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    Iron Deficiency Anemia

    Alexa has still not had the MRE test due to the incompetence of the doctors staff. First they submitted the pre-authorization to the insurance company but did not add any medical records or state why it was medically necessary, that was two weeks ago, plus they put in the wrong hospital...
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    Iron Deficiency Anemia

    Has anyone's child experienced cravings. My daughter is taking whole loaves of bread and eating at once, hiding in her room. ate 14 hamburger buns in a two day period, this seems to coincide with low iron.
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    Iron Deficiency Anemia

    I will not be able to see the Cal Pro result till Monday when Labcorp makes available..
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    Iron Deficiency Anemia

    Nothing makes sense, Hemoglobin and Ferritin both low, sed rate very high, FOBT came back positive but Calprotectin is normal (test took only two days, perhaps wrong?) Doctor is concerned now and wants her to have an MRE next week.
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    Iron Deficiency Anemia

    Comparing the lab tests from all of this year and most recently 4 weeks ago there were significant changes. Ferritin always low but not at 4 weeks usually at 6 weeks. Sed rate has been normal this year until this test which was very high at 100.
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    Iron Deficiency Anemia

    Blood results from Friday show low Hemoglobin, low Ferrtin and very high Sed Rate. (reference range for sed rate was 0-20, hers was 100), hemoglobin was 10.8 and low is 11.4 at this lab. Ferritin very low. CRP was elevated. Doctor did not want to run an FOBT or the CRp since he aid they were not...
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    Iron Deficiency Anemia

    We saw a hematologist when the GI could not figure out the blood loss. Can only see a pediatric GI at her age, not one I called would see her till 18. Will see what happens tomorrow and update. Thank you
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    Iron Deficiency Anemia

    She is going for another iron infusion tommorrow plus blood tests and I also made an appt with her doctor prior to hospital to discuss all the wonderful suggestions everyone made here. Another doctor is not an option as I have been through all of them and there are not many here. Will update...
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    Iron Deficiency Anemia

    what does FOBT mean
  10. A

    Iron Deficiency Anemia

    CHOA does not pay for travel. doctor only reviewed medical records I sent them. Our doctor here said Medicade would not approve her to have Stelara more often. Do you think scar tissue is being formed which CHOA had mentioned was a concer if I remeber right. Our Doctor seems fine with regular...
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    Iron Deficiency Anemia

    We had a second opinion last summer from a Doctor at CHOA (Atlanta, we sent all her records there but cannot afford to get there), he was the one that finally convinced our Doctor to put her on Stelara but he thought every 4 weeks, our doctor has her on weeks. Our doctor worries that when...
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    Iron Deficiency Anemia

    Pill cam was inconclusive. Dr. said is Sed rate was normal then no inflammation. He never wants to deal with difficult cases.
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    Iron Deficiency Anemia

    I did not mean anal fissure, she had one of those a few years ago. I meant something in the intestinal system that could have opened up. She has Crohn's in both intestines. Her sed rate was very high until the last four months when it went to normal.
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    Iron Deficiency Anemia

    Would it be possible to have something bleeding like a fissure or whatever else is there, perhaps something that opened up? Has not had a Calproctin test in a year. The doctor does not run a CRP test.
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    Iron Deficiency Anemia

    But the Sedimentation Rate test shows no inflammation.
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    Iron Deficiency Anemia

    Iron supplements did not work, only infusions. 9 months on Stelara now and previously 2.5 years on Remicade. There is blood in the fecal occult sample.
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    Iron Deficiency Anemia

    Switched to Stelara In Oct 2018 since Remicade was no longer working. Stelara is working as her Sed rate tests are normal but the iron deficiency anemia is still there and has to go for infusions every 4 weeks since Ferittin level drops so low. Originally the doctor said that the bleeding would...
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    Stelara

    15 year old just started Stelara when Remicade was no longer working fully. Had first dose 4 weeks ago. Sed rate is finally normal but once again still losing blood somewhere since Ferritin continues to deplete even after large amount of iron infusions. Any thoughts? Thank you
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    Has anyone been treated at CHOA?

    Has anyone used Dr. Kugathasan at CHOA?
  20. A

    Latest Test Results Antibody and Remicade Level Need Help Understanding

    15 year old with severe active Crohn's Disease and Colitis plus iron deficiency anemia. Diagnosed two years ago, Remicade every 4 weeks 400mg. Recent scopes and disease never in remission. Two questions: 1. Ferritin level always 2 or 3 after monthly iron infusions and then switched to weekly...
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