• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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    Food allergy identified and now in remission

    I was diagnosed with moderate to severe Crohn's in 2012 when I had an obstruction that perforated, and resulted in an abscess and small bowel resection. I decided that I did not want to take biologics. In 2013 I went to an integrative medicine MD, who did a lot of tests, including a blood...
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    remission or misdiagnosis?

    Been a while since I posted anything. In 2012, after years of IB symptoms, I had a bowel obstruction that perforated. CT scan during that showed swelling at the terminal ileum. A scope / biopsy (supposedly?) diagnosed severe Crohn's in large and small bowel. I had a resection to deal with an...
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    Interesting scope results

    I'm thinking the LDN is not working for me, or it is taking a long time to kick in! I had a colonoscopy yesterday, and there are some changes. Moderate inflammation of the terminal ileum, and more ulcers, but they are smaller. (Last scope showed 2 large ulcers with little inflammation). I...
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    Am I in the minority for LDN?

    Hi Everyone - I have had a few issues in the last few months, and saw my GI yesterday. I had an upper GI bleed in late March, and a partial blockage a few weeks ago. I saw the GI yesterday, and am scheduled for endoscopy and colonoscopy middle of June. During the exam my TI area was very...
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    5 months on LDN

    I meant to post more often... but I haven't. I started LDN in October, and felt it was starting to work by about 6 weeks in. Then came Christmas Eve. Had a potluck dinner at our house. I was very careful of what I ate, but within about 40 minutes of eating, I was in the bathroom with the big...
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    Taking LDN for almost 3 weeks!

    I got my LDN prescription from Skip's on Oct 4th :) ! The dr. wanted me to take 1.5 mg for 3 weeks, then 3.0 for 3 weeks, then go to 4.5.... I started with 3.0 for 5 days, then went to 4.5. Although I am dreaming more than I normally do, it's not the colorful, vivid dreams that Kevin got, (so...
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    I got a prescription for LDN today!

    Had a 2 1/2 hour appt with an alternative medicine doc in Anchorage today, and got a prescription for LDN!! I am so happy! I hope to have the LDN in the next week or so, and get started on this journey. I am thankful to all of you who post on here, and the education I am getting about what...
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    Carrageenan used in dairy free products...

    My sister found an article on this seaweed, carrageenan. It is used to make both dairy and non dairy (soy milk, almond milk, etc) smoother and less likely to separate, among other things. It is also used to induce inflammation in lab rats! It is also causes intestinal ulcers, lesions and...
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    Turned Down for LDN x 3 today!

    Just an update on my quest for LDN. I dropped off all studies and publications on LDN to my primary care drs. office a couple of weeks ago, and had an appt. today. The primary care said no, the doc who takes care of Crohn's people (they are all internal med specialists) said no, and the Nurse...
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    Crohn's and Barratt's esophagus

    Hi - I am wondering if anyone has both Crohn's and Barratt's esophagus? I know that Barratt's is related to GERD, but I was wondering if any treatment you have had for Crohn's has helped the Barratt's? I have the displeasure of hemorrhoids - external and internal, diverticulosis, Crohn's, GERD...
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    Does your GI know you take LDN?

    My GI has turned me down for LDN, and I am going to pursue getting it through another Dr. If your GI said no, and you got LDN some where else, did you tell your GI? If so, what was the GI's reaction?
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    GI turned me down for LDN

    I sent a letter to my GI - he is a 3 hour drive away, and always calls if I write / FAX him- I asked to try LDN. Sent the Penn State trials info plus a couple of articles published in Gastro journal a few years ago. So, he said he is aware of LDN, but does not prescribe it... many reasons...
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    3 visit, 3 treatment recommendations

    I have gotten so much information on the forum in the short time I have been reading / posting, and everyone is so great! I hope some of you can offer me some advice. After about 5years of diagnosis of IBS, then lactose intolerant, I ended up in the ER in March with divericulitis - they did a...
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    Surgery done July 5th - doing well!

    Hi everyone - just wanted to let you all know that my surgery went well, and no ostomy! The surgeon removed the abscess and about 12 inches of small intestine, and had good ends to reconnect. He also said that what he saw when he got in there was much better than what the CT scans showed, and...
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    Surgery July 5th

    I had a bowel obstruction on April 10th and it caused an abscess. The CT scan showed what appeared to be Crohn's at the terminal ilium. The surgeon at the local hospital thought there was a chance of having the abscess drained at UW in WA, and he did not want to operate, so I was medivaced to...
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    Diagnosis today..it's Crohn's

    I got the results of last weeks colonoscopy / biopsies, and it is Crohn's. I also had several polyps removed, and some were Adenomatous and some Hyperplastic. Had low vitamin D (taking 50,000 IU a wk for 8 weeks, then 2000 D3 a day after that), also low B12 - starting shots for that w/ my...
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    Scheduled again for colonoscopy / biopsy

    I have been "lurking" and reading for a few weeks, and thought I'd join in. I am 58, and in pretty good health (or thought so!) In the summer of 2007 I started having bad D - was in a very stressful time. I had a colonoscopy that showed I had diverticula, but not to bad. D continued off and...
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