• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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    Dosage of 6mp

    My daughter who is almost 18 has been on a daily dose of 50mg of 6mp since she was diagnosed with Crohn's aged 14. She has recently transferred from the paediatric team to the adult gastro team. When we saw the consultant last week she said she would like to reduce the dose to 25mg per day as...
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    Update after surgery - a bit overdue

    Hi everyone I have been meaning to post an update for a while, but time has got the better of me! My 14 year old daughter had her surgery on 5th November, having gone into hospital a week earlier on the 29th October. She had a general anaesthetic while they inserted a PICC line and an NG tube...
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    We have a date for surgery

    My daughter now has a date for her surgery. The surgeon thinks that about 15cm of small bowel will be removed. She's going into hospital on the 1st November, with surgery booked for the 5th. It was supposed to be on the 12th but I had a call from the hospital yesterday to say they can do it...
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    MRI scan and sickness

    Hi My daughter had her second MRI scan on Thursday to see if the inflammation has gone down at all. It took so long, because the Mannitol wouldn't go down to where it should be, it was sitting in her stomach. I'm guessing this is because of narrowing in the bowel? Also for the last few days she...
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    How long before you see any benefits from medication?

    Hi My 14 year old daughter is currently on 60mg of mercaptopurine once a day and 1.2g of Mesalazine twice a day. If this medication will help (and I realise it's an 'if'), after how long should we see any improvement? She has started eating again and has had extremely loud noises coming from...
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    Delayed puberty

    Hi Although I didn't realise it at the time, I now know that delayed puberty is common in Crohn's children. What sort of delay are we talking about? My daughter is 14 and has not started her periods. Obviously I don't wish more pain on her, but just wondered when she will 'catch up.' In...
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    New here

    Hello I joined this forum as my 14 year old daughter has been diagnosed with Crohn's a few months ago. Before diagnosis she lost lots of weight - she told me she couldn't eat much as she always felt full - was vomiting about once a week, constantly tired, white as a ghost; all things that I now...
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