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Crohn's Disease Forum

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  1. J

    My Struggle with Crohn's

    Hey David, blood work once a month since last April and everything is fine. One thing to know and remember (what i have been told by several Drs.) is that the large intestine (colon) is what absorbs the moisture from the stool. Once that is removed the small intestine has to take over for the...
  2. J

    Obamacare and Crohn's Disease

    I think what most people are afraid of about this bill is How will the government pay for it
  3. J

    Sit, Stand or Kneel?

    Actually depends on where i'm at. At home i kneel ,public restrooms i stand (well squat as being 6'2" is a little high from the toilet)
  4. J

    Stingy pee males please help

    I just had those same symptoms you describe plus having an overwhelming urge to have a bowel movement which is totally impossible since i had my ilieostomy in 1988. What the surgeon found was 3 cysts with one pressing against my urethra making peeing very hard and painful. Had surgery to remove...
  5. J

    What Career/Job Do You Have?

    Since I was 22 when I was diagnosed (1975) I didn't really have a carreer. Worked several jobs with the last being transportation supervisor at Goodwill up to 1984. I then applied for disability was finally accepted after being denied several times and stayed on disability ror about 8 years...
  6. J

    My Struggle with Crohn's

    has anyone seen pictures of what Crohn's looks like ? My last visit to the hospital the dr did a scope down my throat and through the stoma and i have pics of what crohn's looks like
  7. J

    Just out of curiosity-~~~~~~

    Has anyone seen pictures of Crohn's and what it does to your intestines?
  8. J

    Just out of curiosity-~~~~~~

    I believe UC affects the colon whereas Crohn's can affect not only the colon but the small intestine, stomach, esophagus, mouth, and any part of the digestive tract.
  9. J

    My Struggle with Crohn's

    Jenamonkey, You have to have a sense of humor about this. You can't let it get you down emotionally. If you do then the disease has won and I refuse to let that happen.
  10. J

    My Struggle with Crohn's

    Angrybird this last flareup started probably last year sometime. I was admitted to the hospital this last May because of severe abdominal pain, severe bloating and constant diarrhea. While in the hospital i was fed intraveneously for a week and started on Pentasa, Bentyl, Protonix and...
  11. J

    An ongoing life battle....

    One thing i have learned with my 37 years with an ilieostomy is, I find myself getting really dehydrated. And it doesn't take long to happen. I usually end up having to go to the er to get fluids in me through an iv. And i have found also that being dehydrated can cause you to feel absolutely...
  12. J

    Anyone dealt with this?

    Tinah, I too have had urges to go sit on the toilet with an almost overwhelming urge to have a bowel movement. I had my ilieostomy since 1988. I've had these symptoms off and on for 4 or 5 years. I would have so much pain that neither sitting or laying down would help. What I found that helped...
  13. J

    Symptons, I need some help!

    Hi, Brittany. I have lived with Crohn's for almoxt 40 years My first symptoms were severe pain in my lower abdomen which actually seem to move from side to side and back to back. I could not eat anything because the just the smell of cooked food would send me to the bathroom. I'm 6'2" and now...
  14. J

    The short version

    Hi Darlene. I too was misdiagnosed and was treated for an ulcer for 2 years and of course that did nothing for the Crohn's
  15. J

    My Struggle with Crohn's

    I was diagnosed with Crohn's in 1975 and have really stuggled with the disease since. In 1980 i had developed several fistulas which, in my case, were small tubelike stuctures from my colon to the outside. In May of 1988 I had to have surgery to remove my colon and some of my small intestine. I...
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