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  1. Keepingfaith

    Re-introduction

    My name is Elizabeth and I've been on this forum for years but the past four years I've been inactive due to my declining health. I've kept up with a lot of you though via Twitter, Facebook and Instagram but if you weren't here or don't remember me here's my background: I was diagnosed at the...
  2. Keepingfaith

    To eat carbs for Swimming or not eat carbs?

    I've been VERY sick lately(which is why I'm rarely on the forum lately :yfrown: ) but I have been having to make myself down loads of carbs for various swim meets & practices lately. I know carbs = bad for Crohn's but any advice(from a swimmer would be GREAT)from anyone would be appreciated. I...
  3. Keepingfaith

    Please help me understand!

    My doctors and IBD nurse came to the conclusion to put me on Methotrexate for a few weeks to jump start my other meds & hold me together for our 10 day family vacation. What's the point? From what I've read, it takes months to work. Not to mention the heavy risks with my other meds. Has anyone...
  4. Keepingfaith

    Becoming steroid dependent & need help on pain management!

    I've been flaring for almost 3 years and I've been on Prednisone for almost a year at pretty high doses. I've been on so many medications for Crohn's and the only medication(other than what little relief Humira gave me)that allows me to function is Prednisone. I really hate it but I'm miserable...
  5. Keepingfaith

    Parents of Swimmers/Swimmers! Help!

    I found out today I made the swim team at my school(they must be desperate if they let me on the team with all my medical issues :ylol2:). I have a lot of freinds who have done competitive swimming their entire life and they have been great at helping me to get into shape for the swim season but...
  6. Keepingfaith

    What are the long term issues with prolonged inflammation, however mild or severe?

    I'm kind of confused after a recent visit with my Rhuemy. I understand he is not a GI but he told me he doubted I'll ever be in remission & will always have inflammation in my GI, however mild. That got me thinking : Can't complications arise from under treated Crohn's? Prolonged inflammation...
  7. Keepingfaith

    Freaking hate steroids and Crohn's!!

    I really just need to vent about my last Rhuematologist/GI appointment and Crohn's as a whole! I had a Rhuematologist appointment that was very depressing recently. My iron came back low again and when he heard about my recent hospitalization he grinned really big & said "So you are feeling...
  8. Keepingfaith

    Pencil Thin Stools and Now Anemia?

    Hey guys! I hope everyone has been hanging in there. Seems like flare season is in full swing on the forum! I went to go see the GI at the local hospital for a follow up visit since my hospital discharge in June recently. He isn't my usual GI. My usual GI is hours away from me but Im willing...
  9. Keepingfaith

    Insomnia on Prednisone...

    I've been on Prednisone since about October with the exception of a two month 'break'. I don't get too many side effects of Prednisone but the ones I do have, are horriable. I'm on Noritriptyline for headaches/insomnia and it was working really well. Then I was put in the hospital & they upped...
  10. Keepingfaith

    New treatment options showing higher response rates than anti-TNF drugs

    I don't know if someone has posted this already(sorry if they have!)but I came across this & it made me happy :dance: http://egmnblog.wordpress.com/2012/06/21/new-anti-inflammatory-drugs-will-end-anti-tnf-dominance/
  11. Keepingfaith

    Fecal incontinence

    I decided to get out of the house today to hang out with friends since I've been either in the hospital or too sick to get out of the house these past few months. I thought I would be good, bathroom wise, because my friends are very understanding about my condition & will stop at anytime to help...
  12. Keepingfaith

    Upper GI Crohn's: Advice

    I've been doing my best to try to maintain my weight but ever since I got out of the hospital friday, I've already lost 10 pounds & the Prednisone hasn't given me any increased apptetite. For some reason I LOSE weight on Prednisone. :ybatty: My Crohn's is currently flaring in my stomach...
  13. Keepingfaith

    Drinking Aloe Vera Juice!

    Tonight I took my first 'swig' of aloe vera juice. I'll be the first to admitt, I can't follow a 'strict' diet to save my life due to my busy life style & my family members(to say we are a ACTIVE on-the-go family would be an understatement). My mom & grandparents have mentioned Napolea juice...
  14. Keepingfaith

    Been in the hospital since friday...

    I'm back in the hospital. I was babysitting a kid and I tried my best to keep up with her but I guess I over did it. The poor child had to arrange for me to go to the ER while I eas crying in pain. I went to the ER and the CT and bloodwork showed I had a lot of fluid in my pelvis,more...
  15. Keepingfaith

    Vent/Need input

    I originally posted this in another sub forum but I didn't even remember to post it here & not there. Probably because I had to rush to the bathroom & didn't feel like taking the time to look more. :lol: So…I really don’t know what to say. I talked to my Rhuematologist yesterday(who’s...
  16. Keepingfaith

    Parents with kid's on Cimzia?

    Hello! I usually don't hang around here(I'm just a teen) & I am supposed to be starting Cimzia next friday. I've been on 95% of the other drugs w/ the exception of Imuran/6MP/Methotrexate. The only issue is my Rhuemy(I get my biologics through him. MUCH cheaper. If your kids have joint issues...
  17. Keepingfaith

    Vent/Need input.

    So…I really don’t know what to say. I talked to my Rhuematologist yesterday(who’s incrediably smart & a smart a**) & he said that there is no use in me starting 6MP/Imuran/Methotrexate because it won’t help me any & I’ve already made antibodies to my Humira. He said my only option is Cimzia. So...
  18. Keepingfaith

    Switching from Humira to Cimzia!

    I just got back from my Rhuematologist. My GI wanted me to ask him about maybe increasing my Humira to two shots, every week. My Rhuematologist said he's never done it & even Abbot said they've never had a patient on that high of a dose. Especially giving it to a kid who's almost 16(myself). My...
  19. Keepingfaith

    Yellow urine, clay colored stools & GB pain!?

    I'm getting really worried. I have been having a lot of pains where the GB is located, yellow urine & clay colored stools. Only issue? My gallbladder is already removed!! I got it removed in 8th grade due to gallstones & now all the symptoms are coming back. No matter how much water I drink, my...
  20. Keepingfaith

    Trippling up Humira but I'm under 18 :(

    I went to my GI appointment friday & he said that since starting the Sulfasalazine instead of the Apriso, my gut has gotten out of hand...again. The last appointment we talked about bumping my Humira up to once a week so I can get more relief from it & after some arguing with the insurance, they...
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