• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Tony H

    Diabetes and Crohn's

    Just diagnosed with type 2 and have UC (a foot of colon left ) , any one got any advice ?
  2. Tony H

    This is not a very good forum..

    Theres a very active forum called https://www.veganostomy.ca/community/ very active with a really proactive owner called Eric , very friendly bunch there (like here) but you will get answers very quickly .
  3. Tony H

    Considering an elective Ileostomy Please help

    I have UC since I was 21 , im 61 now , five years ago I had a sub total colectomy ie they removed all of my colon apart from my anus and about a foot of colon and gave me an ostomy, time in hospital was quick apart from catching an infection in hospital which gave me an extra 2 weeks in...
  4. Tony H

    Waiting for Surgery

    Well its been nearly 5 years , so I thought I would update my condition , really cant believe its been this long , stoma wise im doing great , shortly after my homecoming i gave myself a hernia , take warning people new to this , WEAR A SUPPORT BELT ALWAYS , It was a quick enough recovery and...
  5. Tony H

    Availability of restrooms during COVID?

    its funny but its the "normal people " with me on trips have the problems with the non availability of restrooms , since my ostomy I just get into the back seat (we have privacy windows in the back) and change out the bag , open all the windows and invite my fellow travelers back into the car ...
  6. Tony H

    Top surgery after colectomy + ileostomy?

    Hi Nephyria , I had/have UC for over 30 years , had good periods of remission but eventually had to have a sub total colectomy (removal of almost all of the colon apart from a small section connected to the anus ) , I was the BEST thing to ever happen to me , I wish I had it done 30 years ago ...
  7. Tony H

    Eye Problems / Iritis

    Hi I have uc and only had two doses of iritis , its a condition that in my case got quickly worse , , the pain was off the charts and you can noticeably see it in your eyes , it was fairly easily treated with steroids and on the second occasion had to get the steroids administered directly into...
  8. Tony H

    Prednisolone Taper and Problems

    Hi up to 6 weeks ago I was on 40 mg of pred , when I was released from hospital I was on 25 mg and was given no instructions on how to reduce it , after countless attempts to contact my surgeon I was finally told to reduce by 5mg every 5 days , so I was on 25mg for13 days 20mg for 5 days...
  9. Tony H

    How to Gain Weight After Colectomy

    Hi I'm two weeks post op and everything is going well , I would like to know from other stoma mates and crohnies about food and snack suggestions which will help me gain weight back , for example yesterday my food intake was , Breakfast , bowl of rice krispies with lots of milk and sugar , Mid...
  10. Tony H

    Waiting for Surgery

    Its been decided I'm having surgery ,I'm waiting for my consultant surgeon to confirm the details and the timing , I'm going to use this thread to journal my journey if that's ok .
  11. Tony H

    Moving From Humira to REMICADE

    Hi in the hospital for the last few days from a bad flare , on iv steroids and iv antibiotics , I was on Humira for the last year and it was very effective until the end of July and went downhill from there , so I'm a bit nervous about the change , hopefully all will go well .
  12. Tony H

    Humira and 6mp

    Hi got a call from my IBD nurse to tell me that in addition to Humira I'm going on 6mp , she said I had some antibodies in my last blood test and the 6mp would help with this and my joint pain and make the Humira work better , I got the script and told my gp and was told by my gp that I cant...
  13. Tony H

    Calprotectin Home Test

    Hi just back from a visit to my ibd nurse and she told me that I will be partaking in this new test from next month , http://www.ibdoc.net/buhlmann-launches-ibdoc-the-first-ce-marked-calprotectin-home-test/ Just wondering if any one else has had this yet ? the first one will involve me testing...
  14. Tony H

    Starting Humira Today

    Hi , been approved for humira and getting my loading dose in under an hour , really nervous , hope all goes well .
  15. Tony H

    Colonoscopy Yesterday

    Hi I had my first colonoscopy yesterday(in 3 years) and the prep went well , took picolax instead of klean prep (what a difference), anyway I was told I was to be sedated and was given the meds and o2 and waited to drift off to sleep and nothing happens , I was wide awake and felt every bit of...
  16. Tony H

    Predsol Retention Enemad

    Hi , can anyone tell me if predsol retention enemas are still available ? , I had a colonoscopy yesterday and I was told to take these , but the last time I was prescribed them (over 4 years ago ) they were very difficult to source here in Ireland . Thanks Tony
  17. Tony H

    Deltacortril or Prednisone (generic)

    Hi I'm in flaring quite badly at the moment and for the last week I have been on 40mg of deltacortril , its not really having any effect so far I normally take the generic prenisone and I'm wondering if the ENT coated deltacortril is as effective as the normal prenisone which usually calms a...