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  1. L

    My small bowel MRI (MRE) with lactulose experience on the NHS

    I had to wait about 4 months from the day it was scheduled, I'm still waiting for results 2 weeks later. So I had to fast from water and food for 4 hours prior. I got in and did a very long questionnaire (it standard for MRI safety) and had any questions I had, answered. Then I had my cannula...
  2. L

    Is a faecal calprotecin of 130 "low and reassuring"?

    I've a quite a few confusing relays of info from doctors, but this one still bugs me. I had just gotten biopsy results from a upper and lower endoscopy, the result was not clear for a particular form of IBD so an MRI was ordered and repeat FC (my first result was 1700). The doctor who ordered...
  3. L

    If small bowel MRI is negative, what's the next step.

    Before you say to me to ask my doctor... I am in the UK so I use the NHS, we don't have the luxury of just calling up a doctor and getting 2 minutes of their time, we need to wait 3-4 months each time to see our consultants and if you've had a test done that time can be way further extended, so...
  4. L

    Small bowel MRI w/ contrast, lactulose instead of Klean prep?

    So finally I have been given my MRI date, April 10th. On the letter it said I would have to drink between 1.5-2.0 litres of Klean prep (if you don't know what that is, it is a common colonscopy prep used in the UK) so you may have had a small bowel MRI drinking a colonscopy prep, but I called as...
  5. L

    Any experiences with NG tube drainage bags?

    So since August I've been throwing up almost every morning and sometimes throughout the day. I'm still waiting for tests to be done and be diagnosed or at least offered treatment (my symptoms are much more than nausea and vomiting). Pretty much nothing has been done except I've been given anti...
  6. L

    People with an ostomy, do you do feacal calpotetcitin tests?

    I've literally just had a thought about doing stool tests with an ostomy. Do you still do FC tests and if so does that mean you take a sample from your bag?
  7. L

    Have a hiatal hernia? Advice needed please.

    Yes I know this isn't IBD related but this is the only active forum I can find so I'm just hoping someone will have some info that can answer some questions the doctors don't seem to be answering. So I was diagnosed with a Hiatal hernia in September after having an upper endoscopy and...
  8. L

    Faecal calprotectin now 1700 and more info about my 2nd upper endoscopy.

    My first FC was in February which was what got the ball rolling on investigating IBD, it was "over 1000". At that time I was having my worst flare of IBD, even so I was still shocked at how high the number was, the GP on the phone was straining to tell me about the results and what it could...
  9. L

    Still no treatments and cannabinoid hyperemesis syndrome

    I know it's not crohn's related, but it kinda is. So I did post about this a few months ago but i'll give a short recap... Since July/August I've been waking up with nausea and sometimes vomiting bile as soon as I wake up. I thought it was crohn's related, but an upper endoscopy in September...
  10. L

    Morning nausea and vomiting, can't even keep water down, Crohn's or something else?

    Since July I've been waking up most mornings with really bad nausea and I sometimes throw up straight away and it's just bile and sometimes food from like 12 hours before, sometimes It's triggered by just a few sips of water. I've been to my GP's twice and they've just given me cyclizine and all...
  11. L

    Got some biopsy results back.

    So I went to the GP's this morning to get some anti sickness tablets. While I was there I asked if my biopsy results were back as it has almost been 6 weeks since my colonoscopy and upper endoscopy. My upper endoscopy results had not yet come back. In my colonscopy they found what looked like a...
  12. L

    Does anyone else's feaces sink after a colonoscopy?

    I got my first colonoscopy a few days ago now, and my first bowel movement was very watery (it was about an hour after I first ate) then about a day later I had 2 solid bowel movements and they sank... my faeces normally float (including diarrhoea) which I understand the floating is a result of...
  13. L

    Could this still be crohn's disease? Also could it be esophageal crohn's?

    I just got my scopes, the only thing on the colonoscopy was a mild granularity in the terminal ileum. The surgeon described it as "not classically crohn's". I also have a benign inflammatory tumour in the mid-upper portion of my oesophagus... Of course I'm still awaiting biopsy results, I'm just...
  14. L

    Colonoscopy & upper GI done... warning not a good experience

    I got my scopes done yesterday and it was one of the most horrific thing's that have happened. For a few weeks I have already been feeling a lot nausea and vomiting in the morning... So when the scope was put in which felt very tight around my throat, I started vomiting, they kept telling me to...
  15. L

    Confused about upper GI & colonoscopy prep

    So I've finally got an appointment for the scopes, I am very lucky to have gotten a Saturday appointment, so I don't need to miss any of my first week of college. When I got the call the nurse briefly told me about the prep... But I am confused, I was told I can't even have water after midnight...
  16. L

    First appt with gastro, so disappointed, but not a loss.

    So after after weeks of initial tests and 17 weeks of being on the waiting list to see a gastro doc I had my first appointment this morning. After waiting 35 mins past my time even though it was first thing, I was informed my almost 4 month wait was apparently listed as urgent (the norm is 8...
  17. L

    20 years old, had IBD since I was at least 14, thought I had lymphoma, soon to be diagnosed with IBD.

    My first clue was at 14, I had gotten a blood test for fatigue and it revealed I had a low level of B-12 and was given folic acid supplements for 3 months. At that time I hadn't had any symptoms that I wouldn't have brushed off as stress... But I now know Crohn's commonly starts in the ileum and...
  18. L

    Starting long term med as soon as you're diagnosed, and enteral nutrion and elimination diet all instead of steroids?

    I'm currently waiting to see a specialist for official diagnosis, but my GP said with a calprotectin of over 1000, having the common symptoms of IBD and high monocyte count in CBC's in two tests 2 weeks apart, it would be very unlikely that I would have something other than a form of IBD. The...
  19. L

    Enteral feeding as an adult, tube feeding NHS experiences?

    About a month ago I got my calprotectin test after results and it was over a 1000, my GP said it's more than likely a form of IBD, the specialist would confirm what kind of IBD with endoscopy and initiate treatment... The NHS has had a bit of bump recently, long story short lots of procedures...
  20. L

    Do bowel resections happen on diagnosis, can they actually reduce risk of flare ups?

    I've had a form of IBD for a few years now, and it's taken a while to get diagnosed, so far my GP diagnosed me because of consistently high monocytes and a calprotectin level over 1000 so I've still to see a specialist for colonoscopy and endoscopy, I don't think my disease is as bad as some of...
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