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Hi thank you for replying and for the prayers and hugs ;o) its helpful to know someone else has the same problem, my daughter is now on amitriptyline and although the pain is coming more often they do seem to have taken the edge off for her too and they are shorter, she also is having an MRI...

try and get in contact with your GP, or call NHS helpline... sorry I cant help any more than that but I hope you feel better soon... things will get better! hugs xx

still no idea after reading all 9 pages!!! H.Pylori Stress Apendix removed Smokes Drinks a lot of milk Family history Used to bite her nails Any of the above ... something else ... who knows Am very interested in the Stem Cell treatment mentioned and will definately be keeping an eye on that...

Hi My Daughter was diagnosed 2 months after you Think it can help if you type it out before you try to say it, that way you can keep adding bits inbetween til it makes more sense. Also my daughter has some (free) apps for her phone ones called GI Monitor (people on it call it Buttbook lol)...

Well it's good news ... The blood test shows nothing worrying, dr says it could be viral throat infection, hopefully will clear on own, will review her in clinic next week ;0) x

Finally had an email from Ibd nurse this morning she has spoke to dr and he has ordered urgent blood test, luckily she had one yesterday for her routine apt next week, so he will check her results and get back to us ...

Hi Thank you to all for your input ;o) Well my daughter sent an email to her IBD nurse this morning (her usual method of contact) saying about rash/sore thoat etc I called and left 2 messages on their answephones (think one is on annual leave) so far have heard nothing!!! UPDATE -just had...

They have mentioned cluster headaches, so yes I think that's part of what the neuro will be looking at, she gets one about once a week ish ;0(

No they haven't ... I was unaware how important it was until today will mention it tomorrow ... Thank you

Thanks will get in touch with IBD dept tomorrow fingers crossed her dr can see her sooner He is delaying infliximab until she has seen a neurologist as she is having quite regular headaches with an awful pain in one eye that no painkillers seem to ease ;0( poor love Think the prob is that...

Sorry computer was acting up :ybatty: finished post here; http://www.crohnsforum.com/showthread.php?t=39771

Hi Patricia The only place we can get seen today is A & E, we went there last week after a visit to her GP (locum) advised us at 6pm she needed urgent blood tests because of the rash on her face (worried it was a reaction to her meds), we waited 3 hours to be told by the doctor in A & E that...

Hi My daughter (20) was diagnosed with crohns in May, I have listed below her current symptoms and medication very sore thoat no energy aches all over no temperature some belly aches 3/4 visits to loo a day (loose) rash on arms -no longer itching rash on chest - not itching pale skin headache...

Hi no temperature rash on arms -no longer itching rash on chest - not itching very sore thoat pale skin headache no energy aches all over Azathioprine - am Lansoprazole - am Iron Tablet - am Amitriptyline - pm Doxycycline - pm

Hi Thanks for replying, my daughter is 20, she has been suffering for many years but only diagnosed in May this year, now all the problems she has had can be explained by her diagnosis of crohns ;0( We seem to be at an emergency doctors or a & e dept most weeks as we are still unsure what...

Hi my daughter has crohns and is suffering with headaches approx 1 per week for the last couple of months with an agonising feeling like a knife is sticking in the back of her right eye (not a stabbing pain) lasting anything between a few hours and a few days Her crohns specialist is very good...