• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

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  1. M

    Crohn's on TV

    Was just wanting a TV show in the UK (on TLC) called 'too ugly for love' where people with a variety of 'embarrassing' conditions are dating. A lovely lady called Marcia was on with Crohn's and she was inspirational explaining the condition and showing her stoma bag and stoma. So brave!
  2. M

    Semi-colon - Hemicolectomy Support Group

    As treatments go a lot of us Crohnies seem to end up having a hemicolectomies but there doesn't seem to be a lot of info out there on aftercare, follow ups, keeping well afterwards and long term effects. Hopefully we can share our experiences
  3. M

    Post surgery blood test, which ones?

    Hi Just wondering which blood test I should be asking GP for since my resection? B12? CRP? Any others? Thx
  4. M

    Crohn's dictionary

    I started thinking if anyone else has come up with words to help describe their Crohn's related issues/ symptoms..? Here's a few that I think need little explanation (sorry if they seem a little graphic) - Poo-cus: a mix poo and mucous, often due to inflammation or the type of bowel movement...
  5. M

    Reversal celebration!!! RIP 'Pinky' (aka BeanieBaby)

    My reversal was done this morning!!! Had a bit of a cough so was slightly worried it might not go ahead. Onwards and upwards, looking forward to 2013 :dance: The support I have received from all of you has meant the world to me Xx
  6. M

    Random scar question...

    Hello I had surgery about 7weeks ago and on my midline scar there were a couple of raised areas. It is all healed over but one looked like a little bubbly around a stitches which may not have fully dissolved. So I know I shouldn't have but I pierced one and a yellow/orange oil substance came...
  7. M

    Gas... But not from my stoma?!?

    It's strange when the usual becomes unusual... Today I felt as though I wanted to pass wind and instead of coming out of my stoma it came out of my behind! This is the first time anything's happened there since surgery, has anyone experienced this? (I have a double barrelled ileostomy, intestine...
  8. M

    Donation of unused bags

    Hello, for all you UK ostomates I was wondering what to do with some of my precut bags that no longer fit due to shrinkage and I came across this link: http://www.ostomylifestyle.org/content/ostomyaid I think some stoma nurses/ hospitals might also be able to donate bags directly. I think a...
  9. M

    Stoma stitches

    I recently had a right hemicolectomy and due the crohns inflammation doctors were unable to join me so I've ended up with a temporary stoma. A bit of a shock but I think it's all going well and I can eat now without pain (was on a liquid diet 6weeks before the op). One of the main problems I...
  10. M

    Stoma stitches...

    I recently had a right hemicolectomy and due the crohns inflammation doctors were unable to join me so I've ended up with a temporary stoma. A bit of a shock but I think it's all going well and I can eat now without pain (was on a liquid diet 6weeks before the op). One of the main problems I...
  11. M

    Extended right hemi...? What should I ask my surgeon

    Hello, Ive been scheduled for a extended right hemicolectomy as an open procedure. I feel a little out of my depth, I understand the basics of the procedure, but are there any really important things I should be asking my surgeon or ensuring take place to better my outcome? Any other advice...
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