• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. Raleigh

    Pill Cam - Aphthous Ulcers

    So I finally had my pill cam a few weeks ago. I saw the doctor on Tuesday, who informed me about the results. He said that he found a few aphthous ulcers in my small intestine. However, he said that according to the diagnostic criteria, because I has less than 5 aphthous ulcers, it isn't enough...
  2. Raleigh

    Finally!

    So I've had to wait almost 2 months to get approval from my insurance for a capsule endoscopy. Apparently they made a mistake, because it should have only taken 5 days. I'm going in on Monday for the procedure, so I have to do the prep tomorrow night :stinks: I'm not thrilled about it...
  3. Raleigh

    Explaining Your Illness to Your Kids

    I'm currently in the process of getting diagnosed, so I am not receiving any treatment. Because of that, I have a lot of bad days, and it limits my activities significantly. I also have a lot of fatigue, and I require a lot of sleep. Basically, I'm just trying to hold on as best I can until I...
  4. Raleigh

    Sleep

    I was wondering, how many hours do you sleep each night? I'm the type of person who needs at least 8 hours to feel good and function well. However, lately I've been sleeping much longer. I usually find myself sleeping for 10 - 10.5 hours each night, and I still have trouble getting out of bed...
  5. Raleigh

    How Reliable Are IBD Panels?

    I was wondering how reliable an IBD panel really is. I had the ASA and pANCA IBD panel from LabCorp, which came back negative. I read that it shouldn't be used for diagnosing Crohn's; only to differentiate between Crohn's and UC. But I think my doctor was using it as a diagnostic tool. Should I...
  6. Raleigh

    Could This Be A Fistula?

    This is kind of gross, but I have to ask. For the past 4 or 5 days, I kept noticing a strange, offensive smell. I knew it was coming from my body, but I couldn't figure out from where because it was there after I showered. Finally, last night, right before I went to bed, I happened to scratch...
  7. Raleigh

    Nervous About Fever

    I saw my GP today for a follow up visit. They checked my temperature and I was running a low fever. It went up a little as the day went on, but not high enough to cause alarm. I think I've had this fever for about a week now without realizing it, because I have felt terrible. However, I'm not...
  8. Raleigh

    Saw My New GI

    I saw my new GI today, and I think it went pretty well. He was really nice and spent a lot of time with me. He couldn't believe that I had gone 8 years without a diagnosis and some treatment. I had a colonoscopy in May at the Cleveland Clinic, which showed some sort of colitis, but the biopsy...
  9. Raleigh

    Yellow Diarrhea

    I'm currently undiagnosed, and in pretty rough shape at the moment. Since my GI problems started years ago, I have had yellow/light orange diarrhea, which sticks to the toilet bowl. For the longest time I just accepted it and didn't think much of it. However, I recently did some reading, and...
  10. Raleigh

    No Apparent Reason

    I'm currently undiagnosed, but IBD is suspected. Overall, I feel pretty miserable much of the time. However, I sometimes have 3-5 day periods where I feel pretty decent. Then it goes back downhill again; usually to my normal "status quo", if you will. I had one of those good periods a few days...
  11. Raleigh

    I'm Making A List

    So I've been doing a lot of research on my specific symptoms and laboratory abnormalities. It's too long to post here, but through the use of clinical studies in medical journals, I have directly linked every laboratory abnormality that I have had to Crohn's Disease. I have done the same with...
  12. Raleigh

    Fluids & Electrolytes

    Hey Everyone, I was wondering if any of you have problems maintaining your fluid and electrolyte levels. Dehydration and electrolyte imbalances have plagued me for years. I'm on TPN, and even with 160 meq of potassium and 250 meq of sodium, I still manage to have lab results which show one or...
  13. Raleigh

    Where Do I Go From Here?

    I had a colonoscopy on May 17, which showed rectal inflammation. The doctor told me that based on what he saw, he thought I either have Crohn's or UC. He wasn't able to reach to Terminal Ileum because I was in too much pain. Fast forward to today, and my biopsies came back. My doctor, who was...
  14. Raleigh

    Some Interesting Results

    Hi Everyone, I've been waiting for my biopsy results since my colonoscopy on May 17th. My doctor suspects Crohn's or UC because I have a multitude of IBD symptoms, and my colonoscopy showed some rectal inflammation. In the meantime, while waiting on the biopsy results, some blood work has...
  15. Raleigh

    New

    Hi Everyone, My name is Brian, and I live in Raleigh, NC. I am currently waiting for a diagnosis, after a recent colonoscopy. My problems began 8 years ago. I started having problems with acid reflux and nausea after meals. This progressed to severe diarrhea and weight loss, dehydration...
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