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  1. C

    Indeterminate colitis, fatigue, permanent stoma

    Hi I got diagnosed with indeterminate colitis in 2012 after having my bowel removed in nov 2011. I had signs of both diseases it was too bad to distinguish between the two diseases for this reason I had it made permanent in 2013. Had another op in April this year to remove a blinding ending...
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    Getting energy back after surgery

    Hi I had surgery on 25th April to remove a blind ending sinus from my bum after complications from previous op to remove rectum and anus. I was off sick for 18 days. I was ok apart from pain and as soon as I go back to wrk boom it hits me I'm feeling weak, drained, exhausted and got no energy at...
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    Proctectomy pain after 9 months

    Hi i had my ileostomy made permanent on 23rd May last year and nearly 9 months on I'm in absolute agony. I went to see surgeon on Monday and he said it's not normal after all of this time. I need a scan and another op to sort it out. He said it's not healing and I might have an infection coz he...
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    Tingling in bum where rectum was :(

    Hi for the past 3 days I've had tingling in my bum where my rectum/anus used to be is this normal? It's constant has anyone else had this?
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    Sticky Crohn's Forum Candle Room

    John I can't believe its a year today you got tragically and brutally taken away from us. It's not the same without you. We miss you so much :( I've cried so many tears this last year and the last few days just thinking of you. I know you wouldn't want us to be upset but its hard not be under...
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    Proctectomy/muscle strain tramadol?

    Hi I had proctectomy op 3 months ago today and yesterday I lifted a really heavy basket at work- customers shopping and my stomach is still in bits :(:( I knew not to lift but thought I would be ok but obviously not. I'm paying for it now. Think I've just strained/pulled muscles I haven't used...
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    Sticky Crohn's Forum Candle Room

    I'm lighting a candle for a school friend who took her own life on August 2nd she hung herself. I can't believe it and am still in shock. She was only 22 and was in my year at school. She always seemed happy at school:( according to a friend she was struggling with living from the ages of 12-13...
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    Hole in bum after sewn up

    Hi plz can any body help me I'm so scared I just had my proctectomy 8 weeks ago but there is a hole in my bum wound :O it's not big but big enough what's does this mean and what will they do. Is it normal? I thought the reason for the proctectomy was so that there was no hole. Help me plz I go...
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    Blood transfusion

    Hi does anyone know how long blood transfusions stay in your body for? Didn't realise until yesterday that when I had my first op to remove my large bowel(life saving) they gave me blood not sure how much. Looked at the patient sheet for first one and its ticked but its not on the latest sheet...
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    Upset stomach with stoma

    Hi I've had an upset stomach all day well started at 12.40am threw up my tea we had Chinese and ever since then I keep feeling sick/ stomach going crazy:( managed to keep some food down until I had my tea again then threw that up about an hr ago :(:( haven't really eaten that much today and...
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    Sticky Crohn's Forum Candle Room

    Plz light a candle for my dad's work colleague who had his bowel removed coz of a blockage(lump) and its not good news. He's been told its cancer and has spread all over his body. Been given two yrs too live. He's got a wife and two small children :(:( can't imagine how they feel right now :(:(:(
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    Proctectomy a week on Thursday

    Hi I'm feeling very nervous, scared and emotional. Hoping it won't be postponed again coz I can't take this anymore just want it over with even tho I don't want it all. If I'm like this now can't imagine what I'm going to be like on the day :( -.- I know this is normal but I'm trying not too...
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    Help! Cold two weeks before surgery

    Plz can you guys help me or give me some advice I woke up on Sunday with a sore throat thought it was too do with going to a gig on Saturday night but today it is affecting my chest and I feel like I can't breathe :-(:-( I have asthma and taken my inhalers but they haven't worked yet. Will they...
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    Phone call week before proctectomy normal?

    Hi just came bk from my nana's funeral and just realised a message on answer machine. Tried ringing them but no luck yet they finish at 5 and rung at 5.10pm. Is this normal a week before surgery? Is too cancel it? I'll ring bk tomoz
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    Sticky Crohn's Forum Candle Room

    I'm struggling through this it never goes away everything is blur right now I don't know how to handle it :(:(:( funeral is next Wednesday :(:(:(:( I hope I can get through it...
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    Sticky Crohn's Forum Candle Room

    R.I.P nana Minor you will be sadly missed always in my thoughts and heart :(:( my emotions are all over the place :(:(:( memories will be treasured forever :(:(:(:(:( missing you already and literally just found out :(:( xx
  17. C

    White sores in mouth

    Hi I keep getting white sores in my mouth which are painful. Is this due to IBD? No sooner they go away they bk again! I've got my pre op on Thursday do you think it's worth mentioning or should I just leave it?
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    Proctectomy in 4 weeks

    Hi I've got my proctectomy op on 2nd may scared of everything it'll soon be here. I've heard they may move my stoma is this true?? My mam also wants me bk to work 3 weeks after surgery but I can't see it being that quick tbh. She doesn't want me on sick pay either that's why she wants me to be...
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    Sticky Crohn's Forum Candle Room

    It can't get any flipping worse John I can't believe he hit you over and over with a hammer or something more lethal stripped you naked and left you in the bath then stole items including money, Xbox, laptop and hrs before he got arrested put on FB 'R.I.P John taken too soon' hope he gets life...
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    Proctectomy and hairloss?

    Hi, just wondering if anyone has had hairloss after having their ileostomies made permanent? I lost loads of hair after my ileostomy and sub total colectomy for about 5 months afterwards not sure what caused it stress, treatment or what I was going through. My hair has stopped falling out and is...