• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. LaLaNapa

    Suggestions for starting...and not losing sleep?

    So I get my LDN tomorrow and start it tomorrow night. Now, I don't have a lot of symptoms from my "moderate Crohns"...but one thing I AM is tired...and this girl COUNTS on her 10 hours of sleep a night. So...I've heard you have weird dreams from LDN, but also that you could have trouble...
  2. LaLaNapa

    Has anyone done a drug trial?

    I have been diagnosed with "mild symptoms due to moderate Crohns", which seems contradictory but makes me eligible to participate in a drug trial of an experimental drug TU-100 by Tsumura USA, Inc. It is described as "a modern herbal product that has been approved in Japan since 1986". The...
  3. LaLaNapa

    Back to the beginning again

    So I'm apparently back to square one again. Back in April I had my first colonoscopy, which I thought showed lots of inflammation. It sure wasn't that pretty pale pink like in other's people's pictures - more like watermelon jolly rancher color. (Which sadly I haven't had in a long time.)...
  4. LaLaNapa

    How do you deal with loss of appetite?

    How do you all handle loss of appetite? I’ve been tracking the number of calories I take in daily, for the first time ever since I was a body-image obsessed teenager, and I am shocked at how little I eat. I find I have this impression that if I don’t feel good, I shouldn’t eat because for me...
  5. LaLaNapa

    15 years on my own with this…

    15 years on my own with this… I am 40 years old and have just got my official diagnosis of Crohn’s disease. But I know I’ve had it for almost 16 years. I would keep “treating” it on my own, silently, if I didn’t recently have a scare and decide to make another foray into the world of...
Top