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  1. rollingrfarm

    Mastocytic Enterocolitis and vomiting - medication problems?

    I was diagnosed with ME over 5 years ago - my doctor said he found excessive numbers of mast cells in a sample he took. For a number of years Wellchol and chloestryamine kept it under control, but then it started making me sick. I started taking bentyl before eating along with ranitidine and a...
  2. rollingrfarm

    Results of MRI, what does it mean?

    I had an MRI last week for my L1 wedge fracture. The info that the hospital sent me of all my tests said: "Terminal ileum appears within normal limits. The descending and sigmoid colon appear thickened but this may due to nondistention." I was diagnosed with ME about 5 years ago and that...
  3. rollingrfarm

    Weird Changes in ME after side effects for ankle surgery

    Last week I had a horse accident and as a result I was hospitalized, was put on morphine and had surgery for the first time in my life. Naturally, I was worried about having a bowel accident laying in my hospital bed (having on the average of 6-10 diahrea bms per day normally). I was not...
  4. rollingrfarm

    ME and the routine that seems to work for me

    Its been 2 1/2 months since I went off the chloelestyramine that started making me sick after several years. Here's my daily routine that allows me to not live in the bathroom. If I have to go to a meeting and make a long drive and not need a bathroom: 1. Immediately upon waking...
  5. rollingrfarm

    Macrosytic Enterocolitis and Joint and Muscle Pain?

    I have been diagnosed with ME and and currently taking Gastrocrom and high doses of ranitidine, famotidine, allegra and zyrtec and benedryl (at night). I started the regiment back in mid June. This past week, I have felt very tired and have all over joint pain. Is this a symptom of the disease...
  6. rollingrfarm

    Diagnosed with Mastocytic Entercolitis, Bile absorpers make me sick, help!

    Hello: I was diagnosed with mastocytic enterocolitis about 5 years ago. My gastro doc, who is now retired put me on chloestyramine. It worked great until about a year ago when I started getting terrible stomach aches and gut paralysis after taking it. The pain and paralysis (which I followed...
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