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  1. Agent99

    Storage of Humira during long-term travel

    Hi all... my 26 yr old son is heading out on a traveling/camping adventure for the next month and a half before he goes off to college. He currently injects Humira every 2 weeks. Any suggestions on how to store his doses while he travels? He'll have a pickup truck w/cooler. Would it be ok in...
  2. Agent99

    Humira, Crohns, and Diverticulitis

    Hey everyone! I was on Humira for 5 years and then went off of it (with doctor approval) because I thought it was causing severe chronic post nasal drip. Turns out the PND was caused by silent reflux and once I got that under control, my PND went away (for the most part). I've been managing...
  3. Agent99

    Crohn's Disease - Immune system higher or lower?

    I've had Crohn's Disease for nearly 30 years. I have had issues with the Crohns off and on and various intensities. About 7 years ago, I started Humira and was on Humira for about 5 years. A year ago, I discontinued the Humira because my medical providers could not determine what was causing...
  4. Agent99

    Post Rotator Cuff Repair - I hurt all over

    Crohn's Disease nearly 30 years. Was on Humira for 5 years, but had to go off of it last October due to chronic sinus issues. Now on no meds for CD. In January, I had rotator cuff repair on my left shoulder. It was a large tear and separated from the bone. I also had some bone spurs removed...
  5. Agent99

    Crohns Related Arthritis - What is the Pain Like?

    I have had CD for 30 years. Around my diagnosis, I noticed large joint pain... It would either be in my ankle, knee, or most commonly, my wrists. Fast forward 30 years, and I still get the wrist pain. There is no rhyme or reason when I get it, it seems. It will appear, stick around a few days...
  6. Agent99

    Crohns related arthritis -- what is the pain like??

    I have had CD for 30 years. Around my diagnosis, I noticed large joint pain... It would either be in my ankle, knee, or most commonly, my wrists. Fast forward 30 years, and I still get the wrist pain. There is no rhyme or reason when I get it, it seems. It will appear, stick around a few days...
  7. Agent99

    Humira Causing Post Nasal Drip??

    I'm done with the post nasal drip (PND). I've pretty much narrowed the issue down to Humira and I just don't know what to do! I'm a 51 year old female with CD for 27 years. I've been on Humira for 5.5 years now and this past 7 months has been pure hell. I developed PND earlier this year -...
  8. Agent99

    Intense Muscle Cramping - Prednisone Help!

    I'm finishing up a round of prednisone (tapering) and I'm experiencing intense, uncontrollable muscle cramps. They hurt so bad that I am reduced to tears (definitely not like me) and I haven't had a good nights sleep in days. I know it is the prednisone as I've experienced this before while...
  9. Agent99

    Excess Sinus Drainage

    I've been on Humira for 5 years now and although it controls my Crohn's disease well, I now have sinus issues. I had sinus issues previously; however, not like this. Within the past 2 years, I have had sinuplasty, septoplasty, and turbinate reduction. Seemed to help for awhile, but now I have...
  10. Agent99

    Crohns, Cysts, Infections, Sinus Issues

    From my title, I obviously do not know where to start. I do know that I'm tired of feeling like crud and tired of visiting the doctor's office(s). I've had Crohn's for 27 yrs. I've been on Humira for 4.5 yrs. I've had one very small flare while on Humira. I cannot tolerate 6mp at all. I'm...
  11. Agent99

    Crohns, Half Marathon, and Flaring

    My first half marathon is 3 weeks away and I'm flaring for the first time in nearly 4 years. :-( I have a couple of questions: 1. Does anyone have any experience with running and crohns? I haven't run all week since the pain started, but I'm going to have to tie the shoes on this weekend...
  12. Agent99

    Sinus swelling, Crohns, and Humira - Help!!

    I've had Crohn's disease for 25 years and have been on Humira for the past 3 years. I recently started seeing an ENT because my sinuses are so swollen that they are affecting my hearing (sinus has swollen over eustation (sp?) tubes). The ENT has tried me on sudafed, antibiotics, netti pot, and...
  13. Agent99

    Humira and Pentasa?

    Is anyone on Humira and Pentasa? Does it work well together??
  14. Agent99

    Sad, mad, depressed... son diagnosed with Crohns

    Hi, I'm Linda and mom to Travis. I have had Crohn's for 25 years. Over Christmas, my 19 yr old son was diagnosed with Crohn's. Needless to say, I feel horrible!! I'm on Humira and it works for me so our GI started him right on the Humira. Unfortunately, he just started a military career (I...
  15. Agent99

    Crohns for 25 Years & my son just diagnosed

    Hi all... my name is Linda and I've had Crohn's disease for 25 years. A couple of years ago, I had a pretty bad flare and my doctor started me on Humira. I've been doing well since then; however, have recently noticed some symptoms indicating that I might be having a mild flare.... just not...
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