• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. jmckinley

    Just Overwhelmed...

    Wow, what a crazy summer! My emotions are just all over the place about starting Humira yesterday. I fought with insurance for days to get the injections then I think I about had a panic attack on the way to the GI office with the loading dose. The reality didn't set in until I was halfway...
  2. jmckinley

    T-dap booster

    Just wanted to share some information...be sure to keep your kiddos t-dap boosters up to date. Here's why... Ryan had ear surgery 2 weeks ago (supposed to be a fairly simple thing). He developed chondritis in the ear cartilage and had to spend 3 days at the hospital. He started coughing while...
  3. jmckinley

    Could these be Methotrexate side effects?

    Okay my fellow metho users..... Ryan has had bruising at the injection site on his left leg. I can't even stick his right leg because it hurts so bad. Then today, he had a major nose bleed. He has NEVER had a nose bleed before. Any ideas? Am I smoking something to think these are side effects?
  4. jmckinley

    Bruise/Pain at injection site

    I give my son a methotrexate injection weekly in his upper thigh. We alternate legs. Last weekend, he had a sharp pain in his right leg, so I injected his left. This week, the left leg still has a bruise from last weekend. Also, the right leg hurt again when I tried it. He says it feels like...
  5. jmckinley

    Venting! Symptoms appearing.....

    I'm sorry, I just have to growl for a minute! I warn you, this is a rambling mess! Ryan is having some symptoms. It started with anxiety over All State tryouts. Then he had a sinus infection and had to take antibiotics. He has had blood in his stool (mostly bright red in water and on paper -...
  6. jmckinley

    I want to raise a child.....

    I don't know if this really warrants a new thread, but I wanted to share this. Raising a child is hard enough, but when you add illness it becomes a challenge to test our muster! As I was reading this I noticed thay my son IS many of these things, not just because of how he is being raised...
  7. jmckinley

    Foods that cause gut trouble

    Ok. Just thought I would ask about foods that cause your IBD kids problems....spices, drinks,....whatever... Ryan has been doing fine until....I made a beef pot roast last week. His tummy was pretty upset. I was hoping that in doing well he could handle it, but NO! Looks like no beef around...
  8. jmckinley

    Allergic Reaction to Remicade

    :voodoo::voodoo::voodoo: We went for a remicade infusion today and Ryan had an allergic reaction. He turned blood red, his chest tightened, he had trouble breathing, head hurt, and nausea! Poo! The nurses stopped the infusion and called the GI. He came and checked Ryan out. The symptoms...
  9. jmckinley

    Enjoying the Good Days

    I just wanted to update on Ryan. We are enjoying some good days right now. Man, I forgot how precious they are! Ryan is up to 106 lbs at 5'5". Still then, but looking very healthy. His last bloodwork was very good. But even better than his weight and bloodwork, he is happy! He just started high...
  10. jmckinley

    Our Kids dealing with Anxiety

    We are 2 weeks into high school and Ryan is loving the difference. HOWEVER, he came home last Thursday and today so anxious and upset :ymad:over something he can't control. I have talked to him about it but his perfectionist personality is not going to let this go. I can tell. And I failed to...
  11. jmckinley

    Update on Ryan

    Just wanted to share some great news. GI called today and SED rate is 11 and CRP is less than .5! These are the best numbers we have had in a year! After the terrible numbers we had in the hospital last month, this is a blessing. We've got some hurdles to cross yet, but I am enjoying the...
  12. jmckinley

    Antibodies to Remicade

    Okay, my son has developed antibodies to Remicade after only 4 infusions. When (not IF) we have to change medications, is it probable that he would develop antibodies just as quickly to any other biologic?
  13. jmckinley

    Our New Diet Journey

    My son's Crohns has been flared since last fall. We started Remi and Pred in February. As soon as the Pred ended, his SEd and CRP went right back up. That is when we started seeing a Wellness Dr. We found him through my Father in law who had great success with his migraines. We aren't gullible...
Top