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  1. Adam1971

    Am I "vulnerable" to covid19?

    Thank you for your response and taking the time to provide and explain this info. Stay well!
  2. Adam1971

    Am I "vulnerable" to covid19?

    Hi all. I'm trying to determine if I should consider myself in the "vulnerable" category for this virus. I am in surgically induced remission and not on any meds. My immune system seems to be fine. I have read that regardless, Crohn's people are more at risk for certain pneumococcal infections...
  3. Adam1971

    Undiagnosed years

    I would think that he is worried about intestinal blockage. Symptoms include severe pain, fever, and sometimes vomiting. It's an emergency.
  4. Adam1971

    Meeting with a Colorectal Surgeon

    I have been feeling much better. I had a colonoscopy today and my doctor said everything looked great including the location of the anastomosis (where I had surgery). She wants to do CT or MRI of the rest of my intestines to make sure there aren't any problems there. She is a new doc to me and...
  5. Adam1971

    Would you take this drug?

    Did your doctor explain the rationale for choosing this drug over others? Can you talk with your doctor about your concerns about efficacy? You are well within your rights as a patient to ask these questions and receive honest and informative answers. Just my opinion.
  6. Adam1971

    Meeting with a Colorectal Surgeon

    I'm so happy you made it to the other side of the consult! You seem more at ease. I'm glad it went well. You will feel better after surgery I am sure.
  7. Adam1971

    Combination therapy: stelara & imuran?

    I am curious if anyone here knows if the body develops antibodies to stelara, similar to other biologics, that cause it to lose effectiveness. If this was happening in this case, does it make sense to continue with it with or without Imuran? When a biologic is losing effectiveness, when is time...
  8. Adam1971

    My story

    Hi there. Sorry to hear you are having such a rough go of it right now. I think it is good that your doc is pursuing more investigation of the problem. I am curious why the choice of a pill cam over imaging like CT when it's known in your case that the terminal ileum is where your crohns has...
  9. Adam1971

    Meeting with a Colorectal Surgeon

    Also, I too was super anxious about meeting with the surgeon. He was great and put my mind at ease and answered all my questions. I hope you have a similar experience.
  10. Adam1971

    Meeting with a Colorectal Surgeon

    I am happy to share what I can. I don't remember any accidents before or after. Surgery made a huge positive impact on quality of life. I was in pain and nauseous all the time before and that all changed afterwards.
  11. Adam1971

    Meeting with a Colorectal Surgeon

    Well, I believe I had surgery about 3 weeks after the consult. They removed about 8 inches of terminal ileum, ileoecal valve, and appendix (which is right there). It was about what was expected. Recovery was fairly rapid. The first 5 days I was in the hospital. It hurt for a few days but...
  12. Adam1971

    Meeting with a Colorectal Surgeon

    Hi there. Sorry to hear of your situation. I had exactly the same surgery your doctor is referring you for. It went very well and I have had 7 years without any symptoms, until now, but that's another story. I found the 'sticky' notes on here from Dustykat at the beginning of this surgery...
  13. Adam1971

    “Silent” Crohns and treatment

    Hi there. I have a very similar story. My crohns is also pretty "silent". I was diagnosed at age 42 (now 49) when I developed increasing pain in my right lower abdomen, right where the ileum ends. Turned out that I had already developed a stricture that only surgery could remedy. I had no bouts...
  14. Adam1971

    Anastomosis stricture

    I am surprised they wouldn't have bumped someone less acute for you. Is this going to be your first gi appt since your surgery?
  15. Adam1971

    Anastomosis stricture

    That's so long! I say that because I know most treatments besides prednisone takes weeks to months to work. By the sounds of things, that amount of time is significant with your inflammation. I hope they get you in sooner. I was surprised that I have to wait until May to talk to a surgeon. Its...
  16. Adam1971

    Anastomosis stricture

    Wow! I wish you didn't have so much Crohn's damage to contend with. You sound like a good spirited, strong person which must serve you well. Can I ask what meds they are using to treat the flare?
  17. Adam1971

    Anastomosis stricture

    Emmaargh, how has your recovery been?
  18. Adam1971

    Anastomosis stricture

    Thank you both for your reply! I figured that active Crohn's inflammation was the culprit. In my experience, unfortunately, I only get symptoms once a stricture has formed, once scarring has occurred. Before that, it's a silent process except for increased susceptibility to gi viruses the kids...
  19. Adam1971

    Question about crohns and fatigue

    Thank you so much for the tip! I hadn't even considered these absorption possibilities. I will ask for these tests when I see the specialist in 2 weeks. Thanks.
  20. Adam1971

    Question about crohns and fatigue

    Hi all. I am wondering about what your experience with basic fatigue is with crohns. I ask because I have been searching my memory about signs and symptoms of crohns ever since being diagnosed on 12/24 with inflammation and narrowing at past surgery site. I thought I had been in remission since...
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