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  1. NancyHany

    I can't cope anymore

    Hello there, it's been a while since the last time I was here but I'm hoping I get answers from people in similar situations. I have crohn's disease, I've been diagnosed 6 years ago. I'm currently having the flare up from hell for a week now, the flare up before that started from 3/1 till the...
  2. NancyHany

    Lupus or Drug Induced Lupus?

    Hello all, Quick brief, I have Crohn's in the terminal ileum and UC in the left descending colon, they co-exist in my colon cause my colon formed a big bow tie knot in between of them. I'm currently only on Remicade, I stopped Pentasa cause it was doing nothing but making my hair fall faster...
  3. NancyHany

    CT scan result question

    Hello there, It's been a long time I didn't post here. Nothing much has changed actually. I'm still on Remicade and still after 4 dosages didn't achieve remission. To my question, I had a CT scan today and I have troubles understanding a line of it, it says : "stranding of the fat planes...
  4. NancyHany

    On with the Remicade?

    Hello all, I need your advice regarding my situation, I was started on Remicade 7/7 and I had a terrible episode of serum sickness. While that was horrible and I genuinely thought I'll die , I have positive outcome of Remicade, my bowel movements are cut to the half and my skin feels better...
  5. NancyHany

    First infusion terrible reaction help!

    Hey I had my first infusion today and 4 hours later I started getting a fever which is now 40c my body hurts horribly i'm hardly typing it hurts or can see the screen clearly . Doctor made me give myself a mild pain killer shot and he disappeared..my nurse is following up with me but she doesnt...
  6. NancyHany

    Update/Questions

    Hello all, Sorry I can't find the old thread so I started a new one. My health is still going downhill. I went to a new GI (finally) He prescribed Remicade, he wanted to put me on Pred with it to speed up the process but I refused since side effects from pred are not worth it for me. He left...
  7. NancyHany

    Useless ER visit

    I couldnt sleep last night from the pain, literally I couldn't close my eyes. I spent the day can barely stand up and unfortunately we have a guest and I literally had to sip on iced water to keep myself awake while cooking. I have a terrible headache and just everything hurts currently. I...
  8. NancyHany

    Blood test results.

    Hello all, I just got back my blood test results and I have high levels of SGPT and SGOT and HCT and absolute eosinphilia. Low MCV and MCH. Other results are all bordering on being abnormal for example my Lymphocytes count is 40 and its the max in the normal range. I understand it means I have...
  9. NancyHany

    Treatment options help.

    Hello all, I just got back from a doctor's appointment, and I needed help with the treatment options he proposed to me. If anyone read a previous thread of mine I was wondering if I should wait till I'm financially able to take Remicade or try Prograf or Imuran for now. The doctor said my...
  10. NancyHany

    Confused

    Hello all, I'd like to have some opinions to my current situation, My current flare up soon to be a year long, I tried Pentasa, Entocort (horrible side effects), Flagyl , alot of anti-biotics and a lot of things I cant even remember. My diagnosis is Crohn's in the ileum and UC in the...
  11. NancyHany

    So yesterday

    I decided to go out with my husband and my lifetime best friend who just moved back here and for the first time in 5 years we live in the same city. So while I was enjoying my time with them in a coffee shop I had strong lower abdominal pain, I went to the bathroom and I had a bowel movement...
  12. NancyHany

    New here

    Hello all, I found this forum while searching for ways to make my Crohn's and UC feel better, lurked for a while then joined. My story: I'm currently 26 years old, I was diagnosed with UC 7/2011 in the rectosigmoid and the doctor couldnt get far after it since I have a knot bow tie like in the...
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