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  1. Norseman

    Bad one, ended well...so far.

    I was feeling great. Meds appeared to be working, no pains fro several months, and then: Bang! That familiar unrelenting pain hits the right side of my abdomen...the one where I just know I'll be in the ER in a few hours...and I was. CT scan revealed that my Ileum was blocked (again), and...
  2. Norseman

    First dose done

    Went and got my first dose of Ventyvio today. It all went fine. So far i feel quite normal, so no acute side effects as a result of the treatment. Will see how I feel the next few days, and they gave me 24/7 phone number to call if I have any reactions. Good free wi-fi at the hospital too, so...
  3. Norseman

    Positive side ffect :-)

    Had one unexpected (but not so unexpected after I googled it) side effect form predsnisone. For the last two years I have been plagued by skin rasjes on my legs, upper arms, and dry, flaky skin under my eyes... All of that disappeared within days after starting prednisone. Hey even my mom...
  4. Norseman

    Taper down question

    I have been on 60mg prednisone daily for 2 weeks (30 mg morning and 30 mg evening), and started the taopering down period today. So from today I am supposed to cut the dose in half to 30mg by skipping the evening dose, that is I only take my morning dose, and skip the one in the evening. And...
  5. Norseman

    Sir Fart-a-Lot

    Ia m currently on Questran in an effort to get my Crohn's induced diarrhea under controll. That has more or less worked, and my poop is forming up much better I love the talks we can have on this forum :ylol2:). But it has the side effect that at night I have become Sir Fart-a-lot, so much so...
  6. Norseman

    Is it the Prednisone that makes me pee a lot?

    Hi started prednisone the weekend before easter, and since then I am peeing a lot more. I also feel thirsty all the time. And drink a little more as well, so that could be the explanation...but for a week, I have had to get up around 2 in the morning to pee...and wake up at 5-6 again with a full...
  7. Norseman

    If Entyvio works, what can I expect

    I have tried Been on Prednisolon, Imurel, Methraxeate (pills and injections), humira with no effect. I am now starting on Entyvio. If it works, what will happen? I ahve had diarhea for 15 years, and six resections of my small bowel. Once becaause my ileum was perforated, and 4 because of...
  8. Norseman

    New treatment for me...

    After having gone trough 5 resections of the small bowel (I feel like a length of pepperoni), in ten years, my Surgeon today came up with an entirely new medication regime for me. Previously I have tried: Prednisonol - no effect. Then Imurel, but the side ffects nearly killed me...actually...
  9. Norseman

    What was that?

    Yesterday I had quite a flare up. It started after dinner, with the typical pains in the area around the ileum, and quickly progressed to terrible pain. They type I only have had when my small intestine has been completly blocked at the iluem, resulting in me having had 5 bowel resections in 7...
  10. Norseman

    Humira failed, surgery next

    Well, I had a fantastic summer. Walked in the hills almost daily, had lots of energy etc, all thanks to a combo of Methotrexate and Humira. That is, after I started taking Humira weekly. Then 2 weeks ago my stricture kicked me in the guts again (I foolishly ate a raw turnip). So after a night...
  11. Norseman

    There are good days

    Made a youtube video from a hike I was on....at the end I make some comments on Chrons. Think it may be okay for those of you who are a bit down at the moment http://youtu.be/DGqJWyk56bghttp://
  12. Norseman

    Final leg on Humira

    Well, well, 6 months of Humira, and I have been flaring on and off for the last 6 weeks. I do injection every 2 weeks along with a couple of other meds that I take once a week and daily. Overall I am in better shape than I was around x-mas when I started Humira. On good days I am excercising...
  13. Norseman

    I wan't to scream!

    I thought I was in remission. I have not had any pain for months. My test numbers where way down, and heading towards "healthy chrons patient" and this afternoon a familiar throbbing started to make itself felt in my right side abdomen...quickly turning into such pain it sent me looking for my...
  14. Norseman

    Oh glorious day!

    I just passed a solid, fully formed stool for the first time in years! And just realised that I have not been on the porcelain since yesterday evening! And that with no pain....that is, I have felt a very minor discomfort, not more than that I have to think about it to really feel it! Off to...
  15. Norseman

    Here we go

    I'm on humira and Methotrexate, both are working to lower my immune system. Now both my oldest and my youngest kid have the chicken pox. And their middle brother finished his a week ago. I had it as a child so I can't get it again, but on reading some advice on how to help the kids with the...
  16. Norseman

    Remembering tto take the meds?

    I have a hell of a time remembering to take my meds. It's my daily dose of 1mg folic acid tablets that gives me the most headache. I am supposed to take those every day, except on Methotraxate day. But I am lucky if I get 3 -4 of those in me during the week. The Methotraxate I have only...
  17. Norseman

    Wow

    Well, I am on the 3rd day of Humira....and my flatulence is gone for the first time in years! Also only been on the porcelain throne only 3 times today and if my mind is not playing tricks on me, some of that stuff that come out was more like porridge than soup! Only thing the tendernes in my...
  18. Norseman

    Toddler funnies

    It just happened again. I had to fly off to the porcelain throne, and as most normal people I prefer to do my business in private. But our little baby boy who has just graduated into toddlerhood have other ideas. So as soon as I get up from what i am doing he follows...and when he see me close...
  19. Norseman

    Should I ask for extra time off?

    I'll be going in for my Humira load up doses on Monday 19th this month. The appointment is straight after lunch time. Should i expect to feel so awfull after this that I may not be of much use at work, or can i expect to go right back to work (I sit chained to a computer screen at work so it's...
  20. Norseman

    I hate morphine

    I have had no less than 3 episodes with my chrons requiring surgery. The first 2 was while I lived in Thailand, and the second resulted in peritonitis which is extremely painfull...well at least added to the general pain while recovering from being gutted like a fish from the celiac plexus to...
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