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  1. K

    Sleep... Our ally, or enemy?

    OK, this is going to sound crazy (but consider the source). I've been having an issue with insomnia. This is a first for me, in prior flare-ups I've always been able to sleep. This time, usually I only manage a night or two of sound sleep before the insomnia kicks in again. Here's the thing...
  2. K

    Hair loss as a side effect?

    Anyone heard of Asacol causing hair loss? I've noticed recently that I'm losing a lot of hair. I was on Salofalk for years without this issue, so I don't think it's related. But if anyone has any info or experienced this, I'd welcome your input
  3. K

    Hair loss as a side effect?

    Anyone heard of or experienced hair loss from Remicade. I had an extra hi dose in September, and now I notice I'm losing a lot of hair. It could be my age, or it could be from other drugs I'm on (Asacol, Diamicron, Rosavastatin). I've searched for any info on Remicade causing hair loss, but came...
  4. K

    Remicade and increased arthritis pain

    Hi folks. Sorry for the long preamble. Here goes. I started Remicade mid June. Never had any luck, but no side effects either. Today, in a desperate bid to avoid another surgery (this time an ostomy as opposed to a resection) I was given a much higher dose. I went from 6 vials to 10. And, even...
  5. K

    Ostomy - Next chapter in my fight with IBD

    Hi all. I originally posted this under surgery, but a lot of the folks responding said I should pose these questions in the Stoma Subforum. So, here goes... Barring a miracle, looks like I'm headed to surgery for an ostomy in the next month or so. I had hoped to avoid this, have done...
  6. K

    Ostomy - Next chapter in my fight with IBD

    Barring a miracle, looks like I'm headed to surgery for an ostomy in the next month or so. I had hoped to avoid this, have done everything possible not to take this route... but, life doesn't always go the way we hope. So, my question basically is... Any advice, thoughts or stories those of...
    • Kev
    • Thread
    • Replies: 7
    • Forum: Surgery
  7. K

    Memories, may be beautiful and yet...

    Hi folks. I've come here to ask for some help, some input, some advice... any thoughts, stories, etc., would be welcome. Here is what brings this all on. In the last few days, something happened at work. I related the story to a very dear friend... and ... a short while later, she inquired...
  8. K

    Six years plus on LDN

    Hi all Thought I'd pop in here with this. Anyone who doesn't know me, I started on 4.5mg of Naltrexone (LDN) in November of 2007. I've taken it nightly ever since, and it brought my disease under control and has kept it there. I've been asked over the years about potential side effects. The...
  9. K

    Forks over knives

    Watched a documentary today (yeah, that's how exciting my Labour Day 2 day weekend was) called 'Forks Over Knives'. I went into it pretty sceptical. Have to admit... and no pun intended... they really presented food for thought. And perhaps discussion. They also have a website, appropriately...
  10. K

    'Filtered' water

    I thought I'd throw this on here. Not sure if it is pertinent, or of any value in and of itself. It may be nothing more than food for thought. Recently, I noticed a build up in the water reservoir of my coffee maker (yes, I can AND do drink coffee, with no adverse effects). Now, I regularly...
  11. K

    Numbers, numbers, numbers!

    I placed this thread here because I felt the topic is applicable to all forms of treatment. It is a carry over of some posts I tossed into another thread, but I wanted it to be clear that the concern I feel is not directed at any one form of treatment, therapy, regimen... whether it be...
  12. K

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    First, thanks for the well wishes. I was trying not to sweat this latest scope, but it ended up that way anyway. I was supposed to have it June past... booked time off work and everything.... only to have violent nausea (1st time it has ever happened, hope its last) from the prep... threw up...
  13. K

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    I'm not trying to be a scare mongerer.... nor am I opposed to the use of cannabis for the treatment (or any supplemental lessening of any symptoms) of Crohns, or MS, or cancer. It may have come across that way because the info I provided was completely 1 sided. But there is a simple explanation...
  14. K

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    I agree with David. The point is... making a choice about any treatment method requires looking at all of the pertinent data; pro and con. Once that info is presented, then one has the facts at hand to decide for themselves whether to pursue this treatment or that. Were I a male, under age...
  15. K

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    I never looked at the study. Just heard it on the news (I spend 10 - 12 hours a day in the cab of my truck, the radio makes for great company). The morning radio show hosts made great fodder of the report. You know? Like, "smoking pot takes balls, real balls". But it shouldn't be too hard to...
  16. K

    Sticky Medical Marijuana for Crohn's Disease and Ulcerative Colitis

    There was a recent study released about the effect of cannabis on males under age 35. The results? The risk of testicular cancer doubles. Why? I dunno. I stopped recreational use of it over 25 years ago. (when I became a Dad). I never presented with symptoms that made me consider it as a...
  17. K

    How I obtained LDN

    I have been asked to recount how I went about obtaining a prescription for LDN in case there are others who wish to explore this treatment option. I agreed, although I have told this tale before. I would invite any other member who was successful in obtaining LDN to join in and post your tale...
  18. K

    Very bad reaction to scope prep.

    OK, heres the thing. Tomorrow I was scheduled for a scope to check if any more pre-cancerous growths had popped up in the past 6 months. This wasn't my 1st scope... I've lost track of how many I've had over the years, so it was pretty much routine... or so I thought. I've used the 4 litre...
  19. K

    Cows Milk Vs Mothers' Milk

    Here's a thought (and yes, it happens so rarely that Ripley's called to verify it). Has anyone taken/conducted a poll amongst the Parents of Children with IBD to see how many were bottle babies vs nursed? And, if nursed, to what age. The reason I toss this out there is that I'm alarmed by the...
  20. K

    LDN 5 years later

    Just a brief update. 3 years ago, I started on LDN.. Kept a daily journal of my experiences here because it was a potential new treatment, and I was sort of playing guinea pig. Well, my initial diary entries seem to have vanished, so I'm not able to put the 3 year anniversary update info there...
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