are looking promising. Here's a recent study in adults: https://www.tandfonline.com/doi/full/10.1080/00365521.2017.1335770 Forty-one patients with CD and with intestinal...
  7. Pangolin

    EEN seems to be working

    First, a little background: 10 y/o son developed an abscess last October Diagnosed with Crohn's after scope Abscess drained in hospital IV antibiotics including flagyl given Feeding tube started to improve iron and protein levels, told diet could be unrestricted otherwise Remicade started @ 10...
  8. Pangolin

    Long-term maintenance EEN?

    I've been reading about the success of EEN in inducing remission, but I haven't heard much about people staying on it for months or years. Does anyone have experience with this? Why do people transition off EEN if it's working? More detailed version: My 10 year old son was diagnosed with...
  9. Pangolin

    Newly Diagnosed 10 yr Old with Crohn's

    Hi everyone. I'm the mom of a little boy (10 yrs old) who just got diagnosed with Crohn's. I'm not sure when the Crohn's started. Our trouble began the day he came home from the hospital: he wouldn't nurse. He had colic; he was diagnosed with GERD and put on anti-reflux medication. I made a...