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  1. Sparkle2012

    Humira for Joint Pain - long term use

    Has anyone any feedback on longterm use of Humira and how it affects joint pain? Thanks!
  2. Sparkle2012

    Long Term Humira?

    Hi - Is anyone using Humira for long term? I have the Crohns DX (no symptoms after surgery X 1 year) and after steroid treatment I developed chronic joint pain. I am being tested for Rheumatoid arthritis....hand xrays and blood work...next week and once again I'm being pushed toward Humira...
  3. Sparkle2012

    Pentasa, increased appetite, joint pain

    Hi, I have been taking Pentasa for 9 months. I have found 2 things. My joints and bones hurt nearly every day. I have a huge appetite that seem pretty consistent all day and have gained 30 lbs. Am looking for feedback on this. Some additional little minor things...my hair seems...
  4. Sparkle2012

    Pentasa questions

    Pentasa has caused increased appetite for me. I have gained 30 lbs in one year. I am wondering how common this is.
  5. Sparkle2012

    Sudden Joint Pain Following Steroid Therapy

    Good morning all! Has anyone experienced sudden joint pain following medications? Specifically for me ..Entacort for 4 months....and now Pentasa. I contracted what I believed to be a virus that was going around causing achiness -- I was in bed for a day from joint pain --- after 2 days it...
  6. Sparkle2012

    Starting Pentasa No Symptoms

    Hi all, I'm curious about something. I have been radiated with tests for over a year now and finally had strictures removed. I have Crohns ileitis....I have been dealing with blockages for 30 years and it finally closed. Other than that, no D issues. I have no pain and no issues passing...
  7. Sparkle2012

    My story....ulcers from aspirin, antibiotics, chronic C, or IBD?

    Hi all, I've been on this forum for a while as I've been testing and getting opposing DX for a year now. I thought I would put my story down as it might be helpful to someone. I started getting symptoms of Irritable bowel in my early 20's...I was on a carrot crave phase and we figured it was...
  8. Sparkle2012

    Copious gas - Entacort or surgery side effect?

    Hi - my GI put me on Entacort for 3 months post gallbladder removal and small bowel resection surgery. Im into 2nd month. I have noticed copious gas that is almost comical. Could that be from the steroids, gallbladder surgery or the resection? I'm hoping it is the Entacort and will end in 3...
  9. Sparkle2012

    GERD from Green Tea

    Anyone experience heartburn from drinking green tea and decaf tea? It's odd because I drink coffee in the a.m. no issues --- but tea in the afternoon seems to cause issues at night. Nothing major, just curious.
  10. Sparkle2012

    Question re "stricturing" Crohns

    Hi all - hoping you have answers for me. If you read my signature you will see it's been like a yoyo with this disease. I was diagnosed today with Crohns based on surgical labs. I did not have diarrhea, bleeding, weight loss or any of the classic symptoms. Ulcers were discovered with pill...
  11. Sparkle2012

    My bowel resection experience/gallbladder removal surgery

    Hi all - I thought I'd tell you about my recent bowel resection surgery and gallbladder removal for those who are facing that surgery. My physician did the surgery partial lap surgery. Basically a 4 inch vertical cut under the navel and 5-6 small slits around the circumference of the tummy. I...
  12. Sparkle2012

    Ulcers, strictures - not Crohns?

    Hi all - I was diagnosed with Crohns and was scheduled to start on Humira. Went to speak with an expert on biologics and he looked at my labs and questioned the diagnosis. New barrage of tests including a Crohns test that was never given and yesterday was told it's not Crohns, not cancer...
  13. Sparkle2012

    Dizziness in the morning

    Hi all - recently diagnosed with Crohns/strictures small bowel and received my Humira delivery last week. However, a new GI doesn't think it's Crohns - but aspirin induced strictures, gallbladder and IBS. Tests coming soon on that one. CT has pinpointed 2 stones in my gallbladder and I have a...
  14. Sparkle2012

    Flu Symptoms, fever

    I have read but can't find the threads that Crohns can cause flu symptoms. I woke up on Thursday with a stiff muscle in my neck/shoulder - sleeping funny I supposed. On Friday, woke up and was feeling slightly "off". Later in the day, all my joints started feeling really achy and I had a...
  15. Sparkle2012

    Innoculate prior to Humira?

    Speaking to another Crohn, she mentioned that you should have your flu, shingles, and pneumonia innoculations before starting Humira. I had always intended to have the shingles (I have had c/p) and pneumonia shots (I have asthma and have been advised to get it). i'm wondering if I should delay...
  16. Sparkle2012

    Strictureplasty (and other) video

    I found this video on youtube which describes this surgery (and others). Am I correct in assuming that the cut is lengthwise across the stricture -- the lips of that cut are then pulled open and around the opposite side to the back where the seams are met and sewn, leaving the inside lining of...
  17. Sparkle2012

    New: questions, Strictures, Problem foods, Myralax, Vitamins, Humira

    I have been tested for nutrition and it was way low. I'm much much better since I started faithfully taking vitamins, Myralax (not sure if that's hurting or helping) and the Align - oh my goodness that was a miracle. Also I'm taking B12 shots which have really helped weekly. They are about to...
  18. Sparkle2012

    Dixon, Dickson Family - Crohns Disease

    I have a curiosity. I have read that Crohns is passed down thru your genes at a rate of 55%. I know of no one with this in my family although there have been similar areas of concern in the bowel on both sides. I thought I would attempt to see if there are any Dixons or Dicksons in this forum...
  19. Sparkle2012

    Carroll Family/Crohns Disease

    I am curious. I have read that the incidence of Crohns passed down thru your genes 55%. I know of no one with this in my family although there have been areas of concern in the bowel on both sides. I thought I would attempt to see if there are any Carrolls in this forum who also have the...
  20. Sparkle2012

    Crohns with Constipation - questions

    I have supposedly had "IBS" for 25+ years. Recently diagnosed with Crohns so....is that what that actually was for 25 years? I am a chubby person who has had trouble losing weight and with constipation and occasional blockages. Does anyone have these symptoms? I recently decided to start...
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