• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. afidz

    Terrible blood work and post op complications

    First, I don’t want to repeat myself, so if it seems like I skipped something, you can probably find it in this post. I’m kind of all over the place because a lot has happened https://crohnsforum.com/threads/fluid-buildup-after-surgery.85084/#post-1021240 I have failed almost every biological...
  2. afidz

    Fluid buildup after surgery

    I always feel a little weird talking about my surgeries on here because although Crohn’s is the catalyst to al of the surgeries, it’s not Crohn’s related. That being said, I am looking for some input (I’m also trying to get in contact with my surgeon, but he’s 1000 miles away. Just wondering if...
  3. afidz

    Holy cow, where have I been?!

    First, I want to apologize for ghosting. The truth is, I was in a huge downward spiral. I was fighting against my mental health on top of my physical health and everything was overwhelming. I spent so much time helping people prior, I felt like nothing I was telling other people mattered if I...
  4. afidz

    Another update

    As I stated in my last update, I had an allergic reaction to remicade in November, and then an adverse reaction to Cimzia in December. I had a colonoscopy in December that showed mild inflammation, shallow ulcers and quite surprisingly, no signs of disease progression. In other words, I'm...
  5. afidz

    Getting first colonoscopy after 7 years. VERY nervous

    The last colonoscopy I had went terribly wrong. I have had the same GI for the last 6 years, he is absolutely wonderful. He knows my history and has been very understanding when I tell him I am just not ready for another scope. Especially now, because my hernia is so bad and my organs are so...
  6. afidz

    Another bad reaction, running out of options

    If you recall, I had an anaphylactic reaction to remicade 6 weeks ago. Almost killed me. Wednesday I had my first day of Cimzia. Thought everything was fine. About 10 pm my hear started racing, my abdomen started hurting, my chest was hurting and I was gasping for breath. Went to the ER. I had...
  7. afidz

    How do you balance being sick and work?

    So much has changed in the last month, so I know that my body is just trying to get used to change, but I wanted to hear from other people. I will give a little back groud and explain what I am going through right now to see if anyone can relate and offer advice. I got fired from my last job...
  8. afidz

    Americans with Disabilities Act and my new job

    I started a new job at the end of October. I work for a very large insurance company, the benefits are great, the job is awesome. I was trying to avoid the "I am chronically sick" topic but that didn't pan out because my need for frequent restroom breaks was noticed. I thought I was getting in...
  9. afidz

    Anaphylactic shock 1 year after starting remicade

    I have been on Remicade for the last year. Its been a great year, probably the best year I have had since being diagnosed in 2007. Because of remicade I went back to work after 4 years. It changed my life. Thursday I went in for my scheduled infusion. 10 minutes into the infusion, my chest...
  10. afidz

    Any avid tea drinkers?

    My fiance and I started drinking tea, like lose leaf tea of sorts. We've been going teavana, but boy do they take your money. I'm not really sure what I'm looking for in a tea. But since I stopped drinking pop and sugary drinks, I want something other than water. So I'm looking for someone...
  11. afidz

    Thinking about getting a port, share your experiences!

    I have one semi good vein left, so as the title suggests, I think I am going to ask for a referral for a port. I talked to a friend with MS that has a port and she said it is the best thing a sick person can have. I was worried about the scar because I scar very easily. I am worried about...
  12. afidz

    Can't have kids because of Crohn's, need support

    As the title suggests, because of complications that I have suffered from, I can't have kids. Its not that I can't conceive., I don't know whether I can or can not. Its the fact that my abdomen, my body, could never support a pregnancy. Getting pregnant could literally kill me. I have known...
  13. afidz

    ER Checklist

    There was an old thread up before about things you should take to the ER as well as helpful tips once you're there. This is a new and hopefully improved thread on the same topic. Since we all have a disease that could turn emergent at any given point, I think the first thing suggested is to...
  14. afidz

    Very random symptoms- need help

    OK so last night I had chest pains. Eventually I figured out it was a combo of gas and a vitamin stuck in my esophagus. The hernia causes me to choke some times, I got it to go away after a lot of belching and pushing on my stomach. Its right under my skin so it was pretty easy to relieve...
  15. afidz

    Does anyone else use diuretics?

    I have to take diuretics because I retain mass amounts if water if I don't. But I'm terrified of them. Long term use can cause kidney damage. I'm only 26 with enough health problems to last a lifetime (good thing it's all chronic eh?) I don't want to hurt my kidneys. I haven't taken them in at...
  16. afidz

    Getting an upper endoscopy, nervous about what they might find

    As I have mentioned before, I have problems with my esophagus when I eat. Its not all the time, but when it happens, it brings tears to my eyes because it is so uncomfortable. I am not choking because I can breath, but it feels like there is food stuck passed my windpipe. My GI wants to do an...
  17. afidz

    Pork is officially off my list :(

    The last time I ate bacon I didn't feel too well. Just had ham for Easter dinner and within an hour I almost didn't make it to the bathroom on time. I'm pretty sure that there is nothing left in me to upset my stomach. I'm light headed and still very nauseous from the pain I was in. I've had...
  18. afidz

    Having problems with my throat

    I am going to be making an appointment with my GI, but I wanted y'alls opinion A few months back, before I started Remicade I started having what can best be described as throat spasms. While eating my throat would lock up and I would start drooling. Swallowing made it worse. I could breath so...
  19. afidz

    Biologics, health insurance and deductibles (US)

    I know this information may be a little late as the new year has already started. But I am in the process of purchasing insurance right now, so I wanted to share what I found out yesterday from the rheumy. She told me that most people have really high deductibles now because of healthcare...
  20. afidz

    Unknowingly burned myself

    Because of all of the things that has happened to my abdomen. I don't have feeling over most of it. I am coming to find this is VERY bad. Yesterday I had a hot cup of water that I had intended on drinking to warm up. The cup was very hot the water was even hotter. So I was waiting to drink it...
Top